Yes, we are positively swimming in data these days. And I don't about you, but I'm looking forward to doing some data-linkage with family and friends over Christmas and the New Year. From a Government point of view, making best use of the data which is routinely collected by departments, public agencies and others, linking … Continue reading Data, data everywhere…new report, plus NIHR’s achievements in 2012
NIHR
Prof Dame Sally Davies (CMO) talks about science communications, the media and public involvement
Rather than just tweet this as a link, I thought some background was needed. This is a ten minute extract of a much longer interview I did with Professor Sally Davies, Chief Medical Officer and Chief Scientific Officer at the Department of Health. The interview came at the beginning of a two-day NIHR training camp … Continue reading Prof Dame Sally Davies (CMO) talks about science communications, the media and public involvement
Cancer patient experience survey results show variations in access to clinical trials and research
The results of the annual cancer patient experience survey are out today. For those of us committed to improving patient access to clinical trials and other research, this year's report is particularly interesting. As far as I know, this is the first year that the survey asked patients whether taking part in research had been discussed … Continue reading Cancer patient experience survey results show variations in access to clinical trials and research
Clinical trials activity report for England highlights progress but much work still to be done
The National Institute for Health Research (NIHR) CRN CC has today published its clinical research activity report for the final quarter of 2011/12. Some of the data and a good summary of what they mean is also available on The Guardian website. Last year was the first that this sort of information was made widely available. So … Continue reading Clinical trials activity report for England highlights progress but much work still to be done
Survey raises questions over NHS research
So it was an early start for me today, doing radio interviews for International Clinical Trials Day today. I'll post the links to one or two when available. Here's the press release from NIHR CRN which was the news peg for the interviews. NEWS RELEASE TEXT (HEADLINE AS ABOVE) The results of a new survey, published on … Continue reading Survey raises questions over NHS research
The Academy reports on research regulation…and a reminder of the Guardian’s Q&A about public involvement
The Academy of Medical Sciences (AMS) today published its report of the meeting it held a few months ago, looking at progress with improving the regulatory of environment for medical research. I blogged about being a panellist at the meeting as you may recall. The report's conclusions are noteworthy for the second bullet point about public … Continue reading The Academy reports on research regulation…and a reminder of the Guardian’s Q&A about public involvement
We need more than better chat-up lines to increase participation in research
'Pedestrian freight.' It is a term I had not come across until last week. I believe it is the phrase once used inside train companies to describe you and I, the commuters who throng with fortitude through our stations up and down the land every day. Perhaps it still is, I don't know. Such 'internal' phrases can … Continue reading We need more than better chat-up lines to increase participation in research
DH and charities reach acoRD over medical research costs
Divvying up the costs of conducting research in the NHS funded by medical research charities is an intricate business. Who pays for that research nurse, their time in administering the extra treatment required in a clinical trial, the procedures and equipment needed as part of its conduct, the oversight and governance needed to ensure that things are done … Continue reading DH and charities reach acoRD over medical research costs
NHS research up close and personal: ‘Research People’ site tells the stories behind the story
Returned from half-term leave today thinking that I might write about the latest Care Quality Commission (CQC) patient experience survey. After a while looking at the results I began to think: is there a good reason why there isn't a patient 'out of body experience' survey conducted and published? It might come closer to the … Continue reading NHS research up close and personal: ‘Research People’ site tells the stories behind the story
BMJ talks tough on clinical trial data and the public interest
The BMJ publishes several papers today looking at the harm being done to research, patient care and the public interest by the incomplete disclosure or withholding of clinical trial data. Click here for the BMJ's editorial written by Dr Richard Lehman from Oxford University and the journal's clinical epidemiology editor Dr Elizabeth Loder. An example of the … Continue reading BMJ talks tough on clinical trial data and the public interest
How’s your NHS Trust doing in the research league tables? Is Leeds the Man City of NHS Research? Does Bridgewater deserve the hairdrier treatment?
So NIHR CRN CC/The Guardian have today published a league table of how each NHS Trust is performing in research as defined by the number of research studies and the number of patients taking part. I believe this is the first time such a table has been compiled and a thoroughly good thing it is … Continue reading How’s your NHS Trust doing in the research league tables? Is Leeds the Man City of NHS Research? Does Bridgewater deserve the hairdrier treatment?
In defence of the clinical trial patient: a health research ombudsman?
Over a half a million members of the British public took part in clinical trials through the NIHR Clinical Trials Research Networks in 2010, a 24% increase on the year before. Those are the Government's figures, not mine. Last week's 'life sciences' announcement included a range of measures to increase patient recruitment to trials. These include … Continue reading In defence of the clinical trial patient: a health research ombudsman?
NHS research culture awards
Given my post yesterday I am delighted to congratulate Tees, Esk and Wear Valleys NHS Foundation Trust on winning the Health Service Journal's (HSJ) first ever research culture award last night. The full list of winners and highly commendeds is as follows: Winner: Tees, Esk and Wear Valleys NHS Foundation Trust Highly Commended: Portsmouth Hospitals … Continue reading NHS research culture awards
You cluster if you want to…the single most important translational gap in UK clinical research today
A colleague of mine put up two slides at a meeting today which neatly encapsulated for me the key strategic - perhaps translational gap - in uk clinical research right now. On the demand side, the first showed the key results from the Association of Medical Research Charities (AMRC) commissioned MORI poll of public attitudes … Continue reading You cluster if you want to…the single most important translational gap in UK clinical research today
Manning and crowd weigh in on NHS reforms at the eleventh hour
Goodness me the nation's health must be in peril if the Royal Colleges have kicked off their slippers and downed their pipes to emerge like Dad's Army into the affray about the NHS reforms. All seems to rest now on those of their number who reside in the Upper House. How peculiarly English but ultimately unsatisfactory … Continue reading Manning and crowd weigh in on NHS reforms at the eleventh hour
Cancer Research UK does not have all the answers..and that’s an invitation to the rest of us
I see that Cancer Research UK last week put out a press statement about the need for the UK to have strategic vision for medical research. You can find further details on their blog and they also issued a document entitled 'Building the Right Environment for Medical Research.' Thoughtfully the announcement and document have been … Continue reading Cancer Research UK does not have all the answers..and that’s an invitation to the rest of us
From I Claudius to iLansley…phone apps in the new NHS
The summer break has clearly done the Secretary of State for Health, Andrew Lansley, a world of good. From beating a lone path as the libertarian Claudius in the face of a centralised health service, he has resurfaced this week as the man for all seasons to launch a competition for the best ideas for … Continue reading From I Claudius to iLansley…phone apps in the new NHS
From peer review to clinical trials
So there I was this morning talking about peer review, when what should come through the Ovarian Cancer Action letterbox but our certificate of best practice from the Association of Medical Research Charities (AMRC) for our peer reivew practices. It's great to have this 'quality-mark' for all that we do as a research funder. If … Continue reading From peer review to clinical trials
Rising cancer rates and the NHS reforms…plus NIHR and ‘impact’
I suspect you have seen today's news bulletins covering Macmillan Cancer Support's report predicting a significant rise in the number of people who will get cancer. To quote the opening lines of their statement today: Cancer rates are increasing at such a rate that research shows 42% of people who die in this country will … Continue reading Rising cancer rates and the NHS reforms…plus NIHR and ‘impact’
Government gets the message on research in NHS reforms
From the NIHR website today following the Government's response to yesterday's publication of the NHS Future Forum conclusions. A real result as far as I can see with regard to excess treatment costs as well as the strengthening of the duties and responsibilities to promote research in different parts of the NHS structure. Very good … Continue reading Government gets the message on research in NHS reforms
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