Hats off to the National Institute for Health Research (NIHR) Clinical Research Networks who published the latest data on patient experience in research this week. They have now been tracking patient views on participation for three years and with each report we gain a more informed picture of what matters to them. And with the … Continue reading NIHR publishes latest data on patient experience in research, provides patient pathway to study success @NIHRCRN @NHSRDForum #clinicaltrials
Dignity and respect in clinical trials: some thoughts
Looking at how we can improve the patient experience of being in a clinical trial is something I'll be doing a lot of this year as National Director. It will be one of the objectives of the NIHR strategy to increase research participation that I have just broken off from writing to do this blog. If you … Continue reading Dignity and respect in clinical trials: some thoughts
Health Research Authority looks for good practice in identifying research participants – survey.
Excuse my laziness but it is Saturday. Here's a copy of a press release put out by the a Health Research Authority (HRA) on Wednesday about a call (in essence, a survey) they are doing for good practice in identifying potential participants for research studies. The results of the work will be published by HRA … Continue reading Health Research Authority looks for good practice in identifying research participants – survey.
Survey: Cancer patients and research – the signage is there but not the opportunity to take part
You know how the story goes. Cancer is way ahead of other conditions when it comes to patients having the opportunity to participate in clinical research. But there's still lots of room for improvement. Today NHS England has announced the results of the annual National Cancer Patient Experience Survey. Almost 70,000 patients took part in … Continue reading Survey: Cancer patients and research – the signage is there but not the opportunity to take part
Reminders that this patient experience malarkey is a serious business
I don't know about you but I'm nervously awaiting the results of my 'family and friends test' from Christmas and the New Year. I was feeling ok about it. Then a friend of mine suggested a good result may not be a 'good result' at all: it might actually be a perverse and calculated attempt by my nearest and … Continue reading Reminders that this patient experience malarkey is a serious business
Cancer patient experience survey results show variations in access to clinical trials and research
The results of the annual cancer patient experience survey are out today. For those of us committed to improving patient access to clinical trials and other research, this year's report is particularly interesting. As far as I know, this is the first year that the survey asked patients whether taking part in research had been discussed … Continue reading Cancer patient experience survey results show variations in access to clinical trials and research
Are you a patient? Then, I’m holding you for questioning. You have the right to…..
Just in case you had missed it, it's all about patient experience from now on! And a good thing too. Or, at the very least, it seems the intention is to ask people more questions about their experience. A lot more questions in fact. In the new world, I wonder, will we be met by NHS 'chuggers' … Continue reading Are you a patient? Then, I’m holding you for questioning. You have the right to…..
NHS research up close and personal: ‘Research People’ site tells the stories behind the story
Returned from half-term leave today thinking that I might write about the latest Care Quality Commission (CQC) patient experience survey. After a while looking at the results I began to think: is there a good reason why there isn't a patient 'out of body experience' survey conducted and published? It might come closer to the … Continue reading NHS research up close and personal: ‘Research People’ site tells the stories behind the story