Patient charter on genome sequencing is a call to arms to the NHS, charities and researchers

It is one of the boldest and most exciting initiatives in UK health research and care that I have witnessed.  It's also happening at lightning speed. In the eighteen months since the Prime Minister announced the 100,000 Genomes Project to coincide with the NHS's 65th birthday in 2013, we have gone from almost a standing start... Continue Reading →

Simon Stevens puts innovation and patients as innovators front-of-house in NHS

Simon Stevens, the relatively new NHS Chief Executive, put innovation front-of-house in his speech to the NHS Confederation yesterday.  He identified it as one of three elements crucial to 'future-proofing' the NHS for the challenges ahead.  You can read the full speech here.  But I have also included the relevant extract below as it is worth reading. A few points... Continue Reading →

Swipe here to donate…Tissue donation for research: what’s your view? Blog and survey.

The aforementioned survey is after the blog post if you can't stand the thought of reading this intro..... I somehow think that 'data' will be a significant feature of my life over the next few weeks.  Next week I am a panellist at the NIHR/ABPI conference '360 of Health Data: Harnessing Big Data for Better... Continue Reading →

The competition/chugging/hunt/fight [delete as inappropriate] for your DNA has only just begun…..

The BBC is this morning running a story on its online health pages about the launch of the UK Personal Genome Project - a UK subsidiary of a US initiative - and its 'hunt' for 100,000 volunteers to share their DNA to help fight disease. Like others, I am not sure I feel totally comfortable about... Continue Reading →

Genomics England is inviting patients and the public to a town hall event: apply here

Passing this invite on from Sir John Chisholm, Chair of Genomics England, for their event on 3rd Oct. Email address to attend included below along with website address. Hello, I am writing on behalf of Genomics England to invite you to our first Stakeholder Event on Thursday 3rd October 2013. The venue is as follows:... Continue Reading →

It’s a personal thing: You say stratified medicine and I say…

The UK Academy of Medical Sciences (AMS) does not do hyperbole.  This is a good thing considering the histrionics that usually accompanies discussion about stratified medicine. AMS brought out its long-awaited report on stratified medicine on Friday entitled 'Realising the potential of stratified medicine.' It's straight-laced approach to the subject matter means it failed to... Continue Reading →

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