Dear Mark and Priscilla, I am so pleased you want to support global efforts to eradicate disease. The $3 billion funding over the next decade that you announced yesterday will make a huge difference. I sincerely hope that, in pursuing your bold ambitions, you will look to use Facebook’s energy and expertise to help us… Read More An Open Letter to Mark Zuckerberg and Priscilla Chan about medical research @GenrYPAGs @facebook
What is happening to us? Really, what is happening to us? Last week I chaired a meeting like any other in an institution like many others. The heads of patient experience/engagement/involvement (take your pick and delete as necessary) at a number of health organisations were there to talk about their approach to the aforementioned. All… Read More We are in danger of enslaving patients to the system.
Yesterday the National Institute for Health Research (NIHR) announced more than £800 million funding for 20 Biomedical Research Centres. These will conduct ‘cutting edge research’ – everything from cancer and dementia to the rarest of diseases. It is brilliant news for patients and the future health of the nation. Each of the applications from the… Read More It’s time to talk about ‘cutting edge’ public involvement and engagement in the same breath as world-class health research #NHSResearch
Here’s the text of my lecture today at the Royal College of Physicians of Edinburgh Past, Present and Future of Medicine Conference. Great to share the stage with writer and broadcaster Sally Magnusson. Please check out her charity ‘Playlist for Life.’ Plus her book – ‘Where Memories Go: Why Dementia Changes Everything’ which I have… Read More ‘Ed Talk: Patients as Co-authors of Care #PPFEd16 @RCPEdin
Battling scientists, warring doctors, sparring academic journals – what are we to make of the statins debate? It is on days like this, in an age when every aspect of public life is under ever intense scrutiny, that science can appear as if it exists on an island all its own. Whatever The Lancet’s intentions behind its… Read More While scientists argue it out on ‘statins island’ what are the public meant to do? #statins
I do try to live up to my Tunbridge Wells postcode by firing off regular ‘disgusted’ letters to the press and, in particular, The Daily Telegraph (DT). On Monday Erik Nordkamp, Pfizer’s Managing Director, wrote this article about the importance of the life sciences industry to a post-Brexit economic strategy. So I sent this to… Read More Patients and the public are vital to science’s role in a post #Brexit Britain. A response to Pfizer’s MD, Erik Nordkamp
I am often asked whether it is difficult – if not impossible – to involve the public in laboratory based research where researchers have limited or no direct contact with patients and the public. My answer is that it might be difficult but it can be done. And the benefits can be significant. The real challenges… Read More A lab-based environment should be no barrier to public involvement in research #userinvolvment