More often than not, public involvement in research is poorly reported when it comes to the results of studies being written-up in academic papers. That means we – the public, researchers, clinicians and all others involved in doing research – are missing out on the cumulative knowledge and experience of others on ‘why,’ ‘how’… Read More Getting a GRIPP2 on public involvement reporting in research papers
I feel like I should presage this with some sort of Mark Twain statement that ‘rumours of my death have been greatly exaggerated.’ For, yes, although I am standing down as Chair of INVOLVE this year, I am continuing as the NIHR National Director for Patients and the Public. Plenty of time to go before… Read More Could you be the new Chair of INVOLVE? Apply Within! (PS: It’s the greatest role ever)
How many of you have arrived at a meeting, gasping for a cup of tea, and been presented with a scene not unlike the one in the photo below? An array of coffee pots. All looking the same. But each holding something different. Coffee, decaffeinated coffee, hot water, tea (possibly). That’s before we even get… Read More Stop Press: Wake up and smell the coffee – consultation launched on UK-wide draft standards for public involvement in research @OfficialNIHR @ResearchWales @publichealthni CSOScotland @NIHRINVOLVE
It’s all over the media today…… Only about one third of the British public say they trust the evidence derived from medical research. Confronted with media hype, claim versus counter-claim, a paucity of good quality accessible information and time-short GPs, and with few reliable tools to help them, patients are struggling to make sense of… Read More A good dose of public insight is needed to help the medicine go down – new @acmedsci report! #evidence
Few people can have been unmoved by the terrible events at Grenfell Tower in west London. The images and stories that have emerged since Wednesday morning have been truly shocking. There have been heartening tales of incredible heroism and acts of kindness, of a community pulling together in the face of disaster. As we have… Read More When community and public involvement can be a matter of life and death #GrenfellTower
Last week a story caught my eye about how patients with metastatic cancer using a web-based reporitng tool had experienced longer survival rates and other health benefits. The results were reported to the American Society of Clinical Oncology (ASCO 2017) Annual Meeting in Chicago and received a fair bit of attention in the specialist… Read More Can you cut through the static? Enter the #NIHRgetdigital competition and show others how it’s done.
PPI-inch PPI-unch, first day of the month! Get your public involvement in early …… Doctors call it the ‘doorknob syndrome.’ That moment when a patient, as they leave the consultation room, opens up about the most worrying symptom or issue that is really behind their visit. I am sure I have done this on more… Read More PPI-inch punch, first day of the month