Let’s follow #DryJanuary with a concerted effort to research patient priorities in alcohol-related liver disease @LindAlliance

This blog by me was first published on the National Institute for Health Research (NIHR) prior to Christmas to coincide with the publication of the James Lind Alliance Priority Setting Partnership on alcohol-related liver disease. But yesterday’s report by Public Health Wales showing that thousands of people who die from alcohol related problems had no… Read More Let’s follow #DryJanuary with a concerted effort to research patient priorities in alcohol-related liver disease @LindAlliance

Blog: some mental health research items inc. a new young person’s group being formed @McPinFoundation

If you follow me on Twitter (@SDenegri) you might notice that I regularly RT the work of the McPin Foundation which exists to ‘transform mental health research by putting the lived experience of people affected by mental health problems at the heart of research methods and the research agenda.’ It’s a fabulous organisation. Prior to Christmas they… Read More Blog: some mental health research items inc. a new young person’s group being formed @McPinFoundation

Prevaricare is a new care service coming to you very soon. But don’t wait in. 

If you have read my last two blogs – and if you have, thank you – then you will know I have been sharing some of my family’s experiences of health and social care over the last six months. Now that my father is home following his stroke we have entered a whole new chapter… Read More Prevaricare is a new care service coming to you very soon. But don’t wait in. 

‘Risk is in the eye of the beholder’ and other patient stories not to be swatted

Fighting is for fundraisers I won’t be the first or the last person to remark on the misappropriation of fighting talk when discussing ill-health. We don’t ‘fight’ cancer, dementia, the aftermath of a stroke or mental I’ll-health. No, what we actually do is fight all the things around it. We fight to get to see… Read More ‘Risk is in the eye of the beholder’ and other patient stories not to be swatted

Any notions that power shifted massively to patients in 2016 are a fantasy worthy of a snow globe, take it personally from me

I was digging about in my garage the other day and found an old snow globe. I am afraid I have always found these ornaments – the mainstay of souvenir shops across the world – something of a disappointment. Give them a good shake and there’s a briefly pleasing fall of artificial snow before it… Read More Any notions that power shifted massively to patients in 2016 are a fantasy worthy of a snow globe, take it personally from me

The Twelve Days of Christmas….public involvement in research style #HaPPIChristmas

To the tune of….it just about works with some sherry or a shot of caffeine… On the twelfth day of Christmas my true love sent to me: More health research All research published Easy public access Patient insight valued Patient need prioritised   Patient outcomes measured Training and help given A BOLD PPI strategy…….. Don’t forget… Read More The Twelve Days of Christmas….public involvement in research style #HaPPIChristmas

Behind the headlines: New Dementia Research Institute involves people with dementia and carers from the start

If you are anywhere near a radio or television today then it is likely you will hear about the new UK Dementia Research Institute which is being created to step up the fight against dementia. The £250M Institute – a partnership between the Medical Research Council (MRC), Alzheimer’s Society and Alzheimer’s Research UK – will… Read More Behind the headlines: New Dementia Research Institute involves people with dementia and carers from the start