The National Institute for Health Research (NIHR) together with its Welsh equivalent, Health and Care Research Wales, have joined forces to launch a project to develop standards for public involvement in research. The Public Involvement Standards Development Partnership has a website which went live today where you can learn more and sign up to be … Continue reading Flying the ‘standards’ for public involvement in health research: new initiative launched. Sign up here. @OfficialNIHR @NIHRINVOLVE @ResearchWales #ppistandards
PPI
There’s nothing wrong in being a poster child for public involvement @bournemouthuni
The small things in life can tell us much about how the world is changing. Whether it's commuters carrying bottles of water. Or the papers left on trains at the end of a journey. What might such tell-tale signs of cultural change be, when it comes to public involvement? Is it the fact that public involvement … Continue reading There’s nothing wrong in being a poster child for public involvement @bournemouthuni
Review of public involvement in NIHR published #ppiextramile
Hot off the presses: Almost a year to the day that the Director General Research and Development/Chief Medical Officer commissioned a strategic review of public involvement in the National Institute for Health Research (NIHR), the final report and recommendations have today been published. Simon Denegri, the National Director for Patients and the Public in Research … Continue reading Review of public involvement in NIHR published #ppiextramile
Blog: Citizens in research: what’s your story going to be in 2015?
You'd think that Aintree Racecourse, home of the Grand National, would be the perfect venue at which to dwell on the barriers to how we involve the public in research. What with 'Bechers Brook' and 'The Chair,' fences over which horses and riders stumble and tumble every year. It would only be right to follow suit, would … Continue reading Blog: Citizens in research: what’s your story going to be in 2015?
Public involvement in research to be turned into drama in groundbreaking new play
On my travels so a cut and paste of a news release about an exciting new project. Those who know Y Touring will also be pleased to hear that it has found a loving home at last. New theatre company: Theatre of Debate Ltd. announces inaugural project Press Release: 13 November 2014 The creation of … Continue reading Public involvement in research to be turned into drama in groundbreaking new play
Top NIHR researchers speak out about importance of public involvement in research
This has got a bit lost in the hurly burly of the last few days. It is important that it does not remain so. The National Institute for Health Research (NIHR) Senior Investigators - of which there are around 200 I believe - are the very best of the very best researchers across the organisation. NIHR … Continue reading Top NIHR researchers speak out about importance of public involvement in research
We are in danger of running public involvement in health on Ryanair principles
Patient and public advocates in health and social care would make bloody good pilots. Year after year we ask them to help successfully land projects and initiatives in 'fuel critical' situations. They are having to carry more, and further. But for how much longer before someone has to declare a real fuel emergency? And a … Continue reading We are in danger of running public involvement in health on Ryanair principles
PPI Toolkit
I was rather upset to see a journalist write rather disparagingly about the I-Spy series of books as 'patronising.' Personally I was delighted to hear that they had been relaunched by Michelin. The fact is, in this information-laden world of ours, the value of pocket-sized guides could not be greater. So I was delighted to … Continue reading PPI Toolkit
Simon Denegri's Lay Review 