Off to Liverpool today. I am chairing a session at the Pancreas Society's first ever PPI forum. This is the opener to their annual scientific meeting which takes place the rest of the week. Last Friday was another first. I spoke to, and took part in, the inaugural meeting of the MHRA's ( Medicines and … Continue reading Drug safety regulation need not be a jagged edge on which patients catch themselves
London
Genomics England is inviting patients and the public to a town hall event: apply here
Passing this invite on from Sir John Chisholm, Chair of Genomics England, for their event on 3rd Oct. Email address to attend included below along with website address. Hello, I am writing on behalf of Genomics England to invite you to our first Stakeholder Event on Thursday 3rd October 2013. The venue is as follows: … Continue reading Genomics England is inviting patients and the public to a town hall event: apply here
New CLAHRCs announced in local health research boost. Here’s a list and links. #nihrclahrcs
The Department of Health this morning announced the successful NIHR Collaborations for Leadership in Applied Health Research and Care (CLSHRCs). The formal press release can be found here. Thirteen CLAHRCs have been awarded over £120M in total following an open competition earlier this year. The details of the latter can be found here. Further details … Continue reading New CLAHRCs announced in local health research boost. Here’s a list and links. #nihrclahrcs
The UK has a lorra lorra data and this is how it’s handling it in medical research
Last week Dame Fiona Caldicott published her report on information governance in health and social care (Caldicott2). Dame Fiona is characteristically down-to-earth in this Guardian interview about the need to get people used to the idea of sharing data if they are to see further benefits from medical research. You can read the full report here and, … Continue reading The UK has a lorra lorra data and this is how it’s handling it in medical research
Bold ambition for lung cancer research just what the doctor ordered
I was delighted to see this getting considerable airtime on the radio this morning: the launch of the London Lung Cancer Alliance with its aim of recruiting 3000 lung patients into clinical trials per year. Lung cancer is on the rise in the UK and it is a difficult condition for which to raise public awareness and … Continue reading Bold ambition for lung cancer research just what the doctor ordered
It’s NIHR Friday inc. new publications, a competition and NIHR CCF makes the Grade with patients
Yes, it truly does seem as though Friday should be dubbed 'NIHR Friday' given the propensity for my erstwhile colleagues to push info out on the aforementioned day. The clutch of interesting announcements this week include: Publication of the NIHR Annual Report for 2011-2012. You know, I'm sorry if this offends some people but I'm … Continue reading It’s NIHR Friday inc. new publications, a competition and NIHR CCF makes the Grade with patients
I’ll be honest, I’m in two minds about the Royal Institution (RI) issue.
Last week news broke that the Royal Institution (RI) is looking for buyers for its hallowed Albermarle Street headquarters in London as part of a plan to ease its financial woes. These amount to £7million owed to creditors according to various reports. There's plenty of coverage of the affair in the UK media and a campaign … Continue reading I’ll be honest, I’m in two minds about the Royal Institution (RI) issue.
PM’s Global Health Policy Summit Speech signals the personal as well as phenomenal
You can find the full text of the Prime Minister's speech at the Global Health Policy Summit in London today here. David Cameron's remarks have caught the headlines because of his announcement about the new Phenome Centre. But, as important, are a number of other areas of his speech. These deal with the importance of the … Continue reading PM’s Global Health Policy Summit Speech signals the personal as well as phenomenal
Spirit of ad-venture shown by charities in funding drug research or a sign of desperate times?
From The Economist in New York, a short but interesting piece on the growing collaboration between charities, pharmaceutical and biotech companies in the US to bring new drugs to market. More specifically it looks at the 'venture philanthropy' model being adopted by charities there to support clinical trials. I'm not quite sure I'd characterise it as … Continue reading Spirit of ad-venture shown by charities in funding drug research or a sign of desperate times?
From analogue to digital patients – or how to avoid being trapped in the ‘mash-up’
If I didn't know from all the media coverage that the digital switchover was taking place in London today, then I would only have to look over my back fence into Crystal Palace Park to see them preparing for the laser show tonight at the Crystal Palace Tower. It explains the weeks of helicopters hovering … Continue reading From analogue to digital patients – or how to avoid being trapped in the ‘mash-up’
From crisis to challenge: PM to spell out new dementia plan including research boost
This morning's news bulletins are full of stories trailing the Prime Minister's speech in London later today, when he is expected to launch a national challenge on dementia - from accelerating research funding and setting up a new academic science centre, to establishing a national screening programme and encouraging people to donate their brains to research. … Continue reading From crisis to challenge: PM to spell out new dementia plan including research boost
Simon Denegri's Lay Review 