‘Sticking with it’ – retention issues in public involvement and health research

This week I had the good fortune to be on the judging panel for the NIHR Clinical Research Networks/McPin Foundation/MQ 2018 award for service user and carer involvement in mental health research.  It was a brilliant field to choose from. The winners will be announced very shortly. One of the reasons I readily take up... Continue Reading →

Getting a GRIPP2 on public involvement reporting in research papers

More often than not, public involvement in research is poorly reported when it comes to the results of studies being written-up in academic papers.   That means we - the public, researchers, clinicians and all others involved in doing research - are missing out on the cumulative knowledge and experience of others on 'why,' 'how'... Continue Reading →

When patients help bridge the knowledge gap in health research #clinicaltrials #whywedoresearch #PROMs

This week saw a great editorial by Angela Coulter in the British Medical Journal (BMJ) headlined 'Measuring what matters to patients.'  The underlying story may be summed up as follows. The effectiveness of the care or medicines you and I receive every day has been decided by measuring the things that health professionals and researchers have decided are important. Some of these 'measures'... Continue Reading →

Blog: Why the NIHR Journals Library is important from a patient perspective

NIHR Journals Library Launch 20th June 2013 As promised here's my speaking notes from the launch of the NIHR Journals Library today.  Good to see the Minister, Earl Howe, there (I tweeted his remarks earlier) plus the CMO, Professor Dame Sally Davies, Trish Edwards, Asst Editor from the BMJ etc., Public involvement in UK health research... Continue Reading →

A few more ‘£s’ and I’ll be opening my own Wellcome Collection…just keep those surveys coming

If only petrol was as plentiful a resource as public attitudes.  There is no end to the extent to which we can mine what the public thinks about this, or that. Occasionally a survey will hit a rich seam of information and insight.  Then again, so numerous are those who are drilling into the public mindset nowadays, that I... Continue Reading →

BMJ talks tough on clinical trial data and the public interest

The BMJ publishes several papers today looking at the harm being done to research, patient care and the public interest by the incomplete disclosure or withholding of clinical trial data.  Click here for the BMJ's editorial  written by Dr Richard Lehman from Oxford University and the journal's clinical epidemiology editor Dr Elizabeth Loder.  An example of the... Continue Reading →

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