New stuff!..Dementia ‘infokit’, ‘Building Research Partnerships,’ CLAHRC Q&As, AHSNs and ABPI

Top initiatives today..... Care to learn to care better.   The NIHR Dementia & Neurodegenerative Diseases Research Network (DeNDRoN) today launched their new 'Patients in Research' infokit.  It's an excellent free resource showcasing work from across health and social care, stories, ideas, tips and tools.  This great piece of kit is all part of a larger effort... Continue Reading →

Comment: The Sherpa’s story and its relevance to public involvement in health research

I am indebted to a good friend and colleague of mine who, some time ago, sent me this BBC News story from last year.  It reports on the rising concerns among Himalayan Sherpas about the lack of regard being shown towards their needs and the environment as scientists tromp all over the local geography.  To the... Continue Reading →

The NHS Commissioning Board Draft Mandate and patients in health research

The Shard went up (officially).  And the NHS Commissioning Board Draft Mandate came down from on high.  All on the same day.  Add the odd torrential downpour with its associated misery and these could be Biblical times. I have come to the conclusion that it is my fate to be locked away somewhere remote and with an intermittent... Continue Reading →

Double whammy by INVOLVE: new resources on diversity and inclusion in public involvement, and impact on research conduct

INVOLVE has published two fabulous resources on some current hot topics in public involvement in research: Strategies for diversity and inclusion in public involvement – this is a supplement to our briefing notes for researchers Public involvement in research:impact on ethical aspects of research – this resource provides examples of the impact of public involvement in the... Continue Reading →

Available in all good GP surgeries – new patient information leaflet on the use of patient data for research

This leaflet 'Your health records saves lives' (click on the picture below) marks the fruits of much hard work by the UK Clinical Research Collaboration (UKCRC) partnership over two years. Conceived, designed and written with patients very much as partners in the process, it seeks to explain how patient data is used for research purposes.... Continue Reading →

PPI Friday

It seems that my Friday blog has become dominated in recent weeks by postings about patient and public involvement. So be it. But before anyone jumps in to criticise, let me assure you of my belief that it is a 24/7 activity! Friday is often quite an interesting day for news. Press officers will tell... Continue Reading →

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