Since my Mum became a full-time carer to my Dad, our family has become more attuned to the plight of carers. Not least the degree to which their needs go unmet in our increasingly overstretched health and social system. The ‘blind eye’ has extends to research to a degree. After all, we talk about research… Read More New NIHR Report highlights importance to health research of carer experience #carersinresearch @OfficialNIHR @CarersUK
Last week the Right Reverend James Jones KBE published his report ‘The patronising disposition of unaccountable power: A report to ensure the pain and suffering of the Hillsborough families is not repeated.’ It was commissioned by the Prime Minister, Theresa May, when she was Home Secretary so that the perspectives of the Hillsborough families would… Read More Comment: We can all learn from the Hillsborough tragedy including medical research. #unaccountablepower
I have met many people along the way this past week who have told me their story. Like the old man who waited with me at the bus stop near my home. He wore tracksuit bottoms and a crumpled open-neck short beneath a thin raincoat. I noticed he had no socks on and that the… Read More ‘A blind man led me to my destination’ and others stories in public involvement by medical research charities @CR_UK @AutisticaUK @AMRC #OnTheFrontFoot
24th October 2017 INVOLVE APPOINTS NEW CHAIR OF ADVISORY GROUP INVOLVE – the NIHR Co-ordinating Centre for the promotion and advancement of public involvement in health research – is delighted to announce the appointment of Tina Coldham as the new Chair of its Advisory Group. Tina is a mental health service user, research reviewer and survivor… Read More Congrats to @TinaColdham on her appointment as @NIHRINVOLVE Advisory Group Chair – news release #publicinvolvement
It was all going so well. My fears of spending eight hours on a budget airline from Ottawa to Nice were quickly subsiding. The plane was half-full. No one was sitting next to me. I could spread my things out. More importantly I could get to the loo at will. Most of my fellow passengers… Read More Blog: An incident at 40,000 ft over the Atlantic highlights the perils of ‘evandigitalism’ in health care #digitalhealth
You can now find a storify of the tweet chat mentioned below that took place a few weeks ago here. Not since Grolsch bottle tops on shoes (younger readers may have to look this up) have we seen a craze like this sweep the nation. Everywhere you go people are talking about ‘co-production.’ But… Read More What is co-production in research? New draft guidance, tweetchat storify #Qcopro
September is World Alzheimer’s month and the National Institute for Health Research (NIHR) is running a campaign called ‘Remember Me’ in which they are asking people on World Alzheimer’s Day, 21st September to share on social media a favourite photo and short message that captures how they would like to be remembered. There’s also a… Read More My ‘Remember Me’ for World Alzheimer’s Day – #beatdementia #WorldAlzMonth Please join in.