This morning the Nuffield Council on Bioethics published its report: Children and research: ethical issues calling for a change in research culture to enable young people to shape how research is ‘prioritised, designed and reviewed.’ In what amounts to a ‘call to arms’ the report urges funders, clinicians, researchers and ethicists to work together and, … Continue reading We must maintain our national impetus and leadership on involving young people in research – comment on new report from @Nuffbioethics
Medicines for children research network
NICE makes bold intervention on clinical trials and children
It is great to see our drugs watchdog, the National Institute for Health and Care Excellence (NICE), make such a bold statement today that all children and young people with cancer should be given the opportunity to take part in clinical trials and research. The statement, which is one of seven making up NICE's 'Quality … Continue reading NICE makes bold intervention on clinical trials and children
It’s out! Report of GenR young people in health research event presented to CMO
Yesterday I joined colleagues from the Medicines for Children Research Network (MCRN) to present the report of the Generation R event last year, to the Chief Medical Officer (CMO), Professor Dame Sally Davies. For many people Generation R at the Science Museum was the highlight of 2013. It was designed, organised and delivered by young … Continue reading It’s out! Report of GenR young people in health research event presented to CMO
CMO as good as her word on young people’s involvement in research
The Chief Medical Officer, Professor Dame Sally Davies, published her annual report today. Actually, it's two reports. The first is the usual state of the nation summary of the population's coughs and splutters. The second, uniquely this year, looks in depth at the worrying lack of attention we have paid to young people's health. It's … Continue reading CMO as good as her word on young people’s involvement in research
Generation R event: young people in research storm the barricades of science
What was it that the author, William Golding, said when asked if he went to church? 'No I don't, and I don't think God does either.' I feel the same about medical research conferences. They often seem to be places where people go to worship the science rather than what it can do for people. … Continue reading Generation R event: young people in research storm the barricades of science
Survey: Have your say in the #red4research debate: vote now!
So, earlier this week, I wrote a very brief blog about a visit to Nottingham where I met some of the staff from the Medicines for Children Research Network (MCRN) in the East. They have recently adopted a new ‘red for research’ uniform that all staff have to wear in clinical settings. You can read … Continue reading Survey: Have your say in the #red4research debate: vote now!
Turning ‘red for research:’ staff show their true colours
This deserves a wider audience. During my visit to Nottingham yesterday I met some of the staff from the Medicines for Children Research Network (MCRN) in the East. They have recently adopted a new 'red for research' uniform that all staff have to wear in clinical areas. You can read more about it in their … Continue reading Turning ‘red for research:’ staff show their true colours
Royal College looks to boost child health research with children’s charter
I am prone to beating up our Royal Colleges for one reason or another. But, over the last few years, I have grown to admire and respect the work of one of their number in particular - the Royal College of Paediatrics and Child Health (RCPCH). Yesterday, RCPCH launched a new report entitled 'Turning the Tide: … Continue reading Royal College looks to boost child health research with children’s charter
Research is for life: making research part and parcel of the patient journey
I was very privileged to be asked to give the Furlong Christmas Lecture a few weeks ago. I hope this doesn't seem egotistical but here's the text of that lecture amended with useful links etc - it touches on and rehearses themes that will be familiar to those of you who have visited the blog … Continue reading Research is for life: making research part and parcel of the patient journey
Why Georgia is an example to us all on clinical trials
This is a piece I spotted in the local press in Wirral about schoolgirl, Georgia Semple, who is a member of the Young People's Advisory Group for the NIHR Medicines for Children Research Network (MCRN). The Group helps with the design of clinical research - from conveying their views and concerns to researchers, to writing … Continue reading Why Georgia is an example to us all on clinical trials
Simon Denegri's Lay Review 