‘I’m sorry Simon,’ wrote a colleague in a group email in the friendliest of ways, ‘but you are not a patient advocate.’ Well, that was 25 years of my life well-spent then, I said to myself. I knew what they meant though. That the NIHR badge I wear, my role, goes before any lived experience… Read More I really must apologise for being a PPI professional. No, really I must it seems.
We have all become obsessed with strategies and plans of one sort or another don’t you think? Thinking them, making them, writing them, hiding behind them. And no sooner than a strategy is in place than some bright spark (like a bloody National Director) suggests a strategic review or the like? A review of nothing… Read More How to give your public involvement in research a Spring clean? And the value of ‘stuff.’
First, the positive. Last week the Medical Research Council (MRC) announced that Professor Andrew Morris had been appointed Director of the new UK health and biomedical informatics research institute. Why should this matter to you and I? Because this is the second occasion in less than six months when a senior research leader in the UK… Read More Could the new Life Sciences Strategy be a bit too Basic for the UK’s needs?
Yesterday the Lancet published a study by Mona Nasser, Mike Clarke, Iain Chalmers and others looking at how well eleven international research founders are doing to reduce waste in research. This follows a series of articles by Chalmers et al over the last couple of years on the same issue. The study scored funders using… Read More Lancet study puts NIHR top of the intl league table for health research in the public interest inc. public involvement @TheLancet
Last week I was sent a research application to look at. The proposal was complex. I read the lay summary once. I read it twice. In fact, I read it three times. I was still none the wiser. I realised that all the jargon, terminology, clauses and sub-clauses in the scientific overview had been condensed into… Read More Monday musing: Is ‘likeness’ or ‘character’ more important when writing a lay summary in research? #sciencecommunication
The National Institute for Health Research (NIHR) together with its Welsh equivalent, Health and Care Research Wales, have joined forces to launch a project to develop standards for public involvement in research. The Public Involvement Standards Development Partnership has a website which went live today where you can learn more and sign up to be… Read More Flying the ‘standards’ for public involvement in health research: new initiative launched. Sign up here. @OfficialNIHR @NIHRINVOLVE @ResearchWales #ppistandards
This week saw a great editorial by Angela Coulter in the British Medical Journal (BMJ) headlined ‘Measuring what matters to patients.’ The underlying story may be summed up as follows. The effectiveness of the care or medicines you and I receive every day has been decided by measuring the things that health professionals and researchers have decided are important. Some of these ‘measures’… Read More When patients help bridge the knowledge gap in health research #clinicaltrials #whywedoresearch #PROMs