Any notions that power shifted massively to patients in 2016 are a fantasy worthy of a snow globe, take it personally from me

I was digging about in my garage the other day and found an old snow globe. I am afraid I have always found these ornaments – the mainstay of souvenir shops across the world – something of a disappointment. Give them a good shake and there’s a briefly pleasing fall of artificial snow before it… Read More Any notions that power shifted massively to patients in 2016 are a fantasy worthy of a snow globe, take it personally from me

The Twelve Days of Christmas….public involvement in research style #HaPPIChristmas

To the tune of….it just about works with some sherry or a shot of caffeine… On the twelfth day of Christmas my true love sent to me: More health research All research published Easy public access Patient insight valued Patient need prioritised   Patient outcomes measured Training and help given A BOLD PPI strategy…….. Don’t forget… Read More The Twelve Days of Christmas….public involvement in research style #HaPPIChristmas

Behind the headlines: New Dementia Research Institute involves people with dementia and carers from the start

If you are anywhere near a radio or television today then it is likely you will hear about the new UK Dementia Research Institute which is being created to step up the fight against dementia. The £250M Institute – a partnership between the Medical Research Council (MRC), Alzheimer’s Society and Alzheimer’s Research UK – will… Read More Behind the headlines: New Dementia Research Institute involves people with dementia and carers from the start

Science Select Committee looks to public to set its agenda #MyScienceInquiry

Let’s hear it for the House of Commons Science and Technology Select Committee. In fact I take back all the things I was thinking a few weeks ago (probably unfairly) about it being ponderous, having too many on-going inquiries (16 at the moment  I think) and only ever hearing from the great and the good. The Committee… Read More Science Select Committee looks to public to set its agenda #MyScienceInquiry

PPI-nch, punch, 1st day….science has pulled a £2bn rabbit out of the hat. Now it must involve its citizens to spend it where it’s needed. 

Pinch, punch, first day of the month. What better day to celebrate some ‘firsts’ that we have seen in public involvement and engagement this week? To begin with, the excellent ‘Patients First’ conference on Monday hosted by the Association of Medical Research Charities (AMRC) and the Association of the British Pharmaceutical Industry (ABPI). It’s the… Read More PPI-nch, punch, 1st day….science has pulled a £2bn rabbit out of the hat. Now it must involve its citizens to spend it where it’s needed. 

Today would be a good day to walk under Arnstein’s ladder of citizen participation.

I had a dream this week about Sherry Arnstein’s ‘Ladder of Citizen Participation.’ As you do. Her ladder stood in a puddle of salty tears. It’s top disappeared into the clouds. Like the ladder in ‘Reach for the Sky.’ I had reached the rung labelled ‘Consultation.’ For weeks I had been waiting there, with no… Read More Today would be a good day to walk under Arnstein’s ladder of citizen participation.

No democracy without evidence, no evidence without democracy #evidencematters @senseaboutsci #Brexit #Election2016

Democracy and all who sail with her have been getting a fair old battering. Another storm blew in with yesterday’s US Election results. ‘Democracy is in tatters’ I heard one commentator say. What rubbish. Democracy has served up exactly what we have designed it to do. That design may be imperfect but we have only… Read More No democracy without evidence, no evidence without democracy #evidencematters @senseaboutsci #Brexit #Election2016