It doesn't matter where you are in the world patients and carers have the same questions about research. This week I am in Sydney, Australia, at the invitation of the Australia Dementia Forum hosted by the National Institute for Dementia Research. It has been a fascinating two days. Most of all I have enjoyed meeting … Continue reading Public involvement will be crucial to new NIHR ARCs and the research implementation agenda #CLAHRCs #ARCs @OfficialNIHR @NIHRINVOLVE @ClahrcP
Yesterday I was on a visit to the West Midlands. The University of Birmingham, Birmingham Health Partners and West Midlands Genomic Medicine Centre (GMC) had invited me to talk about public involvement in research strategies for the region. Many organisations and voices were represented in the room. The discussion was lively and, at times, challenging. But … Continue reading The divide between public involvement in research and service delivery
The massive restructuring of UK clinical research according to new, local boundaries is a regular topic on this blog. My recent post about whether research was ready for the new localism prompted quite a response. I doubted then the willingness of new organisations in this transformation to involve the patient voice. The associated engineering works to … Continue reading Blog: Local leadership in public involvement in research shows the way
A glance at the events already confirmed in my diary for 2014 tells you everything you need to know about the priorities this year compared to last. Events hosted by one or more of the Academic Health Science Networks (AHSNs), Collaborations for Leadership in Applied Health Care and Research (CLAHRCs) and new Local Clinical Research … Continue reading Is UK health research ready for localism?
I am in Alberta, Canada. I have been invited over to share the UK's experiences in developing public involvement in research. As ever, it is the similarities and not the differences between our two experiences that strike you on a visit like this. More about those another time. My good friend, Derek Stewart, yesterday wrote an excellent blog with his … Continue reading Building ‘research active’ communities for a healthier population: a clear mission for CLAHRCs, AHSNs, LCRNs
The Department of Health this morning announced the successful NIHR Collaborations for Leadership in Applied Health Research and Care (CLSHRCs). The formal press release can be found here. Thirteen CLAHRCs have been awarded over £120M in total following an open competition earlier this year. The details of the latter can be found here. Further details … Continue reading New CLAHRCs announced in local health research boost. Here’s a list and links. #nihrclahrcs
I was just going to tweet this but since it is in a downloadable pdf and not actually on the face of NIHR's website, I thought it would be helpful to post it - the membership of the Collaboration in Leadership for Applied Health Research and Care (CLAHRC) Selection Panel: Professor Huw Davies (Chair) Co-Head of … Continue reading NIHR Friday: CLAHRCs Selection Panel announced plus NIHR Journals Library opens
Top initiatives today..... Care to learn to care better. The NIHR Dementia & Neurodegenerative Diseases Research Network (DeNDRoN) today launched their new 'Patients in Research' infokit. It's an excellent free resource showcasing work from across health and social care, stories, ideas, tips and tools. This great piece of kit is all part of a larger effort … Continue reading New stuff!..Dementia ‘infokit’, ‘Building Research Partnerships,’ CLAHRC Q&As, AHSNs and ABPI