This is a piece I spotted in the local press in Wirral about schoolgirl, Georgia Semple, who is a member of the Young People's Advisory Group for the NIHR Medicines for Children Research Network (MCRN). The Group helps with the design of clinical research - from conveying their views and concerns to researchers, to writing … Continue reading Why Georgia is an example to us all on clinical trials
NIHR
‘Your health records saves lives leaflet’…now available here
Here's hoping this works. So, (sorry John Humphries et al) rather than send you all off somewhere else, here is the pdf of the whole patient information leaflet 'Your health records saves lives' which I wrote about yesterday. Click here: PHR LIFT England online As I say, please pass it on...for me. And you can … Continue reading ‘Your health records saves lives leaflet’…now available here
Available in all good GP surgeries – new patient information leaflet on the use of patient data for research
This leaflet 'Your health records saves lives' (click on the picture below) marks the fruits of much hard work by the UK Clinical Research Collaboration (UKCRC) partnership over two years. Conceived, designed and written with patients very much as partners in the process, it seeks to explain how patient data is used for research purposes. … Continue reading Available in all good GP surgeries – new patient information leaflet on the use of patient data for research
NHS research culture awards
Given my post yesterday I am delighted to congratulate Tees, Esk and Wear Valleys NHS Foundation Trust on winning the Health Service Journal's (HSJ) first ever research culture award last night. The full list of winners and highly commendeds is as follows: Winner: Tees, Esk and Wear Valleys NHS Foundation Trust Highly Commended: Portsmouth Hospitals … Continue reading NHS research culture awards
Technology pulll-through in research and the role of the public
Next week I shall be taking part in my first meeting as a lay member of NIHR's 'Invention 4 Innovation' programme. I have had a number of conversations with people recently about how patients are and should be involved in the field of what is jargonistically called 'technology pull' - getting new technologies into health … Continue reading Technology pulll-through in research and the role of the public
Promoting clinical trial participation
This coming week I am speaking at The Prostate Cancer Charity's national conference. 20 minutes on public engagement including questions and answers. My first call to action to the audience is likely to be about encouraging patient participation in clinical trials. Compared to five or even one year ago there now seems a great deal … Continue reading Promoting clinical trial participation
NIHR Annual Report Published
A quick aside to alert you to the fact that the National Institute for Health Research (NIHR) has published its annual report for 10/11.
Rising cancer rates and the NHS reforms…plus NIHR and ‘impact’
I suspect you have seen today's news bulletins covering Macmillan Cancer Support's report predicting a significant rise in the number of people who will get cancer. To quote the opening lines of their statement today: Cancer rates are increasing at such a rate that research shows 42% of people who die in this country will … Continue reading Rising cancer rates and the NHS reforms…plus NIHR and ‘impact’
The secret weapon in UK public health research
I attended a good breakfast meeting today about public health research. It was convened by the All-Party Parliamentary Group on Medical Research. The speakers included Professor David Heymann (Chair of the Health Protection Agency), Professor Robert West (Director of Tobacco Studies at the Cancer Research UK Health Behaviour Research Centre), Professor Anne Johnson (Professor of … Continue reading The secret weapon in UK public health research
Government gets the message on research in NHS reforms
From the NIHR website today following the Government's response to yesterday's publication of the NHS Future Forum conclusions. A real result as far as I can see with regard to excess treatment costs as well as the strengthening of the duties and responsibilities to promote research in different parts of the NHS structure. Very good … Continue reading Government gets the message on research in NHS reforms
‘Scroll down’ for clinical trials
To begin with, here's more on that Pfizer story about use of mobile phone technology etc in clinical trials. It seems to have piqued an interest among many of you anyway. Also on the subject of clinical trials, I was rather perplexed by this story running out of the NHS Confederation this morning. I'm delighted … Continue reading ‘Scroll down’ for clinical trials
PPI Friday
It seems that my Friday blog has become dominated in recent weeks by postings about patient and public involvement. So be it. But before anyone jumps in to criticise, let me assure you of my belief that it is a 24/7 activity! Friday is often quite an interesting day for news. Press officers will tell … Continue reading PPI Friday
Dame Sally Davies interview in the FT
Dame Sally Davies, England's new Chief Medical Officer, gives a frank and open interview in today's Financial Times. In it, Dame Sally says that she will continue to play a leadership role with respect to NHS R&D but with perhaps less involvement in the day-to-day running (my interpretation).
NIHR Funding Announcement and hats-off to Diabetes UK
The UK National Institute for Health Research (NIHR) has today announced £775 million worth of funding over five years for translational research. The funding will be made available through NIHR to NHS/university partnerships. Also, in what has to be an exemplar for others in terms of dissemination, Diabetes UK have today made a very public … Continue reading NIHR Funding Announcement and hats-off to Diabetes UK
mICRA, PROSPERO, Beddington and Bell
Announcements are like buses. There are none for what seem like days and then several come all at once. My job is to make sure you get on the right one... NIHR has several announcements out today which AMRC and its members have had some involvement or interest in. The first is the launch of the new … Continue reading mICRA, PROSPERO, Beddington and Bell
Stem cell research and charities
The world has gone consultation mad. Another two dropped into my inbox yesterday. I'm seriously considering booking myself into consultation rehab. A few days off next week will at least allow me to undergo an intensive consultation detox programme in the meantime. For those of you who have set aside today to write a response to … Continue reading Stem cell research and charities
Health and social care reforms on trial
What better starting point for today's blog than the comments of two leading clinicians speaking about the importance of clinical trials to patient outcomes. First, Dr Duncan Wheatley, a Clinical Oncologist and Lead for Research in the South West Peninsula, who is quoted in a BBC Cornwall story today about medical research at the Royal … Continue reading Health and social care reforms on trial
More NHS patients participating in UK clinical trials than ever before
A piece of good news with which to begin the New Year. PharmaTimes is reporting that the number of patients participating in clinical trials jumped by 67% last year to over half a million (compared to over 300,000 in 2009). The new CEO of the National Institute for Health Research Clinical Research Network Co-ordinating Centre (NIHR … Continue reading More NHS patients participating in UK clinical trials than ever before
NHS white paper next steps
Some of you may know that today was being dubbed 'Super Wednesday' by some because today is the day that the Department of Health has set out its response to the consultation on the NHS White Paper 'Equity and Excellence: Liberating the NHS.' The National Institute for Health Research (NIHR) has very helpfully published an … Continue reading NHS white paper next steps
The Public health white paper – a new school of thought
'Healthy Lives, Healthy People,' the White Paper on public health has been published and is available on the Department of Health website. The news release sets out the Secretary of State's 'ladder of intervention' - from the rather refreshingly titled 'do nothing' up to 'eliminate choice altogether' - which sound like the different states of readiness one … Continue reading The Public health white paper – a new school of thought
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