Click here for details of a National Institute for Health Research (NIHR) and Association of British Pharmaceuticals Industry (ABPI) joint conference on harnessing big data for health gains. Takes place in London on 21st November. The more it is used the more I dislike the term 'big data.' I mean, how to alienate your public in … Continue reading NIHR and ABPI conference in November on ‘big data’
National Institute for Health Research
Take part in a live trial now as part of NIHR’s visit to the British Science Festival #NIHRCOMETtrial
I hope you'll forgive the fact that what follows is the news release but I am part of the team presenting with Jonathan Sheffield at next week's British Science Festival and I really couldn't put it better than this. The 'live trial' is very exciting indeed and the first dip in the water for a … Continue reading Take part in a live trial now as part of NIHR’s visit to the British Science Festival #NIHRCOMETtrial
New webinar series on public involvement in adult social care @NIHRINVOLVE @OfficialNIHR
This is for the mods and rockers among you who spent the last week at the seaside and missed the twitter announcements.... Great to see this focus on public involvement in social care. ‘Get all sides of the story’: public involvement and participation in adult social care research The NIHR School for Social Care Research … Continue reading New webinar series on public involvement in adult social care @NIHRINVOLVE @OfficialNIHR
It’s NIHR Friday: NHS Trust research activity stats published
You didn't think I'd forget NIHR Friday did you? So the National Institute for Health Research Clinical Research Networks Co-ordinating Centre (NIHR CRN CC), together with The Guardian online, has this week published its annual performance tables for research activity in each NHS Trust in England for 2012/13. You can find the figures for your local … Continue reading It’s NIHR Friday: NHS Trust research activity stats published
It’s NIHR Friday – Public involvement: did the research network move for you?
NIHR Clinical Research Network Survey Patient and Carer (Lay) Involvement in Research: Your Experience The National Institute of Health Research (NIHR) Clinical Research Network (CRN) Patient and Public Involvement Steering Group is running a survey to capture how being involved in research impacts on patients and carers. You should take part in this survey if … Continue reading It’s NIHR Friday – Public involvement: did the research network move for you?
Blog: Why the NIHR Journals Library is important from a patient perspective
NIHR Journals Library Launch 20th June 2013 As promised here's my speaking notes from the launch of the NIHR Journals Library today. Good to see the Minister, Earl Howe, there (I tweeted his remarks earlier) plus the CMO, Professor Dame Sally Davies, Trish Edwards, Asst Editor from the BMJ etc., Public involvement in UK health research … Continue reading Blog: Why the NIHR Journals Library is important from a patient perspective
NIHR Friday: CLAHRCs Selection Panel announced plus NIHR Journals Library opens
I was just going to tweet this but since it is in a downloadable pdf and not actually on the face of NIHR's website, I thought it would be helpful to post it - the membership of the Collaboration in Leadership for Applied Health Research and Care (CLAHRC) Selection Panel: Professor Huw Davies (Chair) Co-Head of … Continue reading NIHR Friday: CLAHRCs Selection Panel announced plus NIHR Journals Library opens
Keep track of your medicines with ‘My Medication Passport’ c/o NW London CLAHRC
I seem to be visiting more CLAHRCs (Collaboration for Leadership in Applied Health Research and Care) next week than in all my time as a boy looking for new school shoes. One of the CLAHRCs unfortunate enough to be visited by me is Northwest London. They've just launched a brilliant new tool to help patients … Continue reading Keep track of your medicines with ‘My Medication Passport’ c/o NW London CLAHRC
It’s NIHR Friday inc. new publications, a competition and NIHR CCF makes the Grade with patients
Yes, it truly does seem as though Friday should be dubbed 'NIHR Friday' given the propensity for my erstwhile colleagues to push info out on the aforementioned day. The clutch of interesting announcements this week include: Publication of the NIHR Annual Report for 2011-2012. You know, I'm sorry if this offends some people but I'm … Continue reading It’s NIHR Friday inc. new publications, a competition and NIHR CCF makes the Grade with patients
Political spotlight on Health Research Authority (HRA) intensifies
I am sure the new Health Research Authority (HRA) can take care of itself. But the expectations being heaped on it by others show no signs of abating. I wouldn't be surprised if tomorrow someone calls on it to cure cancer. If it had been created by a Blair Government it would surely have been … Continue reading Political spotlight on Health Research Authority (HRA) intensifies
INVOLVE steps forward to change behaviours on plain English summaries of health research
I make no apology for being a little bit obsessed by plain English summaries of research this week. Events have conspired to make it this way. So, what did NIHR do when faced late last year with rising concern among academics, researchers, patients and the public about the poor quality of lay summaries? It commissioned … Continue reading INVOLVE steps forward to change behaviours on plain English summaries of health research
Public have their say on clinical trials gateway
This is already doing the rounds on twitter but I thought I would share the email/letter that I have sent out to those who took part in the survey.... I am pleased to let you know that the results of the UK Clinical Trials Gateway (UKCTG) Patient and Public Survey conducted last summer have been … Continue reading Public have their say on clinical trials gateway
Data, data everywhere…new report, plus NIHR’s achievements in 2012
Yes, we are positively swimming in data these days. And I don't about you, but I'm looking forward to doing some data-linkage with family and friends over Christmas and the New Year. From a Government point of view, making best use of the data which is routinely collected by departments, public agencies and others, linking … Continue reading Data, data everywhere…new report, plus NIHR’s achievements in 2012
Clinical trials activity report for England highlights progress but much work still to be done
The National Institute for Health Research (NIHR) CRN CC has today published its clinical research activity report for the final quarter of 2011/12. Some of the data and a good summary of what they mean is also available on The Guardian website. Last year was the first that this sort of information was made widely available. So … Continue reading Clinical trials activity report for England highlights progress but much work still to be done
Thoughts on public involvement, participation and engagement in research…from Denmark
Those of you who follow me on twitter (and you can do so by clicking on the twitter symbol on the blog), will know that, earlier this week, I was tweeting from Copenhagen in Denmark. Myself and Derek Stewart, Associate Director for PPI at NIHR CRN CC, were there to help launch the Danish Health … Continue reading Thoughts on public involvement, participation and engagement in research…from Denmark
The Academy reports on research regulation…and a reminder of the Guardian’s Q&A about public involvement
The Academy of Medical Sciences (AMS) today published its report of the meeting it held a few months ago, looking at progress with improving the regulatory of environment for medical research. I blogged about being a panellist at the meeting as you may recall. The report's conclusions are noteworthy for the second bullet point about public … Continue reading The Academy reports on research regulation…and a reminder of the Guardian’s Q&A about public involvement
New paediatric research facility opens at Alder Hey
A new paediatric clinical research facility has opened today at Alder Hey Hospital in Liverpool. Funding has come from the university, an Alder Hey appeal, and the National Institute for Health Research (NIHR). A very important development for children and their parents and the region's growing profile as a hub of nationwide efforts to improve child health. Click … Continue reading New paediatric research facility opens at Alder Hey
All this talk of prescribing errors reminds me…..
Today's report by the General Medical Council about prescribing errors makes salutary reading. If I have one criticism about it, it is that, as far as I can see, the research they commissioned focused on the views of GPs and their immediate colleagues, less so if at all on the patient perspective. Are we hearing only … Continue reading All this talk of prescribing errors reminds me…..
Have charities really put the brakes on public involvement in research?
I was pulled-over by the police on the M25 on Sunday night. Unbeknown to me, my car brake lights had failed so that they were permanently on. Quite apart from blinding any traffic on my tail, an unwitting driver could easily have mis-read my intentions with who knows what consequences. Thankfully that didn't happen. And by … Continue reading Have charities really put the brakes on public involvement in research?
N=1: Defining medicines development and use from a patient perspective
I am not sure what made me think about and look for this report: 'N=1: Why people matter in medicines.' Perhaps it was all the talk last week about the Department of Health's 11th report to parliament on the Pharmaceutical Price Regulation Scheme (PPRS) - in essence the way in which drug prices are set … Continue reading N=1: Defining medicines development and use from a patient perspective
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