It was all going so well. My fears of spending eight hours on a budget airline from Ottawa to Nice were quickly subsiding. The plane was half-full. No one was sitting next to me. I could spread my things out. More importantly I could get to the loo at will. Most of my fellow passengers … Continue reading Blog: An incident at 40,000 ft over the Atlantic highlights the perils of ‘evandigitalism’ in health care #digitalhealth
The National Institute for Health Research (NIHR) together with its Welsh equivalent, Health and Care Research Wales, have joined forces to launch a project to develop standards for public involvement in research. The Public Involvement Standards Development Partnership has a website which went live today where you can learn more and sign up to be … Continue reading Flying the ‘standards’ for public involvement in health research: new initiative launched. Sign up here. @OfficialNIHR @NIHRINVOLVE @ResearchWales #ppistandards
The UK National Institute for Health Research (NIHR) has launched a striking new poster campaign entitled #twosides to raise awareness of the importance of patients and the public to making health and social care research happen. There are three posters to choose from in the series and you can download or order posters here. These … Continue reading NIHR launches new poster campaign on public involvement in research #twosides @OfficialNIHR @NIHRINVOLVE
A Happy New Year to you all. Here's to your very good health and much happiness in 2016. I am no futurologist so my predictions for public involvement in health research over the next 12 months should be taken with a pinch of salt. However, I do know one thing. The appointment of the new Director of … Continue reading Are you the next Director of INVOLVE?
Herewith a copy of the announcement that you will also find on the National Institute for Health Research (NIHR) and INVOLVE websites to day about the award of the new INVOLVE contract. This means INVOLVE now enters its second decade of being fully funded by the NIHR and the only such body of its kind … Continue reading Announcement of new contract for @NIHRINVOLVE awarded to the University of Southampton
What should we make of the latest figures from INVOLVE and the Health Research Authority (HRA) showing which funders are best at public involvement in research? In a re-run of an joint-exercise first done in 2010, INVOLVE and the HRA looked at the public involvement component of over 1100 research applications that went before research ethics … Continue reading Who are the good, the bad and the ugly at involving the public in medical research? New comparative figures for Government, charities and industry
You'd think that Aintree Racecourse, home of the Grand National, would be the perfect venue at which to dwell on the barriers to how we involve the public in research. What with 'Bechers Brook' and 'The Chair,' fences over which horses and riders stumble and tumble every year. It would only be right to follow suit, would … Continue reading Blog: Citizens in research: what’s your story going to be in 2015?
So, as you can imagine, I am limbering up today and tomorrow in preparation for the INVOLVE Conference - 'Changing Landscapes' - which takes place in Birmingham later this week. That means sit-ups, press-ups, gargling water and mnemonics to remember the difference between participation, engagement and involvement and other useful stuff like that. It should be … Continue reading Breaking Boundaries review of public involvement in the NIHR – Update Ahead of #INVOLVE2014
Delighted to see today's announcement by the National Institute for Health Research (NIHR) of the new NIHR BioResource. The importance of the new BioResource (the main website for the BioResource is here) is underlined by the fact that not one Minister but both the Secretary of State for Health, Minister for Health plus the Chief Medical Officer, Professor … Continue reading NIHR Friday: BioResource launch has volunteers at its heart
Forgive me. For once, I write with a semi-official hat on. But this afternoon feels like a bit of a milestone moment in lifting public involvement in research ever higher on people's agendas. If you have heard me speak in public then you will know I start by saying how proud I am that the … Continue reading NIHR gives ‘chapter one and verse’ on patients and the public in research: 2012/13 annual report published
A small island has appeared off the coast of Pakistan following the tragic earthquake there last week. The consensus of scientific opinion is that, before long, this island will disappear without trace. In the meantime it is an interesting curiosity, attracting quite a gaggle of geologists and geographers. I wonder if that is how INVOLVE was … Continue reading Notes from a ‘small island’ in health research…..otherwise known as INVOLVE
Sometimes it is the lot of the blogger to feel like the producer of 'Have I Got News For You.' One's research can taken you to all sorts of places you didn't know existed. Then again it can also turn up some gems. This morning I blogged about the WHO report on medicine priorities and … Continue reading Moorfields research team reports on benefits of public involvement to eye patients and staff