Bereaved parents of babies in clinical trials want ongoing involvement in research says NIHR funded study

There is a lot of research that we hear about in the media which enthrals and amazes with big numbers, amazing finds and clever ideas isn't there?And then there is research that I find genuinely affecting for one reason or another. More often than not, because it tells us something about the human condition.  Sorry if … Continue reading Bereaved parents of babies in clinical trials want ongoing involvement in research says NIHR funded study

NICE makes bold intervention on clinical trials and children

It is great to see our drugs watchdog, the National Institute for Health and Care Excellence (NICE), make such a bold statement today that all children and young people with cancer should be given the opportunity to take part in clinical trials and research. The statement, which is one of seven making up NICE's 'Quality … Continue reading NICE makes bold intervention on clinical trials and children

It’s out! Report of GenR young people in health research event presented to CMO

Yesterday I joined colleagues from the Medicines for Children Research Network (MCRN) to present the report of the Generation R event last year, to the Chief Medical Officer (CMO), Professor Dame Sally Davies. For many people Generation R at the Science Museum was the highlight of 2013.  It was designed, organised and delivered by young … Continue reading It’s out! Report of GenR young people in health research event presented to CMO

Young people in research have sent me a postcard, have a look….

The Generation R event - organised and delivered by young people in research - has to be one of the highlights of my year.  You can find a write-up from the September event here. Today the Generation R crew sent me a postcard about what is happening next. Note the key messages to emerge from the … Continue reading Young people in research have sent me a postcard, have a look….

CMO as good as her word on young people’s involvement in research

The Chief Medical Officer, Professor Dame Sally Davies, published her annual report today. Actually, it's two reports. The first is the usual state of the nation summary of the population's coughs and splutters. The second, uniquely this year, looks in depth at the worrying lack of attention we have paid to young people's health. It's … Continue reading CMO as good as her word on young people’s involvement in research

Generation R: young people improving research event: 11 Sept 2013

Been meaning to post this for a while and not just because the poster design is going to brighten up my blog pages for a while. Our Medicines for Children Research Network (MCRN) really has been an exemplar for involving young people in research.  Find something as good across Europe and I will eat my … Continue reading Generation R: young people improving research event: 11 Sept 2013

Royal College looks to boost child health research with children’s charter

I am prone to beating up our Royal Colleges for one reason or another.  But, over the last few years, I have grown to admire and respect the work of one of their number in particular - the Royal College of Paediatrics and Child Health (RCPCH). Yesterday, RCPCH launched a new report entitled 'Turning the Tide: … Continue reading Royal College looks to boost child health research with children’s charter

Clinical trials and children: impact on outcomes

Interesting paper from the Annals of Oncology and covered in PharmaTimes on how access to clinical trials has led to better outcomes for children with cancer.  The data relates to clinical trial activity promoted by the Children's Cancer and Leukaemia Group.  A direct quote from the article says: "Between 1966 and 1970 just 28% of young … Continue reading Clinical trials and children: impact on outcomes

New paediatric research facility opens at Alder Hey

A new paediatric clinical research facility has opened today at Alder Hey Hospital in Liverpool.  Funding has come from the university, an Alder Hey appeal, and the National Institute for Health Research (NIHR). A very important development for children and their parents and the region's growing profile as a hub of nationwide efforts to improve child health. Click … Continue reading New paediatric research facility opens at Alder Hey

I’ve got a pile of irony to do tonight – from Scottish independence to NHS reform

On my train journey from Edinburgh this morning, I listened to a BBC Radio Scotland phone-in about the implications of Scottish independence.  The intricacies of a possible de-coupling from the UK are fascinating - from the economy to people's pensions, to the NHS. I've yet to read an article written specifically about the pros and cons … Continue reading I’ve got a pile of irony to do tonight – from Scottish independence to NHS reform

Why Georgia is an example to us all on clinical trials

This is a piece I spotted in the local press in Wirral about schoolgirl, Georgia Semple, who is a member of the Young People's Advisory Group for the NIHR Medicines for Children Research Network (MCRN). The Group helps with the design of clinical research - from conveying their views and concerns to researchers, to writing … Continue reading Why Georgia is an example to us all on clinical trials