A lab-based environment should be no barrier to public involvement in research #userinvolvment

I am often asked whether it is difficult - if not impossible - to involve the public in laboratory based research where researchers have limited or no direct contact with patients and the public. My answer is that it might be difficult but it can be done. And the benefits can be significant.  The real challenges... Continue Reading →

Sign-up to help step-up research into dementia: new service enables people to volunteer for research studies #joindementiaresearch @beatdementia

Of all the dementia initiatives announced by the Prime Minister, David Cameron, this weekend it may prove the pivotal one.  It may not grab headlines in the same way as £ commitments to research or new institutes (although it is doing pretty well). But, without it, this expenditure will be worthless. For other patient populations it... Continue Reading →

Lessons I learnt from the Alzheimer’s Society story of public involvement in research

The Alzheimer's Society has published a new booklet entitled '15 years of the Research Network.' http://www.alzheimers.org.uk/site/scripts/download_info.php?fileID=2261 It looks at the work of their Research Network of 250 people with dementia and carers in shaping and advancing the charity's £5.3M research programme, some of their achievements, and a short history of how it all got started.The... Continue Reading →

World Alzheimer’s Day – from timebomb to tsunami (PLoS an update on patient information and placebos)

Expect lots of news pieces this week about Alzheimer's disease ahead of World Alzheimer's Day (WAD) which takes place on Friday 21st September.  This is one of the better ones I have seen, from the Observer yesterday.  Interesting how the language has changed although the message has not - what was once called a timebomb... Continue Reading →

Blog at WordPress.com.

Up ↑

%d bloggers like this: