Should we have a meaningful vote on the definition of public involvement in health research?

Should we have a meaningful vote on the definition of public involvement in health research? Better still a series of indicative votes to find the most preferred definition? Perhaps it would be simpler to go to the polls on revoking the INVOLVE definitions we have grown to love (or hate, depending on your point of... Continue Reading →

New guidance on what it is to be a public co-applicant in research launched by @NIHRINVOLVE @HRA_Latest and @NHSRDForum

According to the recent national survey of people's experiences of being involved in National Institute for Health Research (NIHR)*, one in five patients, carers and members of the public told us they had been a 'co-applicant' in research. An equivalent number described themselves as being a 'member of a research team.' As a member of... Continue Reading →

A view about the health secretary’s announcement on healthy volunteers and DNA tests

Quite a few of Saturday's papers covered the health secretary's announcement that he wants the NHS to offer healthy 'volunteers' the option of paying to have their DNA analysed. The goal is to recruit 5 million volunteers resulting in masses of data which can be used by researchers to further understanding and develop new treatments.... Continue Reading →

While you were away…..10 things you may have missed in public involvement in health research since last year!

A Happy New Year. Here are ten things you may have missed while away. Or could possibly miss over the next 12 months if you don't know about them now! The NHS Long-Term plan (#NHSLongTermPlan). It's being published tomorrow. Complete with a section on research and innovation that will encompass a focus on public engagement... Continue Reading →

Public involvement is beset by headless chicken syndrome in too many organisations

Last week I trundled up to Leeds for a conference about patient data. Hosted by Health Data Research UK, the National Institute for Health Research (NIHR) and NHS Digital it brought together patients and carers, data scientists, researchers, health professionals and managers for a discussion about the future of data-driven health research. The conference started... Continue Reading →

National Feedback Survey: What’s it like being involved in NIHR research? #MyNIHRfeedback

National Feedback Survey: What’s it like being involved in NIHR research? #MyNIHRfeedback What has been your experience of being involved in NIHR research? If you are a patient, carer, service user or member of the public who has been involved in our work then NIHR would like to know. You may have helped design a... Continue Reading →

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