Wonderful new book for children with relatives in intensive care @ICUsteps Please RT.

I know from personal experience that visiting a relative in an Intensive Care Unit (ICU) can be harrowing. For children and young adults it must be particularly bewildering and frightening.  But I am pleased to say that help is at hand. ICUsteps is great charity run by ex-patients, relatives and health professionals to support people… Read More Wonderful new book for children with relatives in intensive care @ICUsteps Please RT.

An Open Letter to Mark Zuckerberg and Priscilla Chan about medical research @GenrYPAGs @facebook

Dear Mark and Priscilla, I am so pleased you want to support global efforts to eradicate disease. The $3 billion funding over the next decade that you announced yesterday will make a huge difference. I sincerely hope that, in pursuing your bold ambitions, you will look to use Facebook’s energy and expertise to help us… Read More An Open Letter to Mark Zuckerberg and Priscilla Chan about medical research @GenrYPAGs @facebook

We are in danger of enslaving patients to the system.

What is happening to us? Really, what is happening to us? Last week I chaired a meeting like any other in an institution like many others. The heads of patient experience/engagement/involvement (take your pick and delete as necessary) at a number of health organisations were there to talk about their approach to the aforementioned. All… Read More We are in danger of enslaving patients to the system.

It’s time to talk about ‘cutting edge’ public involvement and engagement in the same breath as world-class health research #NHSResearch

Yesterday the National Institute for Health Research (NIHR) announced more than £800 million funding for 20 Biomedical Research Centres. These will conduct ‘cutting edge research’ – everything from cancer and dementia to the rarest of diseases. It is brilliant news for patients and the future health of the nation. Each of the applications from the… Read More It’s time to talk about ‘cutting edge’ public involvement and engagement in the same breath as world-class health research #NHSResearch

‘Ed Talk: Patients as Co-authors of Care #PPFEd16 @RCPEdin

Here’s the text of my lecture today at the Royal College of Physicians of Edinburgh Past, Present and Future of Medicine Conference. Great to share the stage with writer and broadcaster Sally Magnusson. Please check out her charity ‘Playlist for Life.’ Plus her book – ‘Where Memories Go: Why Dementia Changes Everything’ which I have… Read More ‘Ed Talk: Patients as Co-authors of Care #PPFEd16 @RCPEdin

While scientists argue it out on ‘statins island’ what are the public meant to do? #statins

Battling scientists, warring doctors, sparring academic journals – what are we to make of the statins debate? It is on days like this, in an age when every aspect of public life is under ever intense scrutiny, that science can appear as if it exists on an island all its own. Whatever The Lancet’s intentions behind its… Read More While scientists argue it out on ‘statins island’ what are the public meant to do? #statins