Cancer research ‘sales’ to patients remain flat

Today sees the annual Cancer Patient Experience Survey published. For the third year running it looks at the extent to which people with cancer are being told about the opportunity to take part in research. Also, how many take up that opportunity. National data is published and then statistics are provided by NHS Trust and … Continue reading Cancer research ‘sales’ to patients remain flat

Health Research Authority looks for good practice in identifying research participants – survey.

Excuse my laziness but it is Saturday. Here's a copy of a press release put out by the a Health Research Authority (HRA) on Wednesday about a call (in essence, a survey) they are doing for good practice in identifying potential participants for research studies. The results of the work will be published by HRA … Continue reading Health Research Authority looks for good practice in identifying research participants – survey.

New HRA web guidance on consent and participant info sheets open for review

Yep, it is a double whammy from the Health Research Authority (HRA) via me.  Earlier I blogged about the HRA's new public involvement strategy.  Now I am passing on the following which is self explanatory I think...and I am sure they would welcome your input if you have time. One of the good things about the revised … Continue reading New HRA web guidance on consent and participant info sheets open for review

How a Dame and the Great British Public might bring an end to the patient data pantomime…

The Health Service Journal (HSJ) has an 'exclusive' interview today with Dame Fiona Caldicott.  Dame Fiona has been chairing a review - of information governance in health and social care - 'Caldicott2.'  Its report and recommendations are due out in just a few short weeks.You have to subscribe to HSJ to read the full interview … Continue reading How a Dame and the Great British Public might bring an end to the patient data pantomime…

Help us make sense of the placebo effect…

I am involved in this follow-up study to one published a few months ago (and covered on this blog) about the poor information given to patients about the placebo in clinical trials.  In the first instance the researchers are looking for people to input into the design of a leaflet.  Details and contact email follows: … Continue reading Help us make sense of the placebo effect…