New @HRA_Latest @OfficialNIHR data on UK public attitudes to health research highlights need to work with under-represented groups to break down barriers #diversity

White, middle-class and well-connected - and that's just the patients: is this the health research culture we wish to see in the UK? Ever since it was established in 2011, the Health Research Authority (HRA) - the UK regulator of health research whose mission is 'to protect and promote the public interest' - has commissioned... Continue Reading →

Newsflash: Could you be a standard bearer for public involvement? Expressions of interest invited. #ppistandards @OfficialNIHR @ResearchWales @publichealthni @CSO_Scotland

The National Institute for Health Research (NIHR) together with its equivalents across the other UK nations - the Chief Scientist's Office in Scotland, Health and Care Research Wales, and Public Health Agency Northern Ireland - has been leading the development of UK national standards to improve the quality and consistency of public involvement. The UK--wide... Continue Reading →

Excellent new guidance published to help charities and pharma work together with the public’s trust @ABPI_UK @NVTweeting

It's high time we got over it. Pretending it doesn't go on is foolish. Suspecting the worst every time they come near to one another is energy-sapping. No one is trying to deny history. But we are in danger of denying others a future if we continue to stand in their way. I mean, of... Continue Reading →

What next for the BBC: ‘Science in Need?’ #BBC #sciencefunding

Yes, wouldn't it be great if the BBC did indeed launch 'Science in Need?' Then, for the first time in history, we could have a public broadcaster encouraging us to 'SIN' and be SINNERS with our donation to science. There is something rather beautiful but perhaps also tendentious about the juxtaposition of yesterday's launch of the BBC's new... Continue Reading →

A brief update on NIHR’s review of public involvement in research

We have just passed the mid-way point in the 'evidence-gathering' phase of NIHR's strategic review of public involvement entitled 'Breaking Boundaries.'  So here's an unofficial Chair's view. The announcement of the review on 31st March, its terms of reference and our initial call for views can be found on NIHR's website here People can at the... Continue Reading →

Pharma is just not wired to act in the public interest when the chips are down

It has been an interesting 24 hours for some of our goliaths of research funding. Starting with the positive, Cancer Research UK (CRUK) rolled out its new research strategy this morning: 'Beating Cancer Sooner.' Its bold new vision is to see 75% of people surviving the disease in the next twenty years. That's compared to the 50%... Continue Reading →

Blog at WordPress.com.

Up ↑

%d bloggers like this: