Question: How many patients does it take to change a lightbulb? Answer: No one knows, they are so rarely asked. The irritating thing is that even when patients are asked to change a lightbulb, they are not given the help and support to do it effectively. It’s a bit like asking someone to change one… Read More ‘How many patients does it take to change a lightbulb?’ Time to get serious about learning and development in public involvement
Herewith a copy of the announcement that you will also find on the National Institute for Health Research (NIHR) and INVOLVE websites to day about the award of the new INVOLVE contract. This means INVOLVE now enters its second decade of being fully funded by the NIHR and the only such body of its kind… Read More Announcement of new contract for @NIHRINVOLVE awarded to the University of Southampton
Plain and simply good news from a citizen point of view. With thanks to INVOLVE and NIHR colleagues for making this happen, Plain English summaries in National Institute for Health Research (NIHR) funded research. The National Institute for Health Research (NIHR) is committed to making sure that each research study it funds has a clear… Read More NIHR makes plain English summaries a requirement of funding via @NIHRINVOLVE
The debate about standards for public involvement in research is an important one. As a community we are growing in number by the day. So is the range of activities that we are involved in. And the number of organisations we are part of. The resulting variety is rich and exciting. There are those of us who… Read More INVOLVE cleans-up on standards for public involvement in research
Forgive me. For once, I write with a semi-official hat on. But this afternoon feels like a bit of a milestone moment in lifting public involvement in research ever higher on people’s agendas. If you have heard me speak in public then you will know I start by saying how proud I am that the… Read More NIHR gives ‘chapter one and verse’ on patients and the public in research: 2012/13 annual report published
A small island has appeared off the coast of Pakistan following the tragic earthquake there last week. The consensus of scientific opinion is that, before long, this island will disappear without trace. In the meantime it is an interesting curiosity, attracting quite a gaggle of geologists and geographers. I wonder if that is how INVOLVE was… Read More Notes from a ‘small island’ in health research…..otherwise known as INVOLVE
Public involvement in research: would you like that shaken or stirred? So, ladies and gentlemen, there I was on Saturday afternoon, at the pictures, watching the new James Bond movie, ‘Skyfall.’ This was background research for today you understand; listening to Adele dolefully sing: ‘This is the end’ which is the opening line of the… Read More Text of speech to INVOLVE 2012 – Public involvement in research: would you like that shaken or stirred?