In a blog 'exclusive' - albeit more by technical chance than design - I am today sharing with you the independent report of the AMRC/INVOLVE patient workshop on health research regulation that took part in early November. We were invited to undertake this important piece of work by the Academy of Medical Sciences (AMS) as … Continue reading What do patients want from health research regulation?
public engagement
NHS white paper next steps
Some of you may know that today was being dubbed 'Super Wednesday' by some because today is the day that the Department of Health has set out its response to the consultation on the NHS White Paper 'Equity and Excellence: Liberating the NHS.' The National Institute for Health Research (NIHR) has very helpfully published an … Continue reading NHS white paper next steps
User involvement in research – drive your own train
I am at the INVOLVE two-day conference in Nottingham this week. INVOLVE is the National Institute for Health Research (NIHR) funded programme promoting public involvement in research. It is perhaps worth adding that INVOLVE is the only publicly funded national organisation of its kind across the world. It's a packed conference - almost 500 delegates … Continue reading User involvement in research – drive your own train
'A nation of General Practitioners' and other bits of philosophising
The news earlier this week that the National Institute of Clinicial and Health Excellence (NICE) is to lose its powers for deciding which drugs should be made available on the NHS (to be replaced by a new system based around GP commissioning) brought an alternative version of Adam Smith's remarks about shopkeepers to mind: "To found a … Continue reading 'A nation of General Practitioners' and other bits of philosophising
A non-commercial break…and FP8
A brief interlude in all things politics gives me the opportunity to relay some events of the last few weeks. First, a long overdue welcome to our three new member charities: Epilepsy Action; Furlong Research Charitable Foundation and; Pancreatric Cancer UK. That takes our membership up to 124 charities. Monday night saw me attend the … Continue reading A non-commercial break…and FP8
AMRC Responds to NHS White Paper 'Equity and Excellence: Liberating the NHS'
A quick post to say that we have today posted our comments on the NHS White Paper on our website. Our response is the first-listed on the consultations page for 2010 here. If you want to get some idea of the Department of Health perspective on the issues we raise you might like to read … Continue reading AMRC Responds to NHS White Paper 'Equity and Excellence: Liberating the NHS'
Science at the Labour Party Conference – a Miller's tale
Rumour has it that there is an outbreak of tonsilitis in the north-west at the moment...here's hoping Ed Milliband is being kept in isolation until his leader's speech this afternoon. One thing I forgot to mention from last night's meeting was David Lammy's comment that the coalition government has yet to put together a convincing narrative for … Continue reading Science at the Labour Party Conference – a Miller's tale
Science at the Lib Dem conference – patients hold their nerve for research
'Hold your nerve' was the message to his party from Nick Clegg yesterday. Well, this evening patients and their carers held their nerve by standing in front of conference delegates to tell their personal stories of fighting disease and the way research has helped, or could help, them. In fact if you happen to be … Continue reading Science at the Lib Dem conference – patients hold their nerve for research
Science at the Lib Dem Conference – Life Sciences Breakfast
Policy-making is not immune to trends. The latest seems to be the 'roundtable' meeting. I blame King Arthur myself (well, they say that trends do come round). But I bet he didn't meet his knights at 9 or 8am. This morning AMRC, the BioIndustry Association, Association of British Healthcare Industries and Association of the British … Continue reading Science at the Lib Dem Conference – Life Sciences Breakfast
Science at Lib Dem Conference – Vince Cable @ Royal Society fringe
People often ask what the point of attending the party conferences is. There are many. But perhaps one of the most important is the opportunity to see, hear and talk to politicians in 'conversational' rather than 'messaging mode.' I thought one of those moments came this evening when Vince Cable addressed the Royal Society's reception. Indeed, … Continue reading Science at Lib Dem Conference – Vince Cable @ Royal Society fringe
Science at the Lib Dem Conference
I'm at the Lib Dem Party Conference in Liverpool today and tomorrow. The sky is set fair and the sea is calm and so seems the conference mood by and large. I went to a good fring meeting at lunchtime Chaired by Julian Huppert MP and hosted by the British Heart Foundation (BHF), Diabetes UK … Continue reading Science at the Lib Dem Conference
Charity support for 'a single research regulator'
This afternoon we have published our response to the Academy of Medical Sciences' call for evidence on proposals for a single research regulator. You can find the full text if you click on the 'AMRC Statements' tab at the top of the page or here. Our submission is based on a survey of our members and … Continue reading Charity support for 'a single research regulator'
Science in a near miss with Cable but flies on…to Birmingham and China perhaps
I feel I must dedicate this blog to the gentleman who posted an online comment in response to my letter in The Times yesterday, saying it caused him 'metaphor indigestion.' I could almost hear the indefatigable voice of my English teacher, the late Brian Mitchell, behind every word.* So....like the Red Arrows at one of … Continue reading Science in a near miss with Cable but flies on…to Birmingham and China perhaps
JK Rowling and Donation to Multiple Sclerosis research
There has been blanket coverage of JK Rowling's £10 million donation to set-up a new research clinic at the Edinburgh Centre for Translational Research and quite right too. The Anne Rowling Regenerative Neurology Clinic, named after her mother who had MS, will investigate treatments to slow the progression, and ultimately reverse, the symptoms of MS but will also undertake … Continue reading JK Rowling and Donation to Multiple Sclerosis research
Sunshine, stem cells and policy hypochondria over the NHS
It has been a busy 24 hours in medical research. Beginning with the sunnier side of things, I am sure few of you will have esacaped the wall-to-wall coverage of the study published yesterday showing Vitamin D exerts an influence over certain genes associated with diseases like multiple sclerosis and arthritis. The research is notable for its … Continue reading Sunshine, stem cells and policy hypochondria over the NHS
Further thoughts on a single regulator for research
Mid-summer it might be, but my sense is that the prospect of a single regulator for research continues to be the leading topic of debate around and about the community (after the Comprehensive Spending Review of course). My office brought to my attention this series of comment pieces about a single regulator and its impact … Continue reading Further thoughts on a single regulator for research
Osborne on economic growth
Various reports are flashing across the wires right now concerning the Chancellor of the Exchequer, George Osborne's, speech at Bloomberg's offices in London today. The following is from BBC News. You can read the full text on the HM Treasury website here. Which begs the question why it takes the Department of Health … Continue reading Osborne on economic growth
Charities in the recession (2+2 ≠ 4)
My ten minute stint on the Mark O'Donnell Show on BBC Radio Wiltshire this morning to discuss charitable giving in the recession, evolved into a wide-ranging chat about all things charitable as these opportunities can fortunately become. Collaboration between charities was one of the many questions we covered so it was good to be able … Continue reading Charities in the recession (2+2 ≠ 4)
The 'new' philanthropy and medical research
Last night I was contemplating how to make the remaining half of my net-worth last for the rest of the month, when thoughts inevitably turned to the announcement by 30 US billionaires last week that they intend to give at least half their wealth to charitable causes. The charge of the billionaires is being led … Continue reading The 'new' philanthropy and medical research
Research and democracy
The best kept secret in London during August is London itself. With what seems like millions of Londoners and commuters away on holiday, the streets are clear, the buses and trains are sitting-room only, and you can find a parking space with relative ease. The city becomes just that little bit more civilised for four … Continue reading Research and democracy
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