I am often asked whether it is difficult – if not impossible – to involve the public in laboratory based research where researchers have limited or no direct contact with patients and the public. My answer is that it might be difficult but it can be done. And the benefits can be significant. The real challenges… Read More A lab-based environment should be no barrier to public involvement in research #userinvolvment
A head-hunter has written to me this morning – as they have to many others no doubt – asking whether I know of any good ‘research’ candidates to Chair a panel looking at research into patient and family experience. My first thought? To ask why the client thinks it’s vital for someone with research experience… Read More Blog: Being a Chair and why patients are just as good at it #researchgovernance
Ofcom – the UK’s communications regulator – this week published its annual Communications Market Report for 2016. As ever, it’s an absorbing insight into how the British are using their smartphones and the internet. This year we learnt that we are better connected than ever before but that many of us are feeling the need for… Read More Blog: Fascinating insight into differences across the UK in use of internet to find health info via @Ofcom
We can all be heartened by the picture portrayed in Macmillan Cancer’s ‘Cancer: Then and Now’ report published yesterday. The report is a fascinating look at how the life chances of people with cancer have changed over the last 25 years. People on average are now twice as likely to survive at least 10 years after being diagnosed… Read More Cancer report highlights need for more research into quality of life issues @macmillancancer
I wouldn’t pretend to be a cartoonist (as if I need to say that!). But in a week when there has been much talk about the impact of Brexit on UK science, this cartoon sprung to mind. Composed on my early morning walk with the dog. Keep the faith.
You may recall me reviewing ‘People are messy,’ the play about public involvement in health research that has been developed by Theatre of Debate with the support of the Oxford Biomedical Research Centre (BRC). I gave it five stars. As the play has been touring schools, young people have been invited to enter a competition… Read More Young award winners and public involvement film showing announced @OfficialNIHR #Peoplearemessy
A week before the Brexit referendum I had coffee with a friend and colleague. As we debated what the likely result might be, they jokingly remarked: ‘Simon, I’m not sure I like this public involvement business any more.’ How we laughed. We often talk about public involvement as ‘democratising’ a process; a condiment to be… Read More Blog: Life in public involvement in research after Brexit.