White, middle-class and well-connected - and that's just the patients: is this the health research culture we wish to see in the UK? Ever since it was established in 2011, the Health Research Authority (HRA) - the UK regulator of health research whose mission is 'to protect and promote the public interest' - has commissioned … Continue reading New @HRA_Latest @OfficialNIHR data on UK public attitudes to health research highlights need to work with under-represented groups to break down barriers #diversity
National Institute for Health Research
Stop Press: Wake up and smell the coffee – consultation launched on UK-wide draft standards for public involvement in research @OfficialNIHR @ResearchWales @publichealthni CSOScotland @NIHRINVOLVE
How many of you have arrived at a meeting, gasping for a cup of tea, and been presented with a scene not unlike the one in the photo below? An array of coffee pots. All looking the same. But each holding something different. Coffee, decaffeinated coffee, hot water, tea (possibly). That's before we even get … Continue reading Stop Press: Wake up and smell the coffee – consultation launched on UK-wide draft standards for public involvement in research @OfficialNIHR @ResearchWales @publichealthni CSOScotland @NIHRINVOLVE
Patients are part of the crew in health research not passengers. This week you can support them by getting behind the #iamresearch @OfficialNIHR #ICTD campaign
It's a big week in research. To mark International Clinical Trials Day on Saturday 20th May, the National Institute for Health Research (NIHR) is promoting its 'I Am Research' (#iamresearch) national campaign to raise awareness of the part played by patients, carers and the public in making research happen. From today until well into … Continue reading Patients are part of the crew in health research not passengers. This week you can support them by getting behind the #iamresearch @OfficialNIHR #ICTD campaign
Lancet study puts NIHR top of the intl league table for health research in the public interest inc. public involvement @TheLancet
Yesterday the Lancet published a study by Mona Nasser, Mike Clarke, Iain Chalmers and others looking at how well eleven international research founders are doing to reduce waste in research. This follows a series of articles by Chalmers et al over the last couple of years on the same issue. The study scored funders using … Continue reading Lancet study puts NIHR top of the intl league table for health research in the public interest inc. public involvement @TheLancet
Flying the ‘standards’ for public involvement in health research: new initiative launched. Sign up here. @OfficialNIHR @NIHRINVOLVE @ResearchWales #ppistandards
The National Institute for Health Research (NIHR) together with its Welsh equivalent, Health and Care Research Wales, have joined forces to launch a project to develop standards for public involvement in research. The Public Involvement Standards Development Partnership has a website which went live today where you can learn more and sign up to be … Continue reading Flying the ‘standards’ for public involvement in health research: new initiative launched. Sign up here. @OfficialNIHR @NIHRINVOLVE @ResearchWales #ppistandards
Blog news: Life sciences giants join forces to promote young people’s involvement in health research
Some of the leading life sciences organisations in the UK have joined forces to issue a 'statement of aspiration' about the involvement of young people in research saying: 'Collaboration between young people and commercial researchers should become an established and normal way of working. Learning from this collaboration should be actively translated wherever possible to … Continue reading Blog news: Life sciences giants join forces to promote young people’s involvement in health research
‘Stand up if you love clinical research’ on Intl Clinical Trials Day, 20 May #NIHRoktoask #NHSresearch
My tickets for the FA Cup Final arrived in the post yesterday. I am very excited indeed. I have a feeling that my team will bring the trophy home to south London where it belongs. It is that time of year when football fans are living on their nerves as their team battles to win … Continue reading ‘Stand up if you love clinical research’ on Intl Clinical Trials Day, 20 May #NIHRoktoask #NHSresearch
NIHR revamps another route for patients, carers and the public to submit their ideas for research
Making sure that research funded by the NIHR, charities and industry reflects the needs and priorities of patients, carers and the public is one of the most important agendas in public involvement. It has been a focus for much activity over the years with the outstanding James Lind Alliance (JLA) Priority Setting Partnerships (PSPs) being the … Continue reading NIHR revamps another route for patients, carers and the public to submit their ideas for research
What next in identifying patient priorities for health research? #JLAevaluation
I spent yesterday morning at an excellent event looking at the James Lind Alliance Priority Setting Partnerships (JLA PSPs for short!). #JLAevaluation Started in 2004, JLA PSPs have become a recognised and highly respected method for identifying shared priorities in health research among patients, carers and clinicians. That they have is a testament to its founders but also the excellent JLA … Continue reading What next in identifying patient priorities for health research? #JLAevaluation
Is it time to give patients the opportunity to self-refer themselves to take part in NHS research?
Harpal Kumar, the Chief Executive of Cancer Research UK, yesterday posted a blog about the new task force he is leading for NHS England on cancer diagnosis. The aim of the task force is to enable people to get an earlier and speedier diagnosis of their tumour in the future. But it will also be looking at treatment and … Continue reading Is it time to give patients the opportunity to self-refer themselves to take part in NHS research?
NIHR and NAPP announce new award for research engagement in primary care
This morning I was the guest of the National Association for Patient Participation (NAPP) whose annual conference entitled 'Quality in Primary Care' is taking place in Leeds today. It marks the end of their annual awareness week. NAPP's members are made up of several thousand Patient Participation Groups (PPGs) in GP practices up and down … Continue reading NIHR and NAPP announce new award for research engagement in primary care
NIHR looks to go PROACTIVE with plan for research participation and engagement
Why shouldn't you and I be able to take part in appropriate and relevant research as part of our NHS care and treatment? Why shouldn't we be able to expect to have that discussion with our doctor as part of our diagnosis and care? Why shouldn't we be able to access research evidence so we … Continue reading NIHR looks to go PROACTIVE with plan for research participation and engagement
NIHR makes plain English summaries a requirement of funding via @NIHRINVOLVE
Plain and simply good news from a citizen point of view. With thanks to INVOLVE and NIHR colleagues for making this happen, Plain English summaries in National Institute for Health Research (NIHR) funded research. The National Institute for Health Research (NIHR) is committed to making sure that each research study it funds has a clear … Continue reading NIHR makes plain English summaries a requirement of funding via @NIHRINVOLVE
NIHR Friday: BioResource launch has volunteers at its heart
Delighted to see today's announcement by the National Institute for Health Research (NIHR) of the new NIHR BioResource. The importance of the new BioResource (the main website for the BioResource is here) is underlined by the fact that not one Minister but both the Secretary of State for Health, Minister for Health plus the Chief Medical Officer, Professor … Continue reading NIHR Friday: BioResource launch has volunteers at its heart
Big data, big stage, cue patients as the leading actor. Remarks at #bigdata2013 on the patient agenda
The following is a more polished and slightly amended version [the bits in brackets I didn't say] of the remarks I made at the ABPI/NIHR conference about big data which took place in London yesterday. The title of the conference was: '360 of Health Data - Harnessing big data for better health.' I had written … Continue reading Big data, big stage, cue patients as the leading actor. Remarks at #bigdata2013 on the patient agenda
NIHR gives ‘chapter one and verse’ on patients and the public in research: 2012/13 annual report published
Forgive me. For once, I write with a semi-official hat on. But this afternoon feels like a bit of a milestone moment in lifting public involvement in research ever higher on people's agendas. If you have heard me speak in public then you will know I start by saying how proud I am that the … Continue reading NIHR gives ‘chapter one and verse’ on patients and the public in research: 2012/13 annual report published
@RBandH Guest blog: Promoting Clinical Research Locally – From ‘OK to Ask’ to Research Changed my Life
Promoting Clinical Research Activities and Opportunities Locally – From OK to Ask to Research Changed my Life Mark Terry, Research Office, Royal Brompton & Harefield NHS Foundation Trust (m.terry@rbht.nhs.uk) 2013 has been notable for the strong momentum provided by National Institute for Health Research (NIHR) to NHS Trusts in our efforts to raise awareness of … Continue reading @RBandH Guest blog: Promoting Clinical Research Locally – From ‘OK to Ask’ to Research Changed my Life
CMO as good as her word on young people’s involvement in research
The Chief Medical Officer, Professor Dame Sally Davies, published her annual report today. Actually, it's two reports. The first is the usual state of the nation summary of the population's coughs and splutters. The second, uniquely this year, looks in depth at the worrying lack of attention we have paid to young people's health. It's … Continue reading CMO as good as her word on young people’s involvement in research
Exclusive preview! UK clinical research gets its own TV show…..Downtown eat your heart out @NIHRCRN
So here's something to make your crumpet and jam just a bit more palatable on Sunday afternoon...Thanks to NIR CRN. This week Health Sector TV will be broadcasting a programme entitled ‘Clinical Research: Making Patients and the NHS Better.’ The blurb says that this is 'an important new documentary highlighting how the Clinical Research Network (as … Continue reading Exclusive preview! UK clinical research gets its own TV show…..Downtown eat your heart out @NIHRCRN
CLAHRCs could be the superheroes in quality improvement for patients in the UK
Yesterday my day began in Clerkenwell meeting with the new charity, MQ Transforming Mental Health (www.joinMQ.org). It is exciting to feel that we might at last be on the verge of seeing a strong charity profile in mental health research in the UK. But more baffling than ever why our existing mental health charities - … Continue reading CLAHRCs could be the superheroes in quality improvement for patients in the UK
Simon Denegri's Lay Review 