There's a big push on #patientdata at the moment. Leaflets explaining how patient data will be shared in the future are being stuffed through people's letter boxes. This is part of an initiative called 'care.data.' Medical research charities have meanwhile funded a national newspaper advertising campaign exhorting the benefits of sharing patient data for research. The … Continue reading Musings on #patientdata and: ‘the moral case for public involvement in research is dead, long live…’
CIHR
Canada charts a path out of its clinical research ‘death valleys’ (their words not mine!)
As you know, I do like to wander abroad from time to time, even if it is only on the internet... I thought this piece in PharmaTimes about the pump-priming of clinical research in Canada by the Canadian Institutes for Health Research (CIHR)/pharma companies might be of general interest to people. The aim is to see their way … Continue reading Canada charts a path out of its clinical research ‘death valleys’ (their words not mine!)
Canada gets the ‘patient involvement in research’ bug
A few weeks ago I mentioned meeting the Director of the Canadian Institutes for Health Research (CIHR) to discuss public involvement in research. Last night I stumbled on the following announcement by the Canadian Government about the development of a patient-orientated research strategy. Excellent news. I am sure the news has very little to do … Continue reading Canada gets the ‘patient involvement in research’ bug
Science should take heed of the need to make the public its partners if it wishes to avoid calls for its liberation
At the end of last month the Canadian Government announced that it would be going ahead with clinical trials of a controversial new treatment for MS sufferers called 'liberation therapy.' The decision has gone almost unreported outside Canadian shores and yet for those interested in the relationship between science and its public it is a … Continue reading Science should take heed of the need to make the public its partners if it wishes to avoid calls for its liberation
simondenegri.com 