Round round get around I get around – Caldicott2, patient data, dementia portal and more!

So sang The Beach Boys who were on Radio 2's 'In Concert' this week.  Not that I'm a great fan but it seemed apposite given my week.  This has involved visits to TrialReach, Oxford (well, virtually!) to discuss plans for public involvement in the Biomedical Research Centre there, my good colleagues at BioMedCentral and, tomorrow,... Continue Reading →

Clinical trials activity report for England highlights progress but much work still to be done

The National Institute for Health Research (NIHR) CRN CC has today published its clinical research activity report for the final quarter of 2011/12.  Some of the data and a good summary of what they mean is also available on The Guardian website. Last year was the first that this sort of information was made widely available.  So... Continue Reading →

The NHS Commissioning Board Draft Mandate and patients in health research

The Shard went up (officially).  And the NHS Commissioning Board Draft Mandate came down from on high.  All on the same day.  Add the odd torrential downpour with its associated misery and these could be Biblical times. I have come to the conclusion that it is my fate to be locked away somewhere remote and with an intermittent... Continue Reading →

Smart guides to public and patient involvement in your local NHS (i.e. Healthwatch, CCGs etc)

Here are four exceptionally useful guides to ensuring good public and patient involvement and engagement in the new local NHS structures such as Healthwatch, CCGs etc. Get smart about engagement series introduction Engagement for commissioning success Working with lay members and patient representatives Working with LINks and local HealthWatch My sense is that CCGs are... Continue Reading →

DH and charities reach acoRD over medical research costs

Divvying up the costs of conducting research in the NHS funded by medical research charities is an intricate business.   Who pays for that research nurse, their time in administering the extra treatment required in a clinical trial, the procedures and equipment needed as part of its conduct, the oversight and governance needed to ensure that things are done... Continue Reading →

A few more ‘£s’ and I’ll be opening my own Wellcome Collection…just keep those surveys coming

If only petrol was as plentiful a resource as public attitudes.  There is no end to the extent to which we can mine what the public thinks about this, or that. Occasionally a survey will hit a rich seam of information and insight.  Then again, so numerous are those who are drilling into the public mindset nowadays, that I... Continue Reading →

National Voices have published an excellent briefing on what the Health and Social Care Act (which received Royal Assent today) means for public involvement in care.' And how we need to actively follow-up with the new NHS structures and bodies established by the legislation to ensure they keep to the letter of the law.  Read... Continue Reading →

Social media and medical research, a story from Oz

I am in international mood today.  From the United States to Australia.  Unfortunately not via Hawaii. This was sent to me this morning and it's basically a report of a paper appearing in the Journal of Internet Medical Research about the viability of using social media in medical research. Interesting snapshot discussion around the pitfalls - i.e.... Continue Reading →

The duty falls on all of us to issue that wake-up call to the NHS about its research mission

Last week, medical research charities among others hailed a series of Government amendments made to the Health and Social Care Bill.  These place 'a strong duty across the Secretary of State, the NHS Commissioning Board and Clinical Commissioning Groups to promote research and the use of research evidence.' The amendments are in response to persistent lobbying; their... Continue Reading →

I’ve got a pile of irony to do tonight – from Scottish independence to NHS reform

On my train journey from Edinburgh this morning, I listened to a BBC Radio Scotland phone-in about the implications of Scottish independence.  The intricacies of a possible de-coupling from the UK are fascinating - from the economy to people's pensions, to the NHS. I've yet to read an article written specifically about the pros and cons... Continue Reading →

Share your experience of public involvement in research: INVOLVE 2012 Conference call for presentations

  Doing this remotely so apologies if this doesn't work/come out very well: INVOLVE 2012: Putting people first in research Conference call for presentations is now open Our eighth biennial INVOLVE conference will take place on 13th and 14th November 2012 at the East Midlands Conference Centre in Nottingham. The conference will bring together members of the public, service users, researchers, research... Continue Reading →

Neurological Alliance issues wake-up call to Government and NHS over neurology services

The Neurological Alliance which represents over 70 charities in the field has wheeled out its big guns today to highlight the lack of preparedness across the NHS to meet the needs of increasing numbers of people with neurological conditions. It really is wheeling out its big guns such as Steve Ford at Parkinson's UK and... Continue Reading →

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