NIHR launches new poster campaign on public involvement in research #twosides @OfficialNIHR @NIHRINVOLVE

The UK National Institute for Health Research (NIHR) has launched a striking new poster campaign entitled #twosides to raise awareness of the importance of patients and the public to making health and social care research happen. There are three posters to choose from in the series and you can download or order posters here. These… Read More NIHR launches new poster campaign on public involvement in research #twosides @OfficialNIHR @NIHRINVOLVE

Blog: some mental health research items inc. a new young person’s group being formed @McPinFoundation

If you follow me on Twitter (@SDenegri) you might notice that I regularly RT the work of the McPin Foundation which exists to ‘transform mental health research by putting the lived experience of people affected by mental health problems at the heart of research methods and the research agenda.’ It’s a fabulous organisation. Prior to Christmas they… Read More Blog: some mental health research items inc. a new young person’s group being formed @McPinFoundation

Seeing the patient and carer behind the many faces of ill-health #multimorbidity @JLAageing @OfficialNIHR @EngageFMS

Last week I attended a National Institute for Health Research (NIHR) workshop on older people with complex needs.  The more common term used in medical and scientific circles for ‘complex needs’ is ‘multi-morbidity.’  Which means suffering from two or more conditions at the same time. But I prefer the former term. As statistics from the Office… Read More Seeing the patient and carer behind the many faces of ill-health #multimorbidity @JLAageing @OfficialNIHR @EngageFMS

A new paper on ‘involving people with intellectual disabilities’ in the STOP #diabetes study holds lessons for us all

One of the things I feel incredibly fortunate about in doing my role is that people send me all sorts of interesting papers, articles, videos and other stuff.  I do get round to looking at them all, although it can take me a bit of time. More often than not something will bubble to the surface… Read More A new paper on ‘involving people with intellectual disabilities’ in the STOP #diabetes study holds lessons for us all

A lab-based environment should be no barrier to public involvement in research #userinvolvment

I am often asked whether it is difficult – if not impossible – to involve the public in laboratory based research where researchers have limited or no direct contact with patients and the public. My answer is that it might be difficult but it can be done. And the benefits can be significant.  The real challenges… Read More A lab-based environment should be no barrier to public involvement in research #userinvolvment

Blog: Being a Chair and why patients are just as good at it #researchgovernance

A head-hunter has written to me this morning – as they have to many others no doubt – asking whether I know of any good ‘research’ candidates to Chair a panel looking at research into patient and family experience. My first thought? To ask why the client thinks it’s vital for someone with research experience… Read More Blog: Being a Chair and why patients are just as good at it #researchgovernance

Blog news: Life sciences giants join forces to promote young people’s involvement in health research

Some of the leading life sciences organisations in the UK have joined forces to issue a ‘statement of aspiration’ about the involvement of young people in research saying: ‘Collaboration between young people and commercial researchers should become an established and normal way of working. Learning from this collaboration should be actively translated wherever possible to… Read More Blog news: Life sciences giants join forces to promote young people’s involvement in health research