Just had an email from Rare Disease UK (RDUK) saying they are setting-up four consultation days for patient groups to discuss the rare diseases consultation paper put out by the four health departments across the UK a few weeks ago.  Here are the dates:

Wales – Cardiff – 1st May – location TBC /England – London – 3rd May – CBI Conference Centre, Centre Point Tower /Northern Ireland – 8th May – Dunsilly Hotel, Co. Antrim /Scotland – Edinburgh – 10th May – Edinburgh Capital Hotel

You will have to register to attend so I recommend that you keep checking the RDUK  website.  Don’t just turn up!