New @HRA_Latest @OfficialNIHR data on UK public attitudes to health research highlights need to work with under-represented groups to break down barriers #diversity

White, middle-class and well-connected - and that's just the patients: is this the health research culture we wish to see in the UK? Ever since it was established in 2011, the Health Research Authority (HRA) - the UK regulator of health research whose mission is 'to protect and promote the public interest' - has commissioned... Continue Reading →

What next in identifying patient priorities for health research? #JLAevaluation

I spent yesterday morning at an excellent event looking at the James Lind Alliance Priority Setting Partnerships (JLA PSPs for short!). #JLAevaluation Started in 2004, JLA PSPs have become a recognised and highly respected method for identifying shared priorities in health research among patients, carers and clinicians.  That they have is a testament to its founders but also the excellent JLA... Continue Reading →

A brief update on NIHR’s review of public involvement in research

We have just passed the mid-way point in the 'evidence-gathering' phase of NIHR's strategic review of public involvement entitled 'Breaking Boundaries.'  So here's an unofficial Chair's view. The announcement of the review on 31st March, its terms of reference and our initial call for views can be found on NIHR's website here People can at the... Continue Reading →

Have charities really put the brakes on public involvement in research?

I was pulled-over by the police on the M25 on Sunday night.  Unbeknown to me, my car brake lights had failed so that they were permanently on.  Quite apart from blinding any traffic on my tail, an unwitting driver could easily have mis-read my intentions with who knows what consequences.  Thankfully that didn't happen.  And by... Continue Reading →

Charities wade in on Leveson and media reporting of science

The Association of Medical Research Charities (AMRC) together with Cancer Research UK and Wellcome Trust have this afternoon published their response to the Leveson inquiry into the culture, practice and ethics of the press.  See first item listed under 2012 on this page at the AMRC website. The submission makes good points and I learnt... Continue Reading →

Briefings on the impact on science of a cap non-EU migrants, data protection etc

A quick pass-by to alert you to the fact that we have a new briefing available on the impact on science of the proposed cap on non-EU migrants...and that we have published our response to the Ministry of Justice consultation on the current legislative framework for data protection. On the former I believe that the... Continue Reading →

An Open Letter to Lord Mandelson

This week 'The Guardian' published an extract online of my response to Lord Mandelson's article in its pages about higher education funding.  But I thought I would provide the full text here for interest.  Dear Editor, The Business Secretary, Lord Mandelson, presents a stout case for why universities should see tighter budgets as an opportunity for diversifying their... Continue Reading →

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