Seeing the patient and carer behind the many faces of ill-health #multimorbidity @JLAageing @OfficialNIHR @EngageFMS

Last week I attended a National Institute for Health Research (NIHR) workshop on older people with complex needs.  The more common term used in medical and scientific circles for ‘complex needs’ is ‘multi-morbidity.’  Which means suffering from two or more conditions at the same time. But I prefer the former term. As statistics from the Office… Read More Seeing the patient and carer behind the many faces of ill-health #multimorbidity @JLAageing @OfficialNIHR @EngageFMS

A new paper on ‘involving people with intellectual disabilities’ in the STOP #diabetes study holds lessons for us all

One of the things I feel incredibly fortunate about in doing my role is that people send me all sorts of interesting papers, articles, videos and other stuff.  I do get round to looking at them all, although it can take me a bit of time. More often than not something will bubble to the surface… Read More A new paper on ‘involving people with intellectual disabilities’ in the STOP #diabetes study holds lessons for us all

A lab-based environment should be no barrier to public involvement in research #userinvolvment

I am often asked whether it is difficult – if not impossible – to involve the public in laboratory based research where researchers have limited or no direct contact with patients and the public. My answer is that it might be difficult but it can be done. And the benefits can be significant.  The real challenges… Read More A lab-based environment should be no barrier to public involvement in research #userinvolvment

Blog: Being a Chair and why patients are just as good at it #researchgovernance

A head-hunter has written to me this morning – as they have to many others no doubt – asking whether I know of any good ‘research’ candidates to Chair a panel looking at research into patient and family experience. My first thought? To ask why the client thinks it’s vital for someone with research experience… Read More Blog: Being a Chair and why patients are just as good at it #researchgovernance

Blog news: Life sciences giants join forces to promote young people’s involvement in health research

Some of the leading life sciences organisations in the UK have joined forces to issue a ‘statement of aspiration’ about the involvement of young people in research saying: ‘Collaboration between young people and commercial researchers should become an established and normal way of working. Learning from this collaboration should be actively translated wherever possible to… Read More Blog news: Life sciences giants join forces to promote young people’s involvement in health research

Blog: Have you ever knowingly been oversold PPI in research? Then, there’s help at hand #howtoinvolve

I didn’t think so. Do you get those nagging calls about PPI? It’s usually early evening. Sometimes it is a recorded voice message. Sometimes a text. Very occasionally it is a real person from the unreal environment of a call centre. Unfortunately they are all contacting me about that other PPI – yes, Payment Protection… Read More Blog: Have you ever knowingly been oversold PPI in research? Then, there’s help at hand #howtoinvolve