A dear schoolfriend of mine, Sara, will be laid to rest today. We found each other on Facebook three years ago after a 30 year hiatus. I enjoyed our mutual 'likes' of one another's quirky musings, the various photographs of holidays and birthdays, and the occasional sharing of news about our respective families. I had... Continue Reading →
Public involvement will be crucial to new NIHR ARCs and the research implementation agenda #CLAHRCs #ARCs @OfficialNIHR @NIHRINVOLVE @ClahrcP
It doesn't matter where you are in the world patients and carers have the same questions about research. This week I am in Sydney, Australia, at the invitation of the Australia Dementia Forum hosted by the National Institute for Dementia Research. It has been a fascinating two days. Most of all I have enjoyed meeting... Continue Reading →
Hey Prof! We need to talk about feedback. It’s not about ‘closing the loop’ but learning together. #PPIFeedback #NewGuidance @CRIPACC1
If you haven't read Elspeth Mathie (@elspeth_mathie) and colleagues' excellent paper 'Reciprocal relationships and the importance of feedback in patient and public involvement: A mixed methods study' in Health Expectations then I highly recommend a read over the next few days. Their small but significant study - which was funded by the National Institute for Health... Continue Reading →
‘Sticking with it’ – retention issues in public involvement and health research
This week I had the good fortune to be on the judging panel for the NIHR Clinical Research Networks/McPin Foundation/MQ 2018 award for service user and carer involvement in mental health research. It was a brilliant field to choose from. The winners will be announced very shortly. One of the reasons I readily take up... Continue Reading →
New @HRA_Latest @OfficialNIHR data on UK public attitudes to health research highlights need to work with under-represented groups to break down barriers #diversity
White, middle-class and well-connected - and that's just the patients: is this the health research culture we wish to see in the UK? Ever since it was established in 2011, the Health Research Authority (HRA) - the UK regulator of health research whose mission is 'to protect and promote the public interest' - has commissioned... Continue Reading →
New mental health research framework announced: has Christmas come early?#NIHRmentalhealth
One of the unintended consequences of writing a blog is that it can be a helpful chronicle enabling you to trace the history of issues and events over many years. There is no better example than mental health research. So I can tell you that it is three years since the Mental Health Research Alliance... Continue Reading →
Here’s hoping the announcement of the @OfficialNIHR #LetsGetDigital winners means others will catch the digital bug
Thought I would gently ease myself back into things after almost a month's total social media detox at work by posting this news story from the National Institute for Health Research (NIHR) announcing the winners of #LetsGetDigital..... The votes have been counted, the judges have had their say and the winners of the 2017 NIHR Let’s Get... Continue Reading →
Patients are part of the crew in health research not passengers. This week you can support them by getting behind the #iamresearch @OfficialNIHR #ICTD campaign
It's a big week in research. To mark International Clinical Trials Day on Saturday 20th May, the National Institute for Health Research (NIHR) is promoting its 'I Am Research' (#iamresearch) national campaign to raise awareness of the part played by patients, carers and the public in making research happen. From today until well into... Continue Reading →
Lancet study puts NIHR top of the intl league table for health research in the public interest inc. public involvement @TheLancet
Yesterday the Lancet published a study by Mona Nasser, Mike Clarke, Iain Chalmers and others looking at how well eleven international research founders are doing to reduce waste in research. This follows a series of articles by Chalmers et al over the last couple of years on the same issue. The study scored funders using... Continue Reading →
