Blog news: Life sciences giants join forces to promote young people’s involvement in health research

Some of the leading life sciences organisations in the UK have joined forces to issue a ‘statement of aspiration’ about the involvement of young people in research saying: ‘Collaboration between young people and commercial researchers should become an established and normal way of working. Learning from this collaboration should be actively translated wherever possible to… Read More Blog news: Life sciences giants join forces to promote young people’s involvement in health research

From ‘spacewalking’ patients to Bowie, the literature on public involvement in research reached new Peakes this week

It’s one of the hardest things they will have to do.  It is physically and mentally draining.  For many it will feel a lonely place.  The atmosphere will be unlike anything they have ever experienced before. Some will feel as if they are in a state of suspended animation. Others will feel as if they have leapt off a cliff… Read More From ‘spacewalking’ patients to Bowie, the literature on public involvement in research reached new Peakes this week

‘How many patients does it take to change a lightbulb?’ Time to get serious about learning and development in public involvement

Question: How many patients does it take to change a lightbulb? Answer: No one knows, they are so rarely asked. The irritating thing is that even when patients are asked to change a lightbulb, they are not given the help and support to do it effectively. It’s a bit like asking someone to change one… Read More ‘How many patients does it take to change a lightbulb?’ Time to get serious about learning and development in public involvement

Cystic Fibrosis Gene Therapy Trial testament to the cf community as a positive, patient and persistent partner in research

I hope you will have seen or heard the news today of the positive results of a gene therapy trial for people with cystic fibrosis. And this is how The Guardian is reporting it. Although it is early days and the improvement shown in patients only a modest one, it is nonetheless a very hopeful… Read More Cystic Fibrosis Gene Therapy Trial testament to the cf community as a positive, patient and persistent partner in research