When asked, the National Institute for Health Research (NIHR) will tell you that 630,000 people took part in a clinical study last year. I wonder, however, whether that number should be raised to nearer one million*. For alongside many participants during their journey in research, walks a mother, father, brother, sister or significant other. One … Continue reading Untold stories in clinical research: the carer’s tale
The massive restructuring of UK clinical research according to new, local boundaries is a regular topic on this blog. My recent post about whether research was ready for the new localism prompted quite a response. I doubted then the willingness of new organisations in this transformation to involve the patient voice. The associated engineering works to … Continue reading Blog: Local leadership in public involvement in research shows the way
A glance at the events already confirmed in my diary for 2014 tells you everything you need to know about the priorities this year compared to last. Events hosted by one or more of the Academic Health Science Networks (AHSNs), Collaborations for Leadership in Applied Health Care and Research (CLAHRCs) and new Local Clinical Research … Continue reading Is UK health research ready for localism?
This deserves a wider audience. During my visit to Nottingham yesterday I met some of the staff from the Medicines for Children Research Network (MCRN) in the East. They have recently adopted a new 'red for research' uniform that all staff have to wear in clinical areas. You can read more about it in their … Continue reading Turning ‘red for research:’ staff show their true colours