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Tag: public engagement

Blog: Consent, consent, consent…….new public dialogue report from @HRA_Latest

Today's rare foray onto the UK political scene by Tony Blair reminded me of a simpler time when politicians just used to repeat the same word three times for added emphasis.  Or was it the daleks who used to do that?  Funny how nightmares and the stuff of dreams can sometimes get confused in this way. Should either … Continue reading Blog: Consent, consent, consent…….new public dialogue report from @HRA_Latest →

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simondenegri clinical research, consent, consent in medical research, HRA Leave a comment July 22, 2015 3 Minutes

‘Hungry’ at the Edinburgh Science Festival? Y-Touring have got just the thing for you.

The Edinburgh Science Festival is fast approaching (5th - 20th April in fact). It is some time since I have been but well worth it every time I have gone (whether as speaker or visitor).  A perfect way to spend some of your Easter holiday in fact. So let me plug - mercilessly and without … Continue reading ‘Hungry’ at the Edinburgh Science Festival? Y-Touring have got just the thing for you. →

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simondenegri Edinburgh International Science Festival, Y-Touring Leave a comment March 26, 2014 1 Minute

@SDenegri presentations about the public and health research from Leicester, HSRN and Leeds

I'm always very chuffed when people ask for a copy of my presentations after a talk.  Usually I am quite good at emailing them to people or asking the organisers to send them round. Anyway, I have done a lot of meetings lately and thought I would post here copies of my slides from the … Continue reading @SDenegri presentations about the public and health research from Leicester, HSRN and Leeds →

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simondenegri health, health research regulation, medical research, public engagement, public involvement, public understanding of science Leave a comment June 27, 2013June 27, 2013 1 Minute

The long and cohort of it: missing public engagement opps from birth

Longitudinal studies (in other words, research that follows a population group over a long period of time) would seem to naturally lend themselves to public engagement and the building of strong relationships with the population concerned.  The number of these studies being conducted is increasing as is the amount of investment in them, so they … Continue reading The long and cohort of it: missing public engagement opps from birth →

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simondenegri public involvement Leave a comment April 22, 2013 1 Minute

Registration opens for Engage 2012: Responding to Change

Don't be put off by the fact that I'm speaking at one of these - my fellow speakers are great! The National Coordinating Centre for Public Engagement has launched registration for a series of specialist workshops targeted at organisations, professionals and members of the public who are passionate about public engagement. These workshops will take … Continue reading Registration opens for Engage 2012: Responding to Change →

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simondenegri National Co-ordinating Centre for Public Engagement, patient and public involvement Leave a comment October 19, 2012 1 Minute

A few bytes and bobs of news about medical records, open data etc – the Danish are not just good at making drama

Data and its use for society's benefit is one of the areas where we are now seeing rapid developments in both practice and policy.  And not just in terms of health care or medical research. I thought I'd link-up a few of the announcements and news items that have happened just this past week to give people … Continue reading A few bytes and bobs of news about medical records, open data etc – the Danish are not just good at making drama →

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simondenegri medical research Leave a comment March 30, 2012April 5, 2012 2 Minutes

Two articles worthy of a repeat airing….on ‘The Rise of the Patient Leader’ and the need for a ‘Patient Experience Framework.’

This article (entitled 'The Rise of the Patient Leader') written by David Gilbert at InHealth Associates appeared in HSJ earlier this year.  I didn't send round a link at the time because of HSJ's paywall.  But now you can find it on InHealth Associates' website free of charge...which seems a very good excuse to send it round and … Continue reading Two articles worthy of a repeat airing….on ‘The Rise of the Patient Leader’ and the need for a ‘Patient Experience Framework.’ →

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simondenegri medical research Leave a comment March 15, 2012 1 Minute

Research impact: One small tweak for HEFCE, one important nod to public involvement

The Higher Education Funding Council for England (HEFCE) yesterday issued the final criteria and working methods for its Research Excellence Framework (REF) assessment exercise. The research press is still full of various academic voices continuing to rant against the whole issue of HEFCE assessing 'research impact' for the first time.  Seems to be a waste … Continue reading Research impact: One small tweak for HEFCE, one important nod to public involvement →

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simondenegri medical research Leave a comment January 31, 2012 1 Minute

Who would come top in your league table of public engagement in science? And who would you relegate?

They say in football that the league table never lies. Fans and players may begrudge a decision or two, or feel that luck did not go their way in a match. But even the most ardent supporter will accept their team's league position after than final game as a true reflection of how good they … Continue reading Who would come top in your league table of public engagement in science? And who would you relegate? →

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simondenegri medical research Leave a comment November 7, 2011November 8, 2011 3 Minutes

Technology pulll-through in research and the role of the public

Next week I shall be taking part in my first meeting as a lay member of NIHR's 'Invention 4 Innovation' programme. I have had a number of conversations with people recently about how patients are and should be involved in the field of what is jargonistically called 'technology pull' - getting new technologies into health … Continue reading Technology pulll-through in research and the role of the public →

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simondenegri medical research Leave a comment November 2, 2011 2 Minutes

Whatever happened to Science and Society? Why UK science could do with a chief listening officer.

Just occasionally the Department for Business Innovation and Skills, Science and Society website pages show a flicker of light like a far-off dieing star. This evening I returned from the TalkScience event at the British Library and noticed that an update from the 'Science for All' advisory group set up many moons ago, had been … Continue reading Whatever happened to Science and Society? Why UK science could do with a chief listening officer. →

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simondenegri medical research, Science and Society, social media Leave a comment October 18, 2011October 18, 2011 2 Minutes

Obama the inventor..and RCUK’s call on public engagement

Saw this on the Research!Amercia blog today and thought it was worth posting. It is a summary (taken from Lillyblog) of the Invent Act that President Obama signed into US law yesterday . There is more than a hint of some recent-ish UK initiatives such as the Office of Life Sciences blueprint in the US … Continue reading Obama the inventor..and RCUK’s call on public engagement →

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simondenegri medical research Leave a comment September 17, 2011 1 Minute

Science should take heed of the need to make the public its partners if it wishes to avoid calls for its liberation

At the end of last month the Canadian Government announced that it would be going ahead with clinical trials of a controversial new treatment for MS sufferers called 'liberation therapy.' The decision has gone almost unreported outside Canadian shores and yet for those interested in the relationship between science and its public it is a … Continue reading Science should take heed of the need to make the public its partners if it wishes to avoid calls for its liberation →

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simondenegri Canada, Canadian Institutes of Health Research, CIHR, clinical trials, public engagement, public involvement Leave a comment July 24, 2011 3 Minutes

Public attitudes to science survey 2011

Welcome back to those of you who left the rest of us to run the country for two weeks.  I must say that I spent the Bank Holiday weekend in a verily good mood having had a quick peek at the results of our annual member survey.  This showed that 98% of our members say … Continue reading Public attitudes to science survey 2011 →

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simondenegri a single research regulator, blogging, Eurobarometer, Health and Social Care Bill, INVOLVE, NHS, NIHR, patient and public involvement, Public attitudes to science survey 2011, Science and Society, science blogs, stem cell research, The Wellcome Trust, Uncategorized 4 Comments May 3, 2011 3 Minutes

Looking for a bit of drama in your life?

Probably not, I know, particularly if you are Andrew Lansley I suspect.   But this is good drama and good for your health.  I am delighted that AMRC is going to be part of the following, exciting initiative in public engagement.  Read on for the news release (apologies, I know that is a bit lazy of me) … Continue reading Looking for a bit of drama in your life? →

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simondenegri public engagement, The Wellcome Trust, Y-Touring Leave a comment January 18, 2011 3 Minutes

It's time to seek out the real citizens in science

Alice Bell has written a good piece today with her reflections on this week's Science and Citizenship conference.  Its worth a read and has certainly given me something to ponder over the Christmas holidays. Alice finishes her piece by saying that the public engagement 'industry' - if I can call it that - needs to take a … Continue reading It's time to seek out the real citizens in science →

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simondenegri public engagement Leave a comment December 23, 2010 1 Minute

Dressing down the naysayers on public engagement

I have been rather disappointed not to have bumped into a bear or monkey on the tube today.  But there is still time.  Who knows what I shall do if I happen to bump into a panda.  Will it be a real panda fleeing Chinese scientists?  Or a Chinese scientist tracking down an errant panda? I'll let you … Continue reading Dressing down the naysayers on public engagement →

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simondenegri Uncategorized Leave a comment December 8, 2010 2 Minutes
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Thanks for visiting my blog. I am the Executive Director at the Academy of Medical Sciences. NIHR National Director for Patients, Carers and the Public based at UCL. I was the NIHR National Director for Patients, Carers and the Public and Chair of INVOLVE from 2012 to 2019 and, before that, was the CEO of AMRC. I was awarded the OBE in the Queens Birthday Honours list in 2018. You can find out more about me on my bio available from the menu. The views expressed on this blog are my own.

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