So, as you can imagine, I am limbering up today and tomorrow in preparation for the INVOLVE Conference - 'Changing Landscapes' - which takes place in Birmingham later this week. That means sit-ups, press-ups, gargling water and mnemonics to remember the difference between participation, engagement and involvement and other useful stuff like that. It should be … Continue reading Breaking Boundaries review of public involvement in the NIHR – Update Ahead of #INVOLVE2014
public involvement
Public involvement in research to be turned into drama in groundbreaking new play
On my travels so a cut and paste of a news release about an exciting new project. Those who know Y Touring will also be pleased to hear that it has found a loving home at last. New theatre company: Theatre of Debate Ltd. announces inaugural project Press Release: 13 November 2014 The creation of … Continue reading Public involvement in research to be turned into drama in groundbreaking new play
Who’s making way for who in public involvement?
This morning I listened with interest to the news item about today's Court of Appeal proceedings on whether wheelchairs users have precedence over parents with pushchairs on buses. I know where my sympathies lie. With the wheelchair user. On balance, the consequences of denying them access are likely to be more serious and difficult to … Continue reading Who’s making way for who in public involvement?
The art of lay reviewing in health research: some pointers
A little while ago someone suggested that I write something about my approach to lay reviewing in health research. Not so much a 'how to' guide as there are lots of these and very good they are too. More, an insight into the questions I ask myself when forming an opinion on an application for … Continue reading The art of lay reviewing in health research: some pointers
What have people told us about public involvement in research?
Yesterday INVOLVE hosted a meeting of about 100 public involvement leads from across the National Institute for Health Research (NIHR). There are probably nearer 200 in total across the NIHR family.This was the first time that we have ever been able to bring together people in this way. A powerful milestone.This link will take you … Continue reading What have people told us about public involvement in research?
Lessons I learnt from the Alzheimer’s Society story of public involvement in research
The Alzheimer's Society has published a new booklet entitled '15 years of the Research Network.' http://www.alzheimers.org.uk/site/scripts/download_info.php?fileID=2261 It looks at the work of their Research Network of 250 people with dementia and carers in shaping and advancing the charity's £5.3M research programme, some of their achievements, and a short history of how it all got started.The … Continue reading Lessons I learnt from the Alzheimer’s Society story of public involvement in research
NIHR and NAPP announce new award for research engagement in primary care
This morning I was the guest of the National Association for Patient Participation (NAPP) whose annual conference entitled 'Quality in Primary Care' is taking place in Leeds today. It marks the end of their annual awareness week. NAPP's members are made up of several thousand Patient Participation Groups (PPGs) in GP practices up and down … Continue reading NIHR and NAPP announce new award for research engagement in primary care
Top NIHR researchers speak out about importance of public involvement in research
This has got a bit lost in the hurly burly of the last few days. It is important that it does not remain so. The National Institute for Health Research (NIHR) Senior Investigators - of which there are around 200 I believe - are the very best of the very best researchers across the organisation. NIHR … Continue reading Top NIHR researchers speak out about importance of public involvement in research
NIHR announces strategic review of public involvement in research #PPIBreakingboundaries
The following official announcement has just been posted on the NIHR website with links to the terms of reference and initial submission document. I say 'initial' because there will be others ways in which you can contribute to the review over the next few months. I am very excited that NIHR has commissioned this exercise … Continue reading NIHR announces strategic review of public involvement in research #PPIBreakingboundaries
NIHR Friday: BioResource launch has volunteers at its heart
Delighted to see today's announcement by the National Institute for Health Research (NIHR) of the new NIHR BioResource. The importance of the new BioResource (the main website for the BioResource is here) is underlined by the fact that not one Minister but both the Secretary of State for Health, Minister for Health plus the Chief Medical Officer, Professor … Continue reading NIHR Friday: BioResource launch has volunteers at its heart
INVOLVE cleans-up on standards for public involvement in research
The debate about standards for public involvement in research is an important one. As a community we are growing in number by the day. So is the range of activities that we are involved in. And the number of organisations we are part of. The resulting variety is rich and exciting. There are those of us who … Continue reading INVOLVE cleans-up on standards for public involvement in research
NIHR gives ‘chapter one and verse’ on patients and the public in research: 2012/13 annual report published
Forgive me. For once, I write with a semi-official hat on. But this afternoon feels like a bit of a milestone moment in lifting public involvement in research ever higher on people's agendas. If you have heard me speak in public then you will know I start by saying how proud I am that the … Continue reading NIHR gives ‘chapter one and verse’ on patients and the public in research: 2012/13 annual report published
Exclusive preview! UK clinical research gets its own TV show…..Downtown eat your heart out @NIHRCRN
So here's something to make your crumpet and jam just a bit more palatable on Sunday afternoon...Thanks to NIR CRN. This week Health Sector TV will be broadcasting a programme entitled ‘Clinical Research: Making Patients and the NHS Better.’ The blurb says that this is 'an important new documentary highlighting how the Clinical Research Network (as … Continue reading Exclusive preview! UK clinical research gets its own TV show…..Downtown eat your heart out @NIHRCRN
Building ‘research active’ communities for a healthier population: a clear mission for CLAHRCs, AHSNs, LCRNs
I am in Alberta, Canada. I have been invited over to share the UK's experiences in developing public involvement in research. As ever, it is the similarities and not the differences between our two experiences that strike you on a visit like this. More about those another time. My good friend, Derek Stewart, yesterday wrote an excellent blog with his … Continue reading Building ‘research active’ communities for a healthier population: a clear mission for CLAHRCs, AHSNs, LCRNs
Notes from a ‘small island’ in health research…..otherwise known as INVOLVE
A small island has appeared off the coast of Pakistan following the tragic earthquake there last week. The consensus of scientific opinion is that, before long, this island will disappear without trace. In the meantime it is an interesting curiosity, attracting quite a gaggle of geologists and geographers. I wonder if that is how INVOLVE was … Continue reading Notes from a ‘small island’ in health research…..otherwise known as INVOLVE
We are in danger of running public involvement in health on Ryanair principles
Patient and public advocates in health and social care would make bloody good pilots. Year after year we ask them to help successfully land projects and initiatives in 'fuel critical' situations. They are having to carry more, and further. But for how much longer before someone has to declare a real fuel emergency? And a … Continue reading We are in danger of running public involvement in health on Ryanair principles
Generation R event: young people in research storm the barricades of science
What was it that the author, William Golding, said when asked if he went to church? 'No I don't, and I don't think God does either.' I feel the same about medical research conferences. They often seem to be places where people go to worship the science rather than what it can do for people. … Continue reading Generation R event: young people in research storm the barricades of science
Evaluating the impact of public involvement in research – the #PiiAF tool: launch remarks
Fantastic to see so many people gathered in the room and in hyperspace for the launch of the Public Involvement Impact Assessment Framework (PiiAF). You can view the prototype website here. A really important piece of work and here are my remarks from the start of the day without the jokes. Launch of the Public … Continue reading Evaluating the impact of public involvement in research – the #PiiAF tool: launch remarks
New webinar series on public involvement in adult social care @NIHRINVOLVE @OfficialNIHR
This is for the mods and rockers among you who spent the last week at the seaside and missed the twitter announcements.... Great to see this focus on public involvement in social care. ‘Get all sides of the story’: public involvement and participation in adult social care research The NIHR School for Social Care Research … Continue reading New webinar series on public involvement in adult social care @NIHRINVOLVE @OfficialNIHR
Moorfields research team reports on benefits of public involvement to eye patients and staff
Sometimes it is the lot of the blogger to feel like the producer of 'Have I Got News For You.' One's research can taken you to all sorts of places you didn't know existed. Then again it can also turn up some gems. This morning I blogged about the WHO report on medicine priorities and … Continue reading Moorfields research team reports on benefits of public involvement to eye patients and staff
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