There is much post-Brexit talk of using our new-found political independence to liberalise clinical trials in the U.K. We can cut ourselves free of all that terrible EU red-tape that has weighed us down. Or so the argument goes. We can be quicker and more efficient than other countries. We will be more attractive to… Read More The post-Brexit liberalisation of #clinicaltrials could be the way to a bolder ambition for the UK
We learnt today learnt today that a third of hospital trusts have increased their car parking charges in the last year and that the average rise among this group was around 15%. I have had cause to use my hospital a lot over the few months as my Dad is recovering from a stroke. Car… Read More Hospital parking charges and wheelchairs: examples of why ‘customer service’ shouldn’t be a dirty word in the NHS
Be careful. There’s a lot of it about. You might want to avoid crowds. Spend a few days in bed. In the olden days, if you talked about public involvement, researchers and clinicians would look at you as if you had caught a disease? Some with pity in their eyes – ‘you poor misguided soul.’… Read More Is public involvement in health research a disease or a way of life?
One of the things I feel incredibly fortunate about in doing my role is that people send me all sorts of interesting papers, articles, videos and other stuff. I do get round to looking at them all, although it can take me a bit of time. More often than not something will bubble to the surface… Read More A new paper on ‘involving people with intellectual disabilities’ in the STOP #diabetes study holds lessons for us all
I know from personal experience that visiting a relative in an Intensive Care Unit (ICU) can be harrowing. For children and young adults it must be particularly bewildering and frightening. But I am pleased to say that help is at hand. ICUsteps is great charity run by ex-patients, relatives and health professionals to support people… Read More Wonderful new book for children with relatives in intensive care @ICUsteps Please RT.
Dear Mark and Priscilla, I am so pleased you want to support global efforts to eradicate disease. The $3 billion funding over the next decade that you announced yesterday will make a huge difference. I sincerely hope that, in pursuing your bold ambitions, you will look to use Facebook’s energy and expertise to help us… Read More An Open Letter to Mark Zuckerberg and Priscilla Chan about medical research @GenrYPAGs @facebook
What is happening to us? Really, what is happening to us? Last week I chaired a meeting like any other in an institution like many others. The heads of patient experience/engagement/involvement (take your pick and delete as necessary) at a number of health organisations were there to talk about their approach to the aforementioned. All… Read More We are in danger of enslaving patients to the system.