One of the things I feel incredibly fortunate about in doing my role is that people send me all sorts of interesting papers, articles, videos and other stuff. I do get round to looking at them all, although it can take me a bit of time. More often than not something will bubble to the surface … Continue reading A new paper on ‘involving people with intellectual disabilities’ in the STOP #diabetes study holds lessons for us all
public involvement in adult social care
Today’s public involvement in health research t-shirt
I didn't know this but, apparently, the word 't-shirt' does not just refer to the summer garment. It can also be used to describe a very brief 'blog posting.' There, I bet you feel better for knowing that? Anyway, here's my washed, cleaned and ironed t-shirt for today. Later this afternoon I am speaking to … Continue reading Today’s public involvement in health research t-shirt
INVOLVE launches new benefits advice service for public involvement in NIHR research @NIHRINVOLVE #ppibenefitsadvice
This is an important and timely intervention by INVOLVE to ensure people get the right advice and support about how payment of fees and expenses for their public involvement in NIHR might affect their receipt of state benefits. Please read the following for more information on how this service will operate. With thanks to our … Continue reading INVOLVE launches new benefits advice service for public involvement in NIHR research @NIHRINVOLVE #ppibenefitsadvice
The art of lay reviewing in health research: some pointers
A little while ago someone suggested that I write something about my approach to lay reviewing in health research. Not so much a 'how to' guide as there are lots of these and very good they are too. More, an insight into the questions I ask myself when forming an opinion on an application for … Continue reading The art of lay reviewing in health research: some pointers
What have people told us about public involvement in research?
Yesterday INVOLVE hosted a meeting of about 100 public involvement leads from across the National Institute for Health Research (NIHR). There are probably nearer 200 in total across the NIHR family.This was the first time that we have ever been able to bring together people in this way. A powerful milestone.This link will take you … Continue reading What have people told us about public involvement in research?
NIHR announces strategic review of public involvement in research #PPIBreakingboundaries
The following official announcement has just been posted on the NIHR website with links to the terms of reference and initial submission document. I say 'initial' because there will be others ways in which you can contribute to the review over the next few months. I am very excited that NIHR has commissioned this exercise … Continue reading NIHR announces strategic review of public involvement in research #PPIBreakingboundaries
INVOLVE cleans-up on standards for public involvement in research
The debate about standards for public involvement in research is an important one. As a community we are growing in number by the day. So is the range of activities that we are involved in. And the number of organisations we are part of. The resulting variety is rich and exciting. There are those of us who … Continue reading INVOLVE cleans-up on standards for public involvement in research
NIHR gives ‘chapter one and verse’ on patients and the public in research: 2012/13 annual report published
Forgive me. For once, I write with a semi-official hat on. But this afternoon feels like a bit of a milestone moment in lifting public involvement in research ever higher on people's agendas. If you have heard me speak in public then you will know I start by saying how proud I am that the … Continue reading NIHR gives ‘chapter one and verse’ on patients and the public in research: 2012/13 annual report published
New webinar series on public involvement in adult social care @NIHRINVOLVE @OfficialNIHR
This is for the mods and rockers among you who spent the last week at the seaside and missed the twitter announcements.... Great to see this focus on public involvement in social care. ‘Get all sides of the story’: public involvement and participation in adult social care research The NIHR School for Social Care Research … Continue reading New webinar series on public involvement in adult social care @NIHRINVOLVE @OfficialNIHR
Simon Denegri's Lay Review 