And people wonder why we are so passionate about public involvement

There are a few minutes until I catch my train. It is just enough time to draw your attention to this excellent piece in the BMJ written by a patient, Matilda Hale, about her battle with fatigue as a result of liver disease, the complacency of the medical profession and the support she gained from … Continue reading And people wonder why we are so passionate about public involvement

World Alzheimer’s Day – from timebomb to tsunami (PLoS an update on patient information and placebos)

Expect lots of news pieces this week about Alzheimer's disease ahead of World Alzheimer's Day (WAD) which takes place on Friday 21st September.  This is one of the better ones I have seen, from the Observer yesterday.  Interesting how the language has changed although the message has not - what was once called a timebomb … Continue reading World Alzheimer’s Day – from timebomb to tsunami (PLoS an update on patient information and placebos)

Cancer Research UK to get a new look

I noticed this in Civil Society from a few hours ago.  Cancer Research UK (CRUK) - the largest publicly funded medical research charity in the UK - is reported to be launching a new identity in September to coincide with the 10th anniversary of its establishment from the merger of Cancer Research Campaign and the … Continue reading Cancer Research UK to get a new look

Help set the agenda in cancer research….

The National Cancer Research Institute (NCRI) is on a recruitment drive for consumers (patients, carers, relatives and members of the public affected by cancer) to join one of their Clinical Studies Groups (CSGs). These Groups are pivotal in driving new ideas and setting the agenda for cancer research so a patient voice is essential.  There are ten … Continue reading Help set the agenda in cancer research….

Care Homes Research: New toolkit produced to ENRICH lives

Given the concerns over the quality of care home provision in the UK, it is essential that we invest in research that will improve care-giving in these settings for the future. The Dementia and Neurodegenerative Diseases Research Network (DeNDRoN) have just launched a new toolkit (website) entitled 'Enabling Research in Care Homes (ENRICH)' to help promote and … Continue reading Care Homes Research: New toolkit produced to ENRICH lives