It's a big week in research. To mark International Clinical Trials Day on Saturday 20th May, the National Institute for Health Research (NIHR) is promoting its 'I Am Research' (#iamresearch) national campaign to raise awareness of the part played by patients, carers and the public in making research happen. From today until well into … Continue reading Patients are part of the crew in health research not passengers. This week you can support them by getting behind the #iamresearch @OfficialNIHR #ICTD campaign
You probably don't need to hear another thing about the EU, do you? (By the way what a terrible EU referendum campaign it is - have you ever heard such hyperb******s from our politicians?) But this really is a good thing. Following the passage of the new EU Clinical Trials Regulation, the European Commission has started … Continue reading EU issues draft guidelines on providing clinical trial results so you and I can understand them #clinicaltrials
My tickets for the FA Cup Final arrived in the post yesterday. I am very excited indeed. I have a feeling that my team will bring the trophy home to south London where it belongs. It is that time of year when football fans are living on their nerves as their team battles to win … Continue reading ‘Stand up if you love clinical research’ on Intl Clinical Trials Day, 20 May #NIHRoktoask #NHSresearch
I do not ascribe to the view that you have to be 'scientific literate' as a pre-requisite to taking part in science. In the same way that I do not think you need to be fluent in French before you can enjoy a holiday or set up home there. Nothing beats immersion in the way of … Continue reading Have you joined the new online course revolutionising the way the public can learn about clinical research? @NIHRCRN MOOC
We are the only country which runs a public awareness campaign across our national health system to encourage people to participate in clinical research - NIHR 'OK to ask'. We've been doing it for three years on the trot to coincide with International Clinical Trials Day (ICTD) in May. Now we want your views on how … Continue reading We are looking for feedback on the #NIHRoktoask campaign from patients, researchers, everyone…. Please help and RT.
Happy International Clinical Trials Day (ICTD) 2015 everyone! Today over 100 NHS Trusts will be taking part in NIHR's 'OK to ask' campaign aimed at raising public awareness of clinical research and encouraging patients to take part in clinical studies. There will be displays in hospital receptions and staff canteens, mock trials with chocolate (yummy!), … Continue reading Clinical research takes to the streets for International Clinical Trials Day (ICTD) 2015 #NIHRoktoask #trialsmatter #clinicaltrialsday
Today sees the annual Cancer Patient Experience Survey published. For the third year running it looks at the extent to which people with cancer are being told about the opportunity to take part in research. Also, how many take up that opportunity. National data is published and then statistics are provided by NHS Trust and … Continue reading Cancer research ‘sales’ to patients remain flat
The Health Research Authority (HRA) is to be congratulated on its draft guidance to researchers on providing information to participants at the end of the study. The guidance is open for consultation until the end of this month.It takes a common-sense approach to sharing trial results with study participants. I challenge any researcher not to find … Continue reading Health Research Authority (HRA) draft guidance on sharing trial results with research participants and more!
If I were a Member of Parliament (MP) voting today on the Medical Innovation Bill - otherwise known as the Saatchi Bill - then, at best, I would be abstaining. That sounds like a cop-out but please read on. The Bill is named after its sponsor in Parliament, Lord Maurice Saatchi whose wife died of ovarian … Continue reading Do we really need the Medical Innovation ‘Saatchi’ Bill? I’m unconvinced.
I once wrote an article for a local rag bemoaning the state of the town's railway station. When, two days later, the council announced plans for its complete redevelopment I expressed my shame and guilt to a friend for not having known this. "Simon," he said after a long pause, "it sounds like a simple case … Continue reading UK Clinical Trials Gateway (UKCTG) now shows open trials by location in early Xmas stocking filler for patients
It's going to be a 'big-ish' month in the EU for clinical trials. By most accounts, EU legislators will reach a compromise agreement on the proposed new Clinical Trials Regulation in time for Christmas. The key focus for industry bodies is around making sure the legislation embraces aggressive timelines for the approval of clinical trials. Remind me, isn't … Continue reading Big month in Brussels for clinical trials…but let’s not be hasty
Promoting Clinical Research Activities and Opportunities Locally – From OK to Ask to Research Changed my Life Mark Terry, Research Office, Royal Brompton & Harefield NHS Foundation Trust (firstname.lastname@example.org) 2013 has been notable for the strong momentum provided by National Institute for Health Research (NIHR) to NHS Trusts in our efforts to raise awareness of … Continue reading @RBandH Guest blog: Promoting Clinical Research Locally – From ‘OK to Ask’ to Research Changed my Life
Not for the first time I was awake at 3am this morning. Cup of tea in hand, watching American football. It's amazing how those players keep the ball when so many other players are piling on top of them. Rarely do you see the thing break free. They must practice for hours.... The House of Commons … Continue reading Do I detect a slight fumble of the ball in today’s Commons Select Committee report on clinical trials?
I hope you'll forgive the fact that what follows is the news release but I am part of the team presenting with Jonathan Sheffield at next week's British Science Festival and I really couldn't put it better than this. The 'live trial' is very exciting indeed and the first dip in the water for a … Continue reading Take part in a live trial now as part of NIHR’s visit to the British Science Festival #NIHRCOMETtrial
....despite the temptation. Summer means many things for me. One of them is keeping track of the football transfers. Here's hoping that the Eagles do manage to persuade Ronaldo to South London! The comments that managers make about players never cease to amuse me. One of the most common goes something along the lines of: 'He's … Continue reading Clinician resistance to research may require an arm around the shoulder not a red card
Or should that be silly pharma...I don't know. Yes, our colleagues from pharma have stolen the march on everyone else and got the silly season off to a grand old start. I am referring, of course, to the leaked memo from the European and American pharma trade associations dutifully covered by Ian Semple at The … Continue reading An unleaked memo on sorry pharma and the silly season
I'm always very chuffed when people ask for a copy of my presentations after a talk. Usually I am quite good at emailing them to people or asking the organisers to send them round. Anyway, I have done a lot of meetings lately and thought I would post here copies of my slides from the … Continue reading @SDenegri presentations about the public and health research from Leicester, HSRN and Leeds
'I would like to know what I want to know' - a participant-led approach to giving consent to taking part in clinical research
I was delighted to see this getting considerable airtime on the radio this morning: the launch of the London Lung Cancer Alliance with its aim of recruiting 3000 lung patients into clinical trials per year. Lung cancer is on the rise in the UK and it is a difficult condition for which to raise public awareness and … Continue reading Bold ambition for lung cancer research just what the doctor ordered
The New Zealand Government has launched its own clinical trials portal in the last few hours. You can find it here. This is the speech by the Minister for Health, Tony Ryall. I have not spec'd the portal out but will be interested in the views of those who do have time to check it … Continue reading New Zealand launches clinical trials portal for researchers and the public