Forgive me. For once, I write with a semi-official hat on. But this afternoon feels like a bit of a milestone moment in lifting public involvement in research ever higher on people’s agendas. If you have heard me speak in public then you will know I start by saying how proud I am that the… Read More NIHR gives ‘chapter one and verse’ on patients and the public in research: 2012/13 annual report published
A small island has appeared off the coast of Pakistan following the tragic earthquake there last week. The consensus of scientific opinion is that, before long, this island will disappear without trace. In the meantime it is an interesting curiosity, attracting quite a gaggle of geologists and geographers. I wonder if that is how INVOLVE was… Read More Notes from a ‘small island’ in health research…..otherwise known as INVOLVE
Here is a gripping report from this week’s ‘Adweek’ (based in New York) about the new marketing strategies being used by pharmaceutical companies. Don’t be put off by the reference to ‘Obamacare.’ The story is equally applicable to the United Kingdom. For it is essentially a tale about how disease is being re-packaged. Patient data is the new… Read More The truth, the whole truth and nothing but….pharma
You know how the story goes. Cancer is way ahead of other conditions when it comes to patients having the opportunity to participate in clinical research. But there’s still lots of room for improvement. Today NHS England has announced the results of the annual National Cancer Patient Experience Survey. Almost 70,000 patients took part in… Read More Survey: Cancer patients and research – the signage is there but not the opportunity to take part
Sometimes it is the lot of the blogger to feel like the producer of ‘Have I Got News For You.’ One’s research can taken you to all sorts of places you didn’t know existed. Then again it can also turn up some gems. This morning I blogged about the WHO report on medicine priorities and… Read More Moorfields research team reports on benefits of public involvement to eye patients and staff
NIHR Clinical Research Network Survey Patient and Carer (Lay) Involvement in Research: Your Experience The National Institute of Health Research (NIHR) Clinical Research Network (CRN) Patient and Public Involvement Steering Group is running a survey to capture how being involved in research impacts on patients and carers. You should take part in this survey if… Read More It’s NIHR Friday – Public involvement: did the research network move for you?
This week, patients got a couple more options for finding out about clinical trials they can take part in. Patientslikeme (which was launched in the United States a few years ago) has unveiled its new new clinical trials site which you can find here. Patientslikeme is capturing a lot of attention here in the UK… Read More New websites launched for people looking to join a clinical trial; but will patients want a ‘coming together’ at some point?