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public engagement in health research

Patients are part of the crew in health research not passengers. This week you can support them by getting behind the #iamresearch @OfficialNIHR #ICTD campaign 

May 15, 2017May 15, 2017 / simondenegri / Leave a comment

It's a big week in research.   To mark International Clinical Trials Day on Saturday 20th May, the National Institute for Health Research (NIHR) is promoting its 'I Am Research' (#iamresearch) national campaign to raise awareness of the part played by patients, carers and the public in making research happen. From today until well into … Continue reading Patients are part of the crew in health research not passengers. This week you can support them by getting behind the #iamresearch @OfficialNIHR #ICTD campaign 

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Patients and the public are vital to science’s role in a post #Brexit Britain. A response to Pfizer’s MD, Erik Nordkamp 

September 9, 2016 / simondenegri / Leave a comment

I do try to live up to my Tunbridge Wells postcode by firing off regular  'disgusted' letters to the press and, in particular, The Daily Telegraph (DT). On Monday Erik Nordkamp, Pfizer's Managing Director, wrote this article about the importance of the life sciences industry to a post-Brexit economic strategy.  So I sent this to … Continue reading Patients and the public are vital to science’s role in a post #Brexit Britain. A response to Pfizer’s MD, Erik Nordkamp 

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The NHS is becoming like the Trevi Fountain…#sixprinciples

June 15, 2016June 15, 2016 / simondenegri / 1 Comment

I am sure many of you will have heard the legend about the Trevi Fountain in Rome which inspired the 1954 film 'Three Coins in the Trevi Fountain' and title song. It says you must throw three coins into the fountain: the first guarantees your return to Rome, the second leads to a new romance, … Continue reading The NHS is becoming like the Trevi Fountain…#sixprinciples

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Today’s public involvement in health research t-shirt

June 9, 2016 / simondenegri / Leave a comment

I didn't know this but, apparently, the word 't-shirt' does not just refer to the summer garment. It can also be used to describe a very brief 'blog posting.'  There, I bet you feel better for knowing that? Anyway, here's my washed, cleaned and ironed t-shirt for today. Later this afternoon I am speaking to … Continue reading Today’s public involvement in health research t-shirt

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A town hall meeting in Camden held a mirror up to public engagement British style and it wasn’t pretty

March 10, 2016March 11, 2016 / simondenegri / 5 Comments

I was at Camden Town Hall on Monday night with a couple of hundred other citizens. We came together to talk about clinical research and I got a real kick out of it. The occasion was the first ever 'Clinical Research Education Event' held in the UK by the American non-profit organisation, the Centre for … Continue reading A town hall meeting in Camden held a mirror up to public engagement British style and it wasn’t pretty

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Public engagement in research must break through its rose-tinted glass ceiling #engage_2015

December 4, 2015 / simondenegri / 1 Comment

On Wednesday a consortium of 15 research funders and Universities UK led by the Wellcome Trust published its report 'Factors affecting public engagement by researchers.' The Wellcome Trust launch website is here and the report itself can be found here. It's an important piece of work; a 'state of the nation' commentary on public engagement activity across … Continue reading Public engagement in research must break through its rose-tinted glass ceiling #engage_2015

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Smash, shrapnel and loose change – a mish mash of news from around public involvement and engagement in health research

June 2, 2015 / simondenegri / Leave a comment

Here's a few things that I've been collecting and now seems as good a time as ever to gather them together and share them as one. Researchers may wish to note the following exercise that is running throughout universities and institutions to identify barrier to public engagement.  It's a repeat of an exercise done by … Continue reading Smash, shrapnel and loose change – a mish mash of news from around public involvement and engagement in health research

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Thanks for visiting my blog. I am the Executive Director at the Academy of Medical Sciences. NIHR National Director for Patients, Carers and the Public based at UCL. I was the NIHR National Director for Patients, Carers and the Public and Chair of INVOLVE from 2012 to 2019 and, before that, was the CEO of AMRC. I was awarded the OBE in the Queens Birthday Honours list in 2018. You can find out more about me on my bio available from the menu. The views expressed on this blog are my own.

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