2 thoughts on “Reminders that this patient experience malarkey is a serious business

  1. Excellent Blog Simon, real food for thought. A huge issue for me is the wider represented voice and the best ways to achieve this collective view. thanks too for highlighting ‘the patients dozen’. rreally enjoyed reading this and subsequent reflections.

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    1. I have some issues with the expectation that patients should be at the table to represent others. This expectation is not placed on our academic or other colleagues so why is it placed on us. We are there because of the validity of our insight, knowledge and experience to ensuring high quality science is funded that meets patient needs.
      Thanks for your comment Sharon.

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