According to the recent national survey of people's experiences of being involved in National Institute for Health Research (NIHR)*, one in five patients, carers and members of the public told us they had been a 'co-applicant' in research. An equivalent number described themselves as being a 'member of a research team.' As a member of … Continue reading New guidance on what it is to be a public co-applicant in research launched by @NIHRINVOLVE @HRA_Latest and @NHSRDForum
INVOLVE
I’m pro co-pro are you? The march of co-production continues – here’s the final guidance from @NIHRINVOLVE on the principles of co-production #Coproduction
Two blogs in one day. Blimey. I'll be giving away small packets of face cream or toys with the next issue at this rate. Someone asked me recently whether co-production was going to be the only thing that mattered in the future. Is all that is currently known as public involvement going to be painted … Continue reading I’m pro co-pro are you? The march of co-production continues – here’s the final guidance from @NIHRINVOLVE on the principles of co-production #Coproduction
‘How many patients does it take to change a lightbulb?’ Time to get serious about learning and development in public involvement
Question: How many patients does it take to change a lightbulb? Answer: No one knows, they are so rarely asked. The irritating thing is that even when patients are asked to change a lightbulb, they are not given the help and support to do it effectively. It's a bit like asking someone to change one … Continue reading ‘How many patients does it take to change a lightbulb?’ Time to get serious about learning and development in public involvement
Announcement of new contract for @NIHRINVOLVE awarded to the University of Southampton
Herewith a copy of the announcement that you will also find on the National Institute for Health Research (NIHR) and INVOLVE websites to day about the award of the new INVOLVE contract. This means INVOLVE now enters its second decade of being fully funded by the NIHR and the only such body of its kind … Continue reading Announcement of new contract for @NIHRINVOLVE awarded to the University of Southampton
NIHR makes plain English summaries a requirement of funding via @NIHRINVOLVE
Plain and simply good news from a citizen point of view. With thanks to INVOLVE and NIHR colleagues for making this happen, Plain English summaries in National Institute for Health Research (NIHR) funded research. The National Institute for Health Research (NIHR) is committed to making sure that each research study it funds has a clear … Continue reading NIHR makes plain English summaries a requirement of funding via @NIHRINVOLVE
INVOLVE cleans-up on standards for public involvement in research
The debate about standards for public involvement in research is an important one. As a community we are growing in number by the day. So is the range of activities that we are involved in. And the number of organisations we are part of. The resulting variety is rich and exciting. There are those of us who … Continue reading INVOLVE cleans-up on standards for public involvement in research
NIHR gives ‘chapter one and verse’ on patients and the public in research: 2012/13 annual report published
Forgive me. For once, I write with a semi-official hat on. But this afternoon feels like a bit of a milestone moment in lifting public involvement in research ever higher on people's agendas. If you have heard me speak in public then you will know I start by saying how proud I am that the … Continue reading NIHR gives ‘chapter one and verse’ on patients and the public in research: 2012/13 annual report published
Notes from a ‘small island’ in health research…..otherwise known as INVOLVE
A small island has appeared off the coast of Pakistan following the tragic earthquake there last week. The consensus of scientific opinion is that, before long, this island will disappear without trace. In the meantime it is an interesting curiosity, attracting quite a gaggle of geologists and geographers. I wonder if that is how INVOLVE was … Continue reading Notes from a ‘small island’ in health research…..otherwise known as INVOLVE
Text of speech to INVOLVE 2012 – Public involvement in research: would you like that shaken or stirred?
Public involvement in research: would you like that shaken or stirred? So, ladies and gentlemen, there I was on Saturday afternoon, at the pictures, watching the new James Bond movie, ‘Skyfall.’ This was background research for today you understand; listening to Adele dolefully sing: ‘This is the end’ which is the opening line of the … Continue reading Text of speech to INVOLVE 2012 – Public involvement in research: would you like that shaken or stirred?
Thoughts on public involvement, participation and engagement in research…from Denmark
Those of you who follow me on twitter (and you can do so by clicking on the twitter symbol on the blog), will know that, earlier this week, I was tweeting from Copenhagen in Denmark. Myself and Derek Stewart, Associate Director for PPI at NIHR CRN CC, were there to help launch the Danish Health … Continue reading Thoughts on public involvement, participation and engagement in research…from Denmark
Research is for life: making research part and parcel of the patient journey
I was very privileged to be asked to give the Furlong Christmas Lecture a few weeks ago. I hope this doesn't seem egotistical but here's the text of that lecture amended with useful links etc - it touches on and rehearses themes that will be familiar to those of you who have visited the blog … Continue reading Research is for life: making research part and parcel of the patient journey
Canada gets the ‘patient involvement in research’ bug
A few weeks ago I mentioned meeting the Director of the Canadian Institutes for Health Research (CIHR) to discuss public involvement in research. Last night I stumbled on the following announcement by the Canadian Government about the development of a patient-orientated research strategy. Excellent news. I am sure the news has very little to do … Continue reading Canada gets the ‘patient involvement in research’ bug
Exortic science goes kryptonite, perhaps
Today's headline is taken from the menu for my Indian take away last night which talked of 'exortic sauces.' A spelling mistake it might be but I was rather taken with the idea of my curry sauce exorting me to savour its spices. In a similar fashion do I feel the desire to devour all … Continue reading Exortic science goes kryptonite, perhaps
International clinical trials day and a bit of mopping-up
It is International Clinical Trials Day today and The Cochrane Library has worked with the UK Medical Research Council's Network of Hubs for Trials Methodology Research to produce a set of new podcasts about clinical trials - well worth a listen. There was a conference in Vienna this morning organised by the European Clinical Research … Continue reading International clinical trials day and a bit of mopping-up
Public attitudes to science survey 2011
Welcome back to those of you who left the rest of us to run the country for two weeks. I must say that I spent the Bank Holiday weekend in a verily good mood having had a quick peek at the results of our annual member survey. This showed that 98% of our members say … Continue reading Public attitudes to science survey 2011
Ridding ourselves of the 'red tape' worm
If you believe the Government - any Government in fact - we are all entangled in webbing made of regulation red tape that makes us look like one of those mummies emerging from a tomb in a 60s Hanna Barbara cartoon. However, I can't help but agree on this occasion. I don't know about you, … Continue reading Ridding ourselves of the 'red tape' worm
User involvement in research – drive your own train
I am at the INVOLVE two-day conference in Nottingham this week. INVOLVE is the National Institute for Health Research (NIHR) funded programme promoting public involvement in research. It is perhaps worth adding that INVOLVE is the only publicly funded national organisation of its kind across the world. It's a packed conference - almost 500 delegates … Continue reading User involvement in research – drive your own train
'A nation of General Practitioners' and other bits of philosophising
The news earlier this week that the National Institute of Clinicial and Health Excellence (NICE) is to lose its powers for deciding which drugs should be made available on the NHS (to be replaced by a new system based around GP commissioning) brought an alternative version of Adam Smith's remarks about shopkeepers to mind: "To found a … Continue reading 'A nation of General Practitioners' and other bits of philosophising
Simon Denegri's Lay Review 