The Chief Medical Officer, Professor Dame Sally Davies, published her annual report today. Actually, it's two reports. The first is the usual state of the nation summary of the population's coughs and splutters. The second, uniquely this year, looks in depth at the worrying lack of attention we have paid to young people's health. It's … Continue reading CMO as good as her word on young people’s involvement in research
NIHR
Exclusive preview! UK clinical research gets its own TV show…..Downtown eat your heart out @NIHRCRN
So here's something to make your crumpet and jam just a bit more palatable on Sunday afternoon...Thanks to NIR CRN. This week Health Sector TV will be broadcasting a programme entitled ‘Clinical Research: Making Patients and the NHS Better.’ The blurb says that this is 'an important new documentary highlighting how the Clinical Research Network (as … Continue reading Exclusive preview! UK clinical research gets its own TV show…..Downtown eat your heart out @NIHRCRN
CLAHRCs could be the superheroes in quality improvement for patients in the UK
Yesterday my day began in Clerkenwell meeting with the new charity, MQ Transforming Mental Health (www.joinMQ.org). It is exciting to feel that we might at last be on the verge of seeing a strong charity profile in mental health research in the UK. But more baffling than ever why our existing mental health charities - … Continue reading CLAHRCs could be the superheroes in quality improvement for patients in the UK
NIHR and ABPI conference in November on ‘big data’
Click here for details of a National Institute for Health Research (NIHR) and Association of British Pharmaceuticals Industry (ABPI) joint conference on harnessing big data for health gains. Takes place in London on 21st November. The more it is used the more I dislike the term 'big data.' I mean, how to alienate your public in … Continue reading NIHR and ABPI conference in November on ‘big data’
Take part in a live trial now as part of NIHR’s visit to the British Science Festival #NIHRCOMETtrial
I hope you'll forgive the fact that what follows is the news release but I am part of the team presenting with Jonathan Sheffield at next week's British Science Festival and I really couldn't put it better than this. The 'live trial' is very exciting indeed and the first dip in the water for a … Continue reading Take part in a live trial now as part of NIHR’s visit to the British Science Festival #NIHRCOMETtrial
New webinar series on public involvement in adult social care @NIHRINVOLVE @OfficialNIHR
This is for the mods and rockers among you who spent the last week at the seaside and missed the twitter announcements.... Great to see this focus on public involvement in social care. ‘Get all sides of the story’: public involvement and participation in adult social care research The NIHR School for Social Care Research … Continue reading New webinar series on public involvement in adult social care @NIHRINVOLVE @OfficialNIHR
It’s a personal thing: You say stratified medicine and I say…
The UK Academy of Medical Sciences (AMS) does not do hyperbole. This is a good thing considering the histrionics that usually accompanies discussion about stratified medicine. AMS brought out its long-awaited report on stratified medicine on Friday entitled 'Realising the potential of stratified medicine.' It's straight-laced approach to the subject matter means it failed to … Continue reading It’s a personal thing: You say stratified medicine and I say…
@SDenegri presentations about the public and health research from Leicester, HSRN and Leeds
I'm always very chuffed when people ask for a copy of my presentations after a talk. Usually I am quite good at emailing them to people or asking the organisers to send them round. Anyway, I have done a lot of meetings lately and thought I would post here copies of my slides from the … Continue reading @SDenegri presentations about the public and health research from Leicester, HSRN and Leeds
Generation R: young people improving research event: 11 Sept 2013
Been meaning to post this for a while and not just because the poster design is going to brighten up my blog pages for a while. Our Medicines for Children Research Network (MCRN) really has been an exemplar for involving young people in research. Find something as good across Europe and I will eat my … Continue reading Generation R: young people improving research event: 11 Sept 2013
It’s NIHR Friday – Public involvement: did the research network move for you?
NIHR Clinical Research Network Survey Patient and Carer (Lay) Involvement in Research: Your Experience The National Institute of Health Research (NIHR) Clinical Research Network (CRN) Patient and Public Involvement Steering Group is running a survey to capture how being involved in research impacts on patients and carers. You should take part in this survey if … Continue reading It’s NIHR Friday – Public involvement: did the research network move for you?
Blog: Why the NIHR Journals Library is important from a patient perspective
NIHR Journals Library Launch 20th June 2013 As promised here's my speaking notes from the launch of the NIHR Journals Library today. Good to see the Minister, Earl Howe, there (I tweeted his remarks earlier) plus the CMO, Professor Dame Sally Davies, Trish Edwards, Asst Editor from the BMJ etc., Public involvement in UK health research … Continue reading Blog: Why the NIHR Journals Library is important from a patient perspective
NIHR Friday: CLAHRCs Selection Panel announced plus NIHR Journals Library opens
I was just going to tweet this but since it is in a downloadable pdf and not actually on the face of NIHR's website, I thought it would be helpful to post it - the membership of the Collaboration in Leadership for Applied Health Research and Care (CLAHRC) Selection Panel: Professor Huw Davies (Chair) Co-Head of … Continue reading NIHR Friday: CLAHRCs Selection Panel announced plus NIHR Journals Library opens
Now this is good, very good. The Cystic Fibrosis Trust has a transparent new research strategy
The Cystic Fibrosis (CF) Trust launched its new five-year research strategy in London yesterday. I have to say I am highly impressed. In terms of content and dissemination they seem to have single-handedly shown the rest of the medical research charity sector how to embrace the future as a funder and a patient group. Why is it … Continue reading Now this is good, very good. The Cystic Fibrosis Trust has a transparent new research strategy
Bold ambition for lung cancer research just what the doctor ordered
I was delighted to see this getting considerable airtime on the radio this morning: the launch of the London Lung Cancer Alliance with its aim of recruiting 3000 lung patients into clinical trials per year. Lung cancer is on the rise in the UK and it is a difficult condition for which to raise public awareness and … Continue reading Bold ambition for lung cancer research just what the doctor ordered
Keep track of your medicines with ‘My Medication Passport’ c/o NW London CLAHRC
I seem to be visiting more CLAHRCs (Collaboration for Leadership in Applied Health Research and Care) next week than in all my time as a boy looking for new school shoes. One of the CLAHRCs unfortunate enough to be visited by me is Northwest London. They've just launched a brilliant new tool to help patients … Continue reading Keep track of your medicines with ‘My Medication Passport’ c/o NW London CLAHRC
It’s NIHR Friday inc. new publications, a competition and NIHR CCF makes the Grade with patients
Yes, it truly does seem as though Friday should be dubbed 'NIHR Friday' given the propensity for my erstwhile colleagues to push info out on the aforementioned day. The clutch of interesting announcements this week include: Publication of the NIHR Annual Report for 2011-2012. You know, I'm sorry if this offends some people but I'm … Continue reading It’s NIHR Friday inc. new publications, a competition and NIHR CCF makes the Grade with patients
New stuff!..Dementia ‘infokit’, ‘Building Research Partnerships,’ CLAHRC Q&As, AHSNs and ABPI
Top initiatives today..... Care to learn to care better. The NIHR Dementia & Neurodegenerative Diseases Research Network (DeNDRoN) today launched their new 'Patients in Research' infokit. It's an excellent free resource showcasing work from across health and social care, stories, ideas, tips and tools. This great piece of kit is all part of a larger effort … Continue reading New stuff!..Dementia ‘infokit’, ‘Building Research Partnerships,’ CLAHRC Q&As, AHSNs and ABPI
Political spotlight on Health Research Authority (HRA) intensifies
I am sure the new Health Research Authority (HRA) can take care of itself. But the expectations being heaped on it by others show no signs of abating. I wouldn't be surprised if tomorrow someone calls on it to cure cancer. If it had been created by a Blair Government it would surely have been … Continue reading Political spotlight on Health Research Authority (HRA) intensifies
INVOLVE steps forward to change behaviours on plain English summaries of health research
I make no apology for being a little bit obsessed by plain English summaries of research this week. Events have conspired to make it this way. So, what did NIHR do when faced late last year with rising concern among academics, researchers, patients and the public about the poor quality of lay summaries? It commissioned … Continue reading INVOLVE steps forward to change behaviours on plain English summaries of health research
The lay summary is dead, long live the lay summary (#A2UComp)
'They can't write for toffee.' 'They' being scientists of course. But like most generalisations, this statement is utter tosh. You only had to be at the 'Access to Understanding' awards (#A2UComp) at the British Library on Monday night to realise that. The lay summaries that I and my fellow judges had been asked to review … Continue reading The lay summary is dead, long live the lay summary (#A2UComp)
simondenegri.com 