Fighting is for fundraisers I won’t be the first or the last person to remark on the misappropriation of fighting talk when discussing ill-health. We don’t ‘fight’ cancer, dementia, the aftermath of a stroke or mental I’ll-health. No, what we actually do is fight all the things around it. We fight to get to see… Read More ‘Risk is in the eye of the beholder’ and other patient stories not to be swatted
I was digging about in my garage the other day and found an old snow globe. I am afraid I have always found these ornaments – the mainstay of souvenir shops across the world – something of a disappointment. Give them a good shake and there’s a briefly pleasing fall of artificial snow before it… Read More Any notions that power shifted massively to patients in 2016 are a fantasy worthy of a snow globe, take it personally from me
To the tune of….it just about works with some sherry or a shot of caffeine… On the twelfth day of Christmas my true love sent to me: More health research All research published Easy public access Patient insight valued Patient need prioritised Patient outcomes measured Training and help given A BOLD PPI strategy…….. Don’t forget… Read More The Twelve Days of Christmas….public involvement in research style #HaPPIChristmas
If you are anywhere near a radio or television today then it is likely you will hear about the new UK Dementia Research Institute which is being created to step up the fight against dementia. The £250M Institute – a partnership between the Medical Research Council (MRC), Alzheimer’s Society and Alzheimer’s Research UK – will… Read More Behind the headlines: New Dementia Research Institute involves people with dementia and carers from the start
Let’s hear it for the House of Commons Science and Technology Select Committee. In fact I take back all the things I was thinking a few weeks ago (probably unfairly) about it being ponderous, having too many on-going inquiries (16 at the moment I think) and only ever hearing from the great and the good. The Committee… Read More Science Select Committee looks to public to set its agenda #MyScienceInquiry
Pinch, punch, first day of the month. What better day to celebrate some ‘firsts’ that we have seen in public involvement and engagement this week? To begin with, the excellent ‘Patients First’ conference on Monday hosted by the Association of Medical Research Charities (AMRC) and the Association of the British Pharmaceutical Industry (ABPI). It’s the… Read More PPI-nch, punch, 1st day….science has pulled a £2bn rabbit out of the hat. Now it must involve its citizens to spend it where it’s needed.
I had a dream this week about Sherry Arnstein’s ‘Ladder of Citizen Participation.’ As you do. Her ladder stood in a puddle of salty tears. It’s top disappeared into the clouds. Like the ladder in ‘Reach for the Sky.’ I had reached the rung labelled ‘Consultation.’ For weeks I had been waiting there, with no… Read More Today would be a good day to walk under Arnstein’s ladder of citizen participation.