Making sure that research funded by the NIHR, charities and industry reflects the needs and priorities of patients, carers and the public is one of the most important agendas in public involvement. It has been a focus for much activity over the years with the outstanding James Lind Alliance (JLA) Priority Setting Partnerships (PSPs) being the … Continue reading NIHR revamps another route for patients, carers and the public to submit their ideas for research
JLA PSPs
What next in identifying patient priorities for health research? #JLAevaluation
I spent yesterday morning at an excellent event looking at the James Lind Alliance Priority Setting Partnerships (JLA PSPs for short!). #JLAevaluation Started in 2004, JLA PSPs have become a recognised and highly respected method for identifying shared priorities in health research among patients, carers and clinicians. That they have is a testament to its founders but also the excellent JLA … Continue reading What next in identifying patient priorities for health research? #JLAevaluation
Smash, shrapnel and loose change – a mish mash of news from around public involvement and engagement in health research
Here's a few things that I've been collecting and now seems as good a time as ever to gather them together and share them as one. Researchers may wish to note the following exercise that is running throughout universities and institutions to identify barrier to public engagement. It's a repeat of an exercise done by … Continue reading Smash, shrapnel and loose change – a mish mash of news from around public involvement and engagement in health research
Patients hack medical research in planned attack
Hacking in this context is what we call 'bringing people with different views and skills together to work on problems.' [Sorry to disappoint the headline chasers but I hope you'll stay with me] And 'hackathons' - events where such hacking activity can take place - are increasingly common across the health arena as a means of solving problems. In … Continue reading Patients hack medical research in planned attack