CMO as good as her word on young people’s involvement in research

The Chief Medical Officer, Professor Dame Sally Davies, published her annual report today. Actually, it's two reports. The first is the usual state of the nation summary of the population's coughs and splutters. The second, uniquely this year, looks in depth at the worrying lack of attention we have paid to young people's health. It's... Continue Reading →

Do I detect a slight fumble of the ball in today’s Commons Select Committee report on clinical trials?

Not for the first time I was awake at 3am this morning. Cup of tea in hand, watching American football.  It's amazing how those players keep the ball when so many other players are piling on top of them.  Rarely do you see the thing break free.  They must practice for hours.... The House of Commons... Continue Reading →

It’s NIHR Friday: NHS Trust research activity stats published

You didn't think I'd forget NIHR Friday did you? So the National Institute for Health Research Clinical Research Networks Co-ordinating Centre (NIHR CRN CC), together with The Guardian online, has this week published its annual performance tables for research activity in each NHS Trust in England for 2012/13. You can find the figures for your local... Continue Reading →

1-HELP-CUREIT

It was so humid when I stepped onto the sidewalk it felt like I was treading water. A threat of storms hung in the air, battleship colour clouds steaming slowly across the horizon. Far from here but menacing nonetheless.  An occasional spot of rain found its way on to the floor; a steady hum of a/c... Continue Reading →

Now this is good, very good. The Cystic Fibrosis Trust has a transparent new research strategy

The Cystic Fibrosis (CF) Trust launched its new five-year research strategy in London yesterday.  I have to say I am highly impressed.  In terms of content and dissemination they seem to have single-handedly shown the rest of the medical research charity sector how to embrace the future as a funder and a patient group. Why is it... Continue Reading →

New websites launched for people looking to join a clinical trial; but will patients want a ‘coming together’ at some point?

This week, patients got a couple more options for finding out about clinical trials they can take part in. Patientslikeme (which was launched in the United States a few years ago) has unveiled its new new clinical trials site which you can find here.   Patientslikeme is capturing a lot of attention here in the UK... Continue Reading →

INVOLVE steps forward to change behaviours on plain English summaries of health research

I make no apology for being a little bit obsessed by plain English summaries of research this week.  Events have conspired to make it this way. So, what did NIHR do when faced late last year with rising concern among academics, researchers, patients and the public about the poor quality of lay summaries?  It commissioned... Continue Reading →

OECD wades into clinical trials debate, but statement on public involvement goes awol

The Organisation for Economic Co-operation and Development (OECD) yesterday waded into the increasingly feverish debate about the regulation of clinical trials with a strongly worded recommendation calling on its members to harmonise approval processes.  The recommendation which is worded with the minimum of fuss, is backed by a more detailed explanatory memorandum. But I am... Continue Reading →

Patient View Report: Pharma industry’s lack of transparency harming reputation with patients

Earlier this week Patient View published the results of its annual tracker of the pharmaceutical industry's reputation among patient groups. The latest study surveyed 600 patient groups (72% of them from Europe). As well as asking patient groups to rank 29 pharmaceutical companies by various indices (such as whether their practices were patient-centred) - Lundbeck... Continue Reading →

Patients need apply – European Medicines Agency (EMA) next steps on clinical trial data

The European Medicines Agency (EMA) has published the note of the conference held in London a few weeks ago, about its plans for proactive publication of clinical trial data. It is now setting up five advisory groups and inviting self-nominations from people to join these.  You will find the following listing of the advisory groups, plus... Continue Reading →

Current Controlled Trials (CCT) appoints new advisory board

Current Controlled Trials (CCT), which aims 'to increase the availability, and promote the exchange, of information about ongoing randomised controlled trials worldwide,' has appointed a new advisory board to help it in its work.  Other than yours truly, the Board includes Ben Goldacre and Paul Wicks (PatientsLikeMe) among its members, and is drawing on international... Continue Reading →

Australia launches new clinical trials website for consumers and it’s not as good as the UK’s (UKCTG)

We do beat ourselves up on a regular basis in this country.  Sometimes appropriately.  But often the punches fly a little too freely. Australia have launched a new clinical trials website today to boost patient recruitment.  It has strengths.  But it is not as good as our own UK Clinical Trials Gateway (UKCTG).  For one... Continue Reading →

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