Excuse my laziness but it is Saturday. Here's a copy of a press release put out by the a Health Research Authority (HRA) on Wednesday about a call (in essence, a survey) they are doing for good practice in identifying potential participants for research studies. The results of the work will be published by HRA … Continue reading Health Research Authority looks for good practice in identifying research participants – survey.
Yep, it is a double whammy from the Health Research Authority (HRA) via me. Earlier I blogged about the HRA's new public involvement strategy. Now I am passing on the following which is self explanatory I think...and I am sure they would welcome your input if you have time. One of the good things about the revised … Continue reading New HRA web guidance on consent and participant info sheets open for review
Sometimes you are just defeated by the brilliance of others. So, if you are looking for a wonderful summary of what the autumn statement means for health research, then I can highly recommend Becky's Policy Pages. Clearly, the opening up of health data is the single most important strategic announcement in today's statement - much … Continue reading Patients, ethics committees and clinical research – NRES/INVOLVE report highlights ‘public’ challenge for new health research regulator (HRA)
Welcome back to those of you who left the rest of us to run the country for two weeks. I must say that I spent the Bank Holiday weekend in a verily good mood having had a quick peek at the results of our annual member survey. This showed that 98% of our members say … Continue reading Public attitudes to science survey 2011
If you believe the Government - any Government in fact - we are all entangled in webbing made of regulation red tape that makes us look like one of those mummies emerging from a tomb in a 60s Hanna Barbara cartoon. However, I can't help but agree on this occasion. I don't know about you, … Continue reading Ridding ourselves of the 'red tape' worm
Dear Member of Parliament, This afternoon the Health and Social Care Bill will recieve its Second Reading in the House of Commons. The legislation sets out a far-reaching programme for reforming the NHS and the provision of patient care. The Association of Medical Research Charities (AMRC) and its 127 member charities believe that high quality … Continue reading Second Reading of the Health and Social Care Bill: An open letter to MPs
Over the weekend Professor Colin Blakemore said he hoped the Academy of Medical Sciences would come up with radical proposals to end the regulatory mess that holds up UK health research such as clinical trials. I am not sure whether he will feel today's report by the Academy lives up to that aspiration, but I do … Continue reading Rawlins Review: Academy lays down law on health research regulation
Ahead of next week's Academy of Medical Sciences (AMS) much anticipated report on medical research regulation I see The Times and Sunday Times (both paywall) have published pieces this weekend by scientist Professor Colin Blakemore and journalist Brian Deer respectively, offering different perspectives on the issue of regulation. If you are looking for further background on … Continue reading Regulating research – Blakemore/Deer comment pieces + AMRC background
In a blog 'exclusive' - albeit more by technical chance than design - I am today sharing with you the independent report of the AMRC/INVOLVE patient workshop on health research regulation that took part in early November. We were invited to undertake this important piece of work by the Academy of Medical Sciences (AMS) as … Continue reading What do patients want from health research regulation?
Some of you may know that today was being dubbed 'Super Wednesday' by some because today is the day that the Department of Health has set out its response to the consultation on the NHS White Paper 'Equity and Excellence: Liberating the NHS.' The National Institute for Health Research (NIHR) has very helpfully published an … Continue reading NHS white paper next steps
So it's 10pm and I'm busy here putting the final touches to the AMRC/INVOLVE report of the workshop we held in November which drew together patient views on health research regulation. This was at the invitation of the Academy of Medical Sciences as part of their review of regulation and governance but - and all … Continue reading An evening of industry – how the pharma business model is changing
I thought you may be interested in this extract from the Health Minister, Earl Howe's, speech to out AGM on Wednesday: It also gives me pleasure to note [that] AMRC member expenditure on research having exceeded £1 billion for the year for the first time. Given the economic circumstances, I think this is something about which … Continue reading Earl Howe's Speech at the AMRC AGM
The news earlier this week that the National Institute of Clinicial and Health Excellence (NICE) is to lose its powers for deciding which drugs should be made available on the NHS (to be replaced by a new system based around GP commissioning) brought an alternative version of Adam Smith's remarks about shopkeepers to mind: "To found a … Continue reading 'A nation of General Practitioners' and other bits of philosophising
A quick post to say that we have today posted our comments on the NHS White Paper on our website. Our response is the first-listed on the consultations page for 2010 here. If you want to get some idea of the Department of Health perspective on the issues we raise you might like to read … Continue reading AMRC Responds to NHS White Paper 'Equity and Excellence: Liberating the NHS'
Stumbling half-asleep across my hotel room this morning I overheard a spokesman from the Birmingham Symphony Orchestra on the TV saying that every £1 invested in arts in the city generated a further £29 in economic activity. Or something along those lines. As Orwellian visions filled my mind of a day to come where every … Continue reading Science at the Conservative Party Conference – notes from a large fringe
I read in the Birmingham local press that about 14,000 people are expected at the Conservative Party Conference. It certainly seems busier than the preceding two, even on a Sunday evening. Each conference has its own feel but common to them all is the herd of grey-suited buffalo (including myself I suppose) that migrates from one … Continue reading Science at the Conservative Party Conference – avoiding the herd mentality
I think it was Simon Carr in the Independent who said that Ed Milliband opened his arms at the beginning of his speech as if welcoming the assembled earthlings to his world. I certainly feel as though I have come back down to earth today. An early train back to London from Manchester to a … Continue reading Coming down to earth – regulators, dementia taxes, collaboration and new generation politics
Rumour has it that there is an outbreak of tonsilitis in the north-west at the moment...here's hoping Ed Milliband is being kept in isolation until his leader's speech this afternoon. One thing I forgot to mention from last night's meeting was David Lammy's comment that the coalition government has yet to put together a convincing narrative for … Continue reading Science at the Labour Party Conference – a Miller's tale
First, a general observation. Less than one day here and I have met four 'Eds' already - more than in the previous ten years travelling the breadth of the UK. Strange that. But perhaps when you are faced by David Willetts you need as many 'Eds' as you can get. I came expecting a muted, … Continue reading Science at Labour Party Conference – Vital Signs
Back in London, a few final thoughts on the Lib Dem conference in Liverpool this week: My first ever Lib Dem conference was in Torquay twenty years ago. How things change! Busier than I have ever seen it, the party faithful had a different spring in their step even if they seemed a little apprehensive. … Continue reading Science at the Lib Dem party conference – final thoughts