Polonius: [Aside] Though this be madness, yet there is method in’t. Hamlet Act 2, scene 2, 193–206 If you are in some way connected to public involvement in health research then you get used to ‘the look.’ Sometimes it’s a vacant stare or a gaze falling slowly across the face like the sun going down. In other instances… Read More There is indeed method in our ‘madness’ – being METHODICAL about public involvement
I thought this was worth sharing…. The University of Leeds, Future Learn, National Institute for Health Research Clinical Research Network (NIHR CRN) and the CPD Certification Service have launched a free online course about how clinical research works. And it’s going hot cakes with 8000 people having already signed up since its launch on 3nd… Read More Opening up clinical research to the masses – new online learning course
Public dialogue exercises can come across a bit like the public engagement version of a ‘lock-in.’ They are undoubtedly enjoyable – for all concerned including the participants. However, there can be a feeling that people are being force-fed information until they recant their ways! That said, this tool (of choice, for many) is a useful way of exploring people’s views on issues in-depth and over… Read More Babraham Institute pins down public attitudes to basic science
Just been reading the Nurse Review of the Research Councils which was delivered to the Government this week a bit like your newspaper is delivered to your hotel room, silently and under the door. The Review’s terms of reference are admittedly narrow. But you’ve got to wonder about a Review: Where half the Foreword is… Read More For what it’s worth: a few brief one-liners on the #NurseReview
We are a ‘nation of shopkeepers.’ So said Napoleon (allegedly), disdainfully about the English, twisting the words of the political philosopher, Adam Smith. You could be forgiven for saying the same about public involvement in research. Sometimes it feels as if the ‘advisory group’ – in all its guises – has become ubiquitous across health… Read More Blog: How do we stop public involvement in research from becoming a ‘nation of advisory groups?’
What a shame that the Economic and Social Research Council (ESRC) has pulled the plug on the LIFE study. See: http://www.theguardian.com/society/2015/nov/01/life-study-esrc-cancelled-mothers-ethnic-recruitment Also: http://www.nature.com/news/massive-uk-baby-study-cancelled-1.18650 Launched only last year, the aim of this research was to recruit thousands of mothers and collect data about their babies as they grew up. Such work is really important in helping… Read More Research is for LIFE not just for….
Having sensibly bought itself another 6 months to do the work, last week the Government’s ‘Accelerated Access Review’ published its half-term report. Headed by Sir Hugh Taylor the review is looking at how to get new treatments and technology in the hands of patients quicker. It is an important review and all the better for… Read More The Govt’s Accelerated Access ‘Innovation’ Review: mid-term report @AccelAccess #medtech
It’s good to see public engagement get the attention it deserves in the academic press at last. This includes getting journals of its own. There are now two. Research for All: Universities and Society is a new journal I am involved in which is looking at the role public engagement (note this is the term… Read More New ‘Research for All’ engagement journal and #PPIpublishing tweet chat coming up
Rarely a week goes by without the news reporting that archaeologists have found skeletal remains or cave paintings which tell us something new about the evolution of man. Each finding, we are told, means we must readjust our thinking about how we have developed as a species. From the moment we first walked, to that… Read More What’s your earliest memory of public involvement in research?
This week I am doing some talks in Perth, Western Australia. This evening I spoke at an event hosted by ‘Involving People in Research’ based at the University of Western Australia. They and their leader, Anne McKenzie, have rightly gained an international reputation for their leading work in public involvement which goes back to 1998.… Read More Public involvement: let’s speak honestly, we may need to lose some baggage to face the future
Question: How many patients does it take to change a lightbulb? Answer: No one knows, they are so rarely asked. The irritating thing is that even when patients are asked to change a lightbulb, they are not given the help and support to do it effectively. It’s a bit like asking someone to change one… Read More ‘How many patients does it take to change a lightbulb?’ Time to get serious about learning and development in public involvement
It’s high time we got over it. Pretending it doesn’t go on is foolish. Suspecting the worst every time they come near to one another is energy-sapping. No one is trying to deny history. But we are in danger of denying others a future if we continue to stand in their way. I mean, of… Read More Excellent new guidance published to help charities and pharma work together with the public’s trust @ABPI_UK @NVTweeting
Experts have warned that it could be one of the most dangerous developments of modern times. Scientist Imnot Kidding told the BBC today: ‘I can’t emphasise how frightening the future could become if we allow patients to think for themselves. They have all the data we need to outsmart us in the future, to literally… Read More Blog: We are with you, robots. Patient Intelligence has often been branded dangerous too.
I am in Helsinki, Finland, for a few days this week, sitting on a review panel for the ‘Joint Programme – Neurodegenerative Disease Research.’ It is the first time that this programme has involved patients in its review process for funding research so it feels a bit of a milestone moment. This, after twelve months, of… Read More Patients and researchers – sparring partners not hostile combatants
Making sure that research funded by the NIHR, charities and industry reflects the needs and priorities of patients, carers and the public is one of the most important agendas in public involvement. It has been a focus for much activity over the years with the outstanding James Lind Alliance (JLA) Priority Setting Partnerships (PSPs) being the… Read More NIHR revamps another route for patients, carers and the public to submit their ideas for research
Yes, wouldn’t it be great if the BBC did indeed launch ‘Science in Need?’ Then, for the first time in history, we could have a public broadcaster encouraging us to ‘SIN’ and be SINNERS with our donation to science. There is something rather beautiful but perhaps also tendentious about the juxtaposition of yesterday’s launch of the BBC’s new… Read More What next for the BBC: ‘Science in Need?’ #BBC #sciencefunding
Over the summer you may have caught the hullabaloo about Benedict Cumberbatch and his Hamlet currently playing at the National Theatre in London. Part of the fuss was caused by the Director’s decision to move Hamlet’s famous ‘To be or not to be’ soliloquy to the beginning of the play. To have poor old Benedict… Read More To be NIHR, or not to be, that is the question (but not a research one).
This time last week I was in France eating baguette and cheese and drinking red wine. Today it’s a tuna sandwich and packet of Hula Hoops. Yes, like many others in the UK’s version of France’s ‘La rentree,’ I am returning to work with a bump. A little later I am off to NHS Expo. It’s the… Read More Public involvement can appear like a foreign country to colleagues. Let’s make it a land they want to come back to.
Herewith a copy of the announcement that you will also find on the National Institute for Health Research (NIHR) and INVOLVE websites to day about the award of the new INVOLVE contract. This means INVOLVE now enters its second decade of being fully funded by the NIHR and the only such body of its kind… Read More Announcement of new contract for @NIHRINVOLVE awarded to the University of Southampton
The Wellcome Trust have this morning put out the results of a very interesting study about public understanding of antibiotic resistance. The research by Good Business found that people struggle with what the term ‘antibiotic resistance’ means, and are more comfortable with alternative terms such as “drug-resistant infections” or “antibiotic-resistant germs.” Also that, because of the… Read More We need to get personal about ‘antibiotic resistance’ if we want the public to help fight infection @wellcometrust