Here is a gripping report from this week's 'Adweek' (based in New York) about the new marketing strategies being used by pharmaceutical companies. Don't be put off by the reference to 'Obamacare.' The story is equally applicable to the United Kingdom. For it is essentially a tale about how disease is being re-packaged. Patient data is the new … Continue reading The truth, the whole truth and nothing but….pharma
Author: simondenegri
We are in danger of running public involvement in health on Ryanair principles
Patient and public advocates in health and social care would make bloody good pilots. Year after year we ask them to help successfully land projects and initiatives in 'fuel critical' situations. They are having to carry more, and further. But for how much longer before someone has to declare a real fuel emergency? And a … Continue reading We are in danger of running public involvement in health on Ryanair principles
CLAHRCs could be the superheroes in quality improvement for patients in the UK
Yesterday my day began in Clerkenwell meeting with the new charity, MQ Transforming Mental Health (www.joinMQ.org). It is exciting to feel that we might at last be on the verge of seeing a strong charity profile in mental health research in the UK. But more baffling than ever why our existing mental health charities - … Continue reading CLAHRCs could be the superheroes in quality improvement for patients in the UK
NIHR and ABPI conference in November on ‘big data’
Click here for details of a National Institute for Health Research (NIHR) and Association of British Pharmaceuticals Industry (ABPI) joint conference on harnessing big data for health gains. Takes place in London on 21st November. The more it is used the more I dislike the term 'big data.' I mean, how to alienate your public in … Continue reading NIHR and ABPI conference in November on ‘big data’
Universal Jobmatch takes prompt action over clinical trial ‘jobs’ posting
Some of you may have noticed some twitter traffic over the weekend about participation in clinical trials being advertised as job opportunities on Universal Jobmatch. Thanks to @celticchickadee for alerting me to this by the way. Anyway, colleagues at NIHR have followed up, the posting has been removed and this is the official line from … Continue reading Universal Jobmatch takes prompt action over clinical trial ‘jobs’ posting
A commercial break of sorts: (Dr Ann-Gel) Palermo comes to Bristol 25th Sept: book a place
Community-based Participatory Research: Unlocking the potential - 25th September in Bristol, 14.30-16.00. Dr Ann-Gel Palermo is an experienced community activist researcher, involved with numerous organisations, local and federal committees in the USA concerned with public health and health disparities. She is chair of the Harlem Community & Academic Partnership (HCAP) which is a New York … Continue reading A commercial break of sorts: (Dr Ann-Gel) Palermo comes to Bristol 25th Sept: book a place
Do I detect a slight fumble of the ball in today’s Commons Select Committee report on clinical trials?
Not for the first time I was awake at 3am this morning. Cup of tea in hand, watching American football. It's amazing how those players keep the ball when so many other players are piling on top of them. Rarely do you see the thing break free. They must practice for hours.... The House of Commons … Continue reading Do I detect a slight fumble of the ball in today’s Commons Select Committee report on clinical trials?
Is this seat taken? Why patients always lose out at musical chairs?
I have been on some crowded trains lately. The sort which have their own micro-climate bubbling inside. On more than one occasion passengers have chosen to pile high their belongings on the empty seat beside them. Perhaps they think if they put enough stuff on a seat it will look like another person? Anyway, so … Continue reading Is this seat taken? Why patients always lose out at musical chairs?
Genomics England is inviting patients and the public to a town hall event: apply here
Passing this invite on from Sir John Chisholm, Chair of Genomics England, for their event on 3rd Oct. Email address to attend included below along with website address. Hello, I am writing on behalf of Genomics England to invite you to our first Stakeholder Event on Thursday 3rd October 2013. The venue is as follows: … Continue reading Genomics England is inviting patients and the public to a town hall event: apply here
Generation R event: young people in research storm the barricades of science
What was it that the author, William Golding, said when asked if he went to church? 'No I don't, and I don't think God does either.' I feel the same about medical research conferences. They often seem to be places where people go to worship the science rather than what it can do for people. … Continue reading Generation R event: young people in research storm the barricades of science
Evaluating the impact of public involvement in research – the #PiiAF tool: launch remarks
Fantastic to see so many people gathered in the room and in hyperspace for the launch of the Public Involvement Impact Assessment Framework (PiiAF). You can view the prototype website here. A really important piece of work and here are my remarks from the start of the day without the jokes. Launch of the Public … Continue reading Evaluating the impact of public involvement in research – the #PiiAF tool: launch remarks
Take part in a live trial now as part of NIHR’s visit to the British Science Festival #NIHRCOMETtrial
I hope you'll forgive the fact that what follows is the news release but I am part of the team presenting with Jonathan Sheffield at next week's British Science Festival and I really couldn't put it better than this. The 'live trial' is very exciting indeed and the first dip in the water for a … Continue reading Take part in a live trial now as part of NIHR’s visit to the British Science Festival #NIHRCOMETtrial
Patient partners wanted for Health Research Authority (HRA) workshops in London, Manchester, Newcastle
If you have heard me speak at an event or conference you may have heard me talk about the need for us to see the public as partners in regulating modern health systems. Yesterday I was chairing the small steering group that has been advising the Health Research Authority (HRA) on the development of its … Continue reading Patient partners wanted for Health Research Authority (HRA) workshops in London, Manchester, Newcastle
Survey: Cancer patients and research – the signage is there but not the opportunity to take part
You know how the story goes. Cancer is way ahead of other conditions when it comes to patients having the opportunity to participate in clinical research. But there's still lots of room for improvement. Today NHS England has announced the results of the annual National Cancer Patient Experience Survey. Almost 70,000 patients took part in … Continue reading Survey: Cancer patients and research – the signage is there but not the opportunity to take part
New webinar series on public involvement in adult social care @NIHRINVOLVE @OfficialNIHR
This is for the mods and rockers among you who spent the last week at the seaside and missed the twitter announcements.... Great to see this focus on public involvement in social care. ‘Get all sides of the story’: public involvement and participation in adult social care research The NIHR School for Social Care Research … Continue reading New webinar series on public involvement in adult social care @NIHRINVOLVE @OfficialNIHR
Charities should be often seen and loudly heard.
Respected Times columnist, Libby Purves, took aim last week at the campaigning work of charities (see article (pay-wall)). As did Chris Snowdon, a fellow at the Institute of Economic Affairs (IEA), who wrote this piece in CITYA.M. Both appear to share a romanticised view of charity in which charities would be better 'seen and not heard.' And through a soft-focus lens at … Continue reading Charities should be often seen and loudly heard.
The language of Francis, Keogh and Berwick on the NHS, in pictures.
What is the language of our health service today? What words and phrases do we use about the NHS and what do they say about us? More importantly, what do they say about where we want to get too? Well, one place to start perhaps is the text of the three reviews of the NHS recently completed by … Continue reading The language of Francis, Keogh and Berwick on the NHS, in pictures.
New CLAHRCs announced in local health research boost. Here’s a list and links. #nihrclahrcs
The Department of Health this morning announced the successful NIHR Collaborations for Leadership in Applied Health Research and Care (CLSHRCs). The formal press release can be found here. Thirteen CLAHRCs have been awarded over £120M in total following an open competition earlier this year. The details of the latter can be found here. Further details … Continue reading New CLAHRCs announced in local health research boost. Here’s a list and links. #nihrclahrcs
Lock up your charity CEO the Daily Telegraph is coming
The best advice I can give charity Boards of Trustees today is: lock up your chief executive because the Daily Telegraph is after them. The newspaper known for its successful probing of MP pay and expenses is now taking aim at charity CEOs. Specifically it has gone for the heads of the charities that make … Continue reading Lock up your charity CEO the Daily Telegraph is coming
Holby City leaves transplant facts behind in search of medical drama, but why?
Nine in ten of us watch the TV at least once a week. The living room is the place where we most like to sit in front of 'the box.' And the majority of the programmes we view constitute live television. So found OFCOM in its latest research of people's media habits published two weeks … Continue reading Holby City leaves transplant facts behind in search of medical drama, but why?
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