Nuffield report underlines importance of public participation if people are to trust how their medical records are used for research

The Nuffield Council on Bioethics have today published their report: 'The collection, linking and use of data in biomedical research and health care: ethical issues' following months of inquiry by an expert working group Chaired by Professor Martin Richards.  Here's a copy of the actual report. There is much coverage in the media already including the... Continue Reading →

Health Research Authority looks for good practice in identifying research participants – survey.

Excuse my laziness but it is Saturday. Here's a copy of a press release put out by the a Health Research Authority (HRA) on Wednesday about a call (in essence, a survey) they are doing for good practice in identifying potential participants for research studies. The results of the work will be published by HRA... Continue Reading →

Swipe here to donate…Tissue donation for research: what’s your view? Blog and survey.

The aforementioned survey is after the blog post if you can't stand the thought of reading this intro..... I somehow think that 'data' will be a significant feature of my life over the next few weeks.  Next week I am a panellist at the NIHR/ABPI conference '360 of Health Data: Harnessing Big Data for Better... Continue Reading →

New HRA web guidance on consent and participant info sheets open for review

Yep, it is a double whammy from the Health Research Authority (HRA) via me.  Earlier I blogged about the HRA's new public involvement strategy.  Now I am passing on the following which is self explanatory I think...and I am sure they would welcome your input if you have time. One of the good things about the revised... Continue Reading →

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