The Academy of Medical Sciences (AMS) today published its report of the meeting it held a few months ago, looking at progress with improving the regulatory of environment for medical research. I blogged about being a panellist at the meeting as you may recall. The report's conclusions are noteworthy for the second bullet point about public … Continue reading The Academy reports on research regulation…and a reminder of the Guardian’s Q&A about public involvement
public involvement
We need more than better chat-up lines to increase participation in research
'Pedestrian freight.' It is a term I had not come across until last week. I believe it is the phrase once used inside train companies to describe you and I, the commuters who throng with fortitude through our stations up and down the land every day. Perhaps it still is, I don't know. Such 'internal' phrases can … Continue reading We need more than better chat-up lines to increase participation in research
Health Research Authority (HRA) stocks rise in first public flotation
The word on the street is that yesterday's Health Research Authority (HRA) public and patient involvement workshop - it's first public flotation if I can put it like that - was very successful indeed. That has to be good news. I think we should be encouraged that the team at HRA has barely got its feet under … Continue reading Health Research Authority (HRA) stocks rise in first public flotation
N=1: Defining medicines development and use from a patient perspective
I am not sure what made me think about and look for this report: 'N=1: Why people matter in medicines.' Perhaps it was all the talk last week about the Department of Health's 11th report to parliament on the Pharmaceutical Price Regulation Scheme (PPRS) - in essence the way in which drug prices are set … Continue reading N=1: Defining medicines development and use from a patient perspective
Friday drivetime blog: regional accents in public and patient involvement
It is still very early days in my new role as the NIHR Director of Public Participation and Engagement but I have already received a number of invitations to visit and see some of the great initiatives happening up and down the country. Keep them coming. It is my intent to get 'out there' as … Continue reading Friday drivetime blog: regional accents in public and patient involvement
Research is for life: making research part and parcel of the patient journey
I was very privileged to be asked to give the Furlong Christmas Lecture a few weeks ago. I hope this doesn't seem egotistical but here's the text of that lecture amended with useful links etc - it touches on and rehearses themes that will be familiar to those of you who have visited the blog … Continue reading Research is for life: making research part and parcel of the patient journey
Supertrams, supertramp and day-glo…plus JLA (no, not JLS!) go to number one
I don't know about you but I've taken to asking for a 'double-dip' lottery ticket since yesterday's Autumn Statement. Never has so much hinged on four new trams in Sheffield, who would have thought? But as soft rock band Supertramp famously said in "Put On Your Old Brown Shoes": ''We've got to get away, get … Continue reading Supertrams, supertramp and day-glo…plus JLA (no, not JLS!) go to number one
You cluster if you want to…the single most important translational gap in UK clinical research today
A colleague of mine put up two slides at a meeting today which neatly encapsulated for me the key strategic - perhaps translational gap - in uk clinical research right now. On the demand side, the first showed the key results from the Association of Medical Research Charities (AMRC) commissioned MORI poll of public attitudes … Continue reading You cluster if you want to…the single most important translational gap in UK clinical research today
Cancer Research UK does not have all the answers..and that’s an invitation to the rest of us
I see that Cancer Research UK last week put out a press statement about the need for the UK to have strategic vision for medical research. You can find further details on their blog and they also issued a document entitled 'Building the Right Environment for Medical Research.' Thoughtfully the announcement and document have been … Continue reading Cancer Research UK does not have all the answers..and that’s an invitation to the rest of us
Canada gets the ‘patient involvement in research’ bug
A few weeks ago I mentioned meeting the Director of the Canadian Institutes for Health Research (CIHR) to discuss public involvement in research. Last night I stumbled on the following announcement by the Canadian Government about the development of a patient-orientated research strategy. Excellent news. I am sure the news has very little to do … Continue reading Canada gets the ‘patient involvement in research’ bug
From I Claudius to iLansley…phone apps in the new NHS
The summer break has clearly done the Secretary of State for Health, Andrew Lansley, a world of good. From beating a lone path as the libertarian Claudius in the face of a centralised health service, he has resurfaced this week as the man for all seasons to launch a competition for the best ideas for … Continue reading From I Claudius to iLansley…phone apps in the new NHS
Science should take heed of the need to make the public its partners if it wishes to avoid calls for its liberation
At the end of last month the Canadian Government announced that it would be going ahead with clinical trials of a controversial new treatment for MS sufferers called 'liberation therapy.' The decision has gone almost unreported outside Canadian shores and yet for those interested in the relationship between science and its public it is a … Continue reading Science should take heed of the need to make the public its partners if it wishes to avoid calls for its liberation
simondenegri.com 