The small things in life can tell us much about how the world is changing. Whether it's commuters carrying bottles of water. Or the papers left on trains at the end of a journey. What might such tell-tale signs of cultural change be, when it comes to public involvement? Is it the fact that public involvement … Continue reading There’s nothing wrong in being a poster child for public involvement @bournemouthuni
public involvement
From ‘spacewalking’ patients to Bowie, the literature on public involvement in research reached new Peakes this week
It's one of the hardest things they will have to do. It is physically and mentally draining. For many it will feel a lonely place. The atmosphere will be unlike anything they have ever experienced before. Some will feel as if they are in a state of suspended animation. Others will feel as if they have leapt off a cliff … Continue reading From ‘spacewalking’ patients to Bowie, the literature on public involvement in research reached new Peakes this week
The devil’s in the manual – health research regulation and public involvement @HRA_Latest
When I was growing up I used to help my Dad do DIY around the house. Our perennial companion was a thick, hard-bound manual with step-by-step guides on how to do anything and everything. No job was too big or too small for it. From replacing a chimney stack to changing a plug. Dad passed … Continue reading The devil’s in the manual – health research regulation and public involvement @HRA_Latest
Public engagement in research must break through its rose-tinted glass ceiling #engage_2015
On Wednesday a consortium of 15 research funders and Universities UK led by the Wellcome Trust published its report 'Factors affecting public engagement by researchers.' The Wellcome Trust launch website is here and the report itself can be found here. It's an important piece of work; a 'state of the nation' commentary on public engagement activity across … Continue reading Public engagement in research must break through its rose-tinted glass ceiling #engage_2015
There is indeed method in our ‘madness’ – being METHODICAL about public involvement
Polonius: [Aside] Though this be madness, yet there is method in't. Hamlet Act 2, scene 2, 193–206 If you are in some way connected to public involvement in health research then you get used to 'the look.' Sometimes it's a vacant stare or a gaze falling slowly across the face like the sun going down. In other instances … Continue reading There is indeed method in our ‘madness’ – being METHODICAL about public involvement
Babraham Institute pins down public attitudes to basic science
Public dialogue exercises can come across a bit like the public engagement version of a 'lock-in.' They are undoubtedly enjoyable - for all concerned including the participants. However, there can be a feeling that people are being force-fed information until they recant their ways! That said, this tool (of choice, for many) is a useful way of exploring people's views on issues in-depth and over … Continue reading Babraham Institute pins down public attitudes to basic science
Research is for LIFE not just for….
What a shame that the Economic and Social Research Council (ESRC) has pulled the plug on the LIFE study. See: http://www.theguardian.com/society/2015/nov/01/life-study-esrc-cancelled-mothers-ethnic-recruitment Also: http://www.nature.com/news/massive-uk-baby-study-cancelled-1.18650 Launched only last year, the aim of this research was to recruit thousands of mothers and collect data about their babies as they grew up. Such work is really important in helping … Continue reading Research is for LIFE not just for….
‘How many patients does it take to change a lightbulb?’ Time to get serious about learning and development in public involvement
Question: How many patients does it take to change a lightbulb? Answer: No one knows, they are so rarely asked. The irritating thing is that even when patients are asked to change a lightbulb, they are not given the help and support to do it effectively. It's a bit like asking someone to change one … Continue reading ‘How many patients does it take to change a lightbulb?’ Time to get serious about learning and development in public involvement
Announcement of new contract for @NIHRINVOLVE awarded to the University of Southampton
Herewith a copy of the announcement that you will also find on the National Institute for Health Research (NIHR) and INVOLVE websites to day about the award of the new INVOLVE contract. This means INVOLVE now enters its second decade of being fully funded by the NIHR and the only such body of its kind … Continue reading Announcement of new contract for @NIHRINVOLVE awarded to the University of Southampton
George Osborne clearly read ‘Going the Extra Mile’ before his Budget statement #scipolicy
It is some time since the Chancellor of the Exchequer and I have spoken. Forever, in fact. But I like to think we are in tune on some things.... The Guardian online has an excellent piece running this afternoon - written by Kieron Flanagan from UMIST - about the nods and winks on science policy … Continue reading George Osborne clearly read ‘Going the Extra Mile’ before his Budget statement #scipolicy
The best thing since sliced bread? Mobile phone technology and public health.
A curious story caught my eye in the Sunday Telegraph. It told how High Street retailers are sending adverts and money-off coupons to the mobile phones of passers-by. Soon, they hope to be able to track people through their shops; when they pass the sock counter or the delicatessen they'll get more messages about the … Continue reading The best thing since sliced bread? Mobile phone technology and public health.
We must maintain our national impetus and leadership on involving young people in research – comment on new report from @Nuffbioethics
This morning the Nuffield Council on Bioethics published its report: Children and research: ethical issues calling for a change in research culture to enable young people to shape how research is ‘prioritised, designed and reviewed.’ In what amounts to a ‘call to arms’ the report urges funders, clinicians, researchers and ethicists to work together and, … Continue reading We must maintain our national impetus and leadership on involving young people in research – comment on new report from @Nuffbioethics
Review of public involvement in NIHR published #ppiextramile
Hot off the presses: Almost a year to the day that the Director General Research and Development/Chief Medical Officer commissioned a strategic review of public involvement in the National Institute for Health Research (NIHR), the final report and recommendations have today been published. Simon Denegri, the National Director for Patients and the Public in Research … Continue reading Review of public involvement in NIHR published #ppiextramile
Who are the good, the bad and the ugly at involving the public in medical research? New comparative figures for Government, charities and industry
What should we make of the latest figures from INVOLVE and the Health Research Authority (HRA) showing which funders are best at public involvement in research? In a re-run of an joint-exercise first done in 2010, INVOLVE and the HRA looked at the public involvement component of over 1100 research applications that went before research ethics … Continue reading Who are the good, the bad and the ugly at involving the public in medical research? New comparative figures for Government, charities and industry
Let’s get animated about public involvement in health research: new film by @NIHRINVOLVE
Who knows, patients and the public might one day get to walk on the red carpet ?
Nuffield report underlines importance of public participation if people are to trust how their medical records are used for research
The Nuffield Council on Bioethics have today published their report: 'The collection, linking and use of data in biomedical research and health care: ethical issues' following months of inquiry by an expert working group Chaired by Professor Martin Richards. Here's a copy of the actual report. There is much coverage in the media already including the … Continue reading Nuffield report underlines importance of public participation if people are to trust how their medical records are used for research
An aside on the Royal Society’s life with Brian and Coxing science through the election
So the Royal Society has appointed Professor Brian Cox as its new Professor for Public Engagement in Science at the University of Manchester. The physicist who is becoming increasingly eponymous with science on TV in the same way that the broadcaster and naturalist, David Attenbrough, has with wildlife programmes, or Janett Street-Porter became associated with youth programming in the … Continue reading An aside on the Royal Society’s life with Brian and Coxing science through the election
INVOLVE launches new benefits advice service for public involvement in NIHR research @NIHRINVOLVE #ppibenefitsadvice
This is an important and timely intervention by INVOLVE to ensure people get the right advice and support about how payment of fees and expenses for their public involvement in NIHR might affect their receipt of state benefits. Please read the following for more information on how this service will operate. With thanks to our … Continue reading INVOLVE launches new benefits advice service for public involvement in NIHR research @NIHRINVOLVE #ppibenefitsadvice
Blog: Citizens in research: what’s your story going to be in 2015?
You'd think that Aintree Racecourse, home of the Grand National, would be the perfect venue at which to dwell on the barriers to how we involve the public in research. What with 'Bechers Brook' and 'The Chair,' fences over which horses and riders stumble and tumble every year. It would only be right to follow suit, would … Continue reading Blog: Citizens in research: what’s your story going to be in 2015?
MRC publishes new communications and engagement strategy (plus new film!)
The Medical Research Council (MRC) has published a refreshed communications and engagement strategy. There is a section on public involvement on P12 of the document which is the fullest narrative I have seen of their corporate intentions around this aspect of working in partnership with the public. It is a good document and important to … Continue reading MRC publishes new communications and engagement strategy (plus new film!)
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