It’s all over the media today…… Only about one third of the British public say they trust the evidence derived from medical research. Confronted with media hype, claim versus counter-claim, a paucity of good quality accessible information and time-short GPs, and with few reliable tools to help them, patients are struggling to make sense of… Read More A good dose of public insight is needed to help the medicine go down – new @acmedsci report! #evidence
Few people can have been unmoved by the terrible events at Grenfell Tower in west London. The images and stories that have emerged since Wednesday morning have been truly shocking. There have been heartening tales of incredible heroism and acts of kindness, of a community pulling together in the face of disaster. As we have… Read More When community and public involvement can be a matter of life and death #GrenfellTower
Last week a story caught my eye about how patients with metastatic cancer using a web-based reporitng tool had experienced longer survival rates and other health benefits. The results were reported to the American Society of Clinical Oncology (ASCO 2017) Annual Meeting in Chicago and received a fair bit of attention in the specialist… Read More Can you cut through the static? Enter the #NIHRgetdigital competition and show others how it’s done.
PPI-inch PPI-unch, first day of the month! Get your public involvement in early …… Doctors call it the ‘doorknob syndrome.’ That moment when a patient, as they leave the consultation room, opens up about the most worrying symptom or issue that is really behind their visit. I am sure I have done this on more… Read More PPI-inch punch, first day of the month
It’s a big week in research. To mark International Clinical Trials Day on Saturday 20th May, the National Institute for Health Research (NIHR) is promoting its ‘I Am Research’ (#iamresearch) national campaign to raise awareness of the part played by patients, carers and the public in making research happen. From today until well into… Read More Patients are part of the crew in health research not passengers. This week you can support them by getting behind the #iamresearch @OfficialNIHR #ICTD campaign
‘I’m sorry Simon,’ wrote a colleague in a group email in the friendliest of ways, ‘but you are not a patient advocate.’ Well, that was 25 years of my life well-spent then, I said to myself. I knew what they meant though. That the NIHR badge I wear, my role, goes before any lived experience… Read More I really must apologise for being a PPI professional. No, really I must it seems.
We have all become obsessed with strategies and plans of one sort or another don’t you think? Thinking them, making them, writing them, hiding behind them. And no sooner than a strategy is in place than some bright spark (like a bloody National Director) suggests a strategic review or the like? A review of nothing… Read More How to give your public involvement in research a Spring clean? And the value of ‘stuff.’