NICE makes bold intervention on clinical trials and children

It is great to see our drugs watchdog, the National Institute for Health and Care Excellence (NICE), make such a bold statement today that all children and young people with cancer should be given the opportunity to take part in clinical trials and research. The statement, which is one of seven making up NICE's 'Quality … Continue reading NICE makes bold intervention on clinical trials and children

It’s out! Report of GenR young people in health research event presented to CMO

Yesterday I joined colleagues from the Medicines for Children Research Network (MCRN) to present the report of the Generation R event last year, to the Chief Medical Officer (CMO), Professor Dame Sally Davies. For many people Generation R at the Science Museum was the highlight of 2013.  It was designed, organised and delivered by young … Continue reading It’s out! Report of GenR young people in health research event presented to CMO

Young people in research have sent me a postcard, have a look….

The Generation R event - organised and delivered by young people in research - has to be one of the highlights of my year.  You can find a write-up from the September event here. Today the Generation R crew sent me a postcard about what is happening next. Note the key messages to emerge from the … Continue reading Young people in research have sent me a postcard, have a look….

CMO as good as her word on young people’s involvement in research

The Chief Medical Officer, Professor Dame Sally Davies, published her annual report today. Actually, it's two reports. The first is the usual state of the nation summary of the population's coughs and splutters. The second, uniquely this year, looks in depth at the worrying lack of attention we have paid to young people's health. It's … Continue reading CMO as good as her word on young people’s involvement in research

Generation R: young people improving research event: 11 Sept 2013

Been meaning to post this for a while and not just because the poster design is going to brighten up my blog pages for a while. Our Medicines for Children Research Network (MCRN) really has been an exemplar for involving young people in research.  Find something as good across Europe and I will eat my … Continue reading Generation R: young people improving research event: 11 Sept 2013