Blog: some mental health research items inc. a new young person’s group being formed @McPinFoundation

If you follow me on Twitter (@SDenegri) you might notice that I regularly RT the work of the McPin Foundation which exists to 'transform mental health research by putting the lived experience of people affected by mental health problems at the heart of research methods and the research agenda.' It's a fabulous organisation. Prior to Christmas they... Continue Reading →

Musings on #patientdata and: ‘the moral case for public involvement in research is dead, long live…’

There's a big push on #patientdata at the moment. Leaflets explaining how patient data will be shared in the future are being stuffed through people's letter boxes.  This is part of an initiative called 'care.data.' Medical research charities have meanwhile funded a national newspaper advertising campaign exhorting the benefits of sharing patient data for research. The... Continue Reading →

List of Academic Health Science Networks (AHSN), their Chairs, MDs, websites, Twitter feeds, priorities

Goodness knows what made me start to do this.  Perhaps it's the 'public servant' in me.  Hey ho! Here's a list of the Academic Health Science Networks (AHSNs), websites (click on the relevant AHSN name), their MDs, Chairs, and Twitter addresses. An interactive map of the AHSNs areas can be found on the Yorkshire and... Continue Reading →

Survey: Cancer patients and research – the signage is there but not the opportunity to take part

You know how the story goes.  Cancer is way ahead of other conditions when it comes to patients having the opportunity to participate in clinical research.  But there's still lots of room for improvement. Today NHS England has announced the results of the annual National Cancer Patient Experience Survey.  Almost 70,000 patients took part in... Continue Reading →

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