....despite the temptation. Summer means many things for me. One of them is keeping track of the football transfers. Here's hoping that the Eagles do manage to persuade Ronaldo to South London! The comments that managers make about players never cease to amuse me. One of the most common goes something along the lines of: 'He's … Continue reading Clinician resistance to research may require an arm around the shoulder not a red card
Author: simondenegri
An unleaked memo on sorry pharma and the silly season
Or should that be silly pharma...I don't know. Yes, our colleagues from pharma have stolen the march on everyone else and got the silly season off to a grand old start. I am referring, of course, to the leaked memo from the European and American pharma trade associations dutifully covered by Ian Semple at The … Continue reading An unleaked memo on sorry pharma and the silly season
Moorfields research team reports on benefits of public involvement to eye patients and staff
Sometimes it is the lot of the blogger to feel like the producer of 'Have I Got News For You.' One's research can taken you to all sorts of places you didn't know existed. Then again it can also turn up some gems. This morning I blogged about the WHO report on medicine priorities and … Continue reading Moorfields research team reports on benefits of public involvement to eye patients and staff
WHO calls for investment to turn public involvement from a paper tiger into a lion’s roar
There are two reasons to read the World Health Organisation's (WHO) report on medicines priorities published earlier this week: http://www.who.int/mediacentre/news/releases/2013/ageing_priority_medicines_20130716/en/ The first is for its call on pharmaceutical companies and others to reflect the needs of an ageing population in their R&D investment. It rehearses many of the concerns that are being articulated left, right … Continue reading WHO calls for investment to turn public involvement from a paper tiger into a lion’s roar
It’s a personal thing: You say stratified medicine and I say…
The UK Academy of Medical Sciences (AMS) does not do hyperbole. This is a good thing considering the histrionics that usually accompanies discussion about stratified medicine. AMS brought out its long-awaited report on stratified medicine on Friday entitled 'Realising the potential of stratified medicine.' It's straight-laced approach to the subject matter means it failed to … Continue reading It’s a personal thing: You say stratified medicine and I say…
Leadership, and a strategy transplant from NHSBT would do the patient data debate no harm
Today NHS Blood and Transplant (NHSBT) has called for a radical change in public attitudes and behaviours towards organ donation.The public have been asked to respond to NHSBT's new strategy. This asks people to consider some tough questions such as whether registered organ donors should go to the front of the queue for organ donation ahead of … Continue reading Leadership, and a strategy transplant from NHSBT would do the patient data debate no harm
Wither research into the needs of older people [sic] ???
First off, an anecdote inspired by the Secretary of State for Health, Jeremy Hunt MP's, announcement to mark the 65th anniversary of the NHS, that all older people will have a named clinician responsible for their care. This is absolutely good news. But it's the view down the narrow end of the telescope. I wonder how things might … Continue reading Wither research into the needs of older people [sic] ???
250 words on Genomics England
So this feels to me as though common sense has been snatched from the jaws of defeat at the feet of academia. The initial announcement of a 'genome mapping initiative' by the Prime Minister in December was followed by not very convincing noises about the shape of things to come. Indeed, I fired off a … Continue reading 250 words on Genomics England
Blog: public attitudes to science need more than a good fracking
It is not open yet. Not a jot of science has taken place there. But the tweet from NHS England yesterday and accompanying article heralded 'the Crick' for 'pushing the frontiers of medical science.' * At this rate I think we have every right to be disappointed if the 'Crick' has not cured cancer, heart … Continue reading Blog: public attitudes to science need more than a good fracking
It’s NIHR Friday: NHS Trust research activity stats published
You didn't think I'd forget NIHR Friday did you? So the National Institute for Health Research Clinical Research Networks Co-ordinating Centre (NIHR CRN CC), together with The Guardian online, has this week published its annual performance tables for research activity in each NHS Trust in England for 2012/13. You can find the figures for your local … Continue reading It’s NIHR Friday: NHS Trust research activity stats published
Blog: We have the public to thank for this week’s well-informed decisions in health research
We have had two pieces of good news about health research of patient benefit this week. First, the National Institute for Health and Care Excellence (NICE) issued new guidance saying that tamoxifen or raloxifene taken daily for five years can cut breast cancer risk by 40%. This means women at risk of developing breast cancer have … Continue reading Blog: We have the public to thank for this week’s well-informed decisions in health research
@SDenegri presentations about the public and health research from Leicester, HSRN and Leeds
I'm always very chuffed when people ask for a copy of my presentations after a talk. Usually I am quite good at emailing them to people or asking the organisers to send them round. Anyway, I have done a lot of meetings lately and thought I would post here copies of my slides from the … Continue reading @SDenegri presentations about the public and health research from Leicester, HSRN and Leeds
Generation R: young people improving research event: 11 Sept 2013
Been meaning to post this for a while and not just because the poster design is going to brighten up my blog pages for a while. Our Medicines for Children Research Network (MCRN) really has been an exemplar for involving young people in research. Find something as good across Europe and I will eat my … Continue reading Generation R: young people improving research event: 11 Sept 2013
It’s NIHR Friday – Public involvement: did the research network move for you?
NIHR Clinical Research Network Survey Patient and Carer (Lay) Involvement in Research: Your Experience The National Institute of Health Research (NIHR) Clinical Research Network (CRN) Patient and Public Involvement Steering Group is running a survey to capture how being involved in research impacts on patients and carers. You should take part in this survey if … Continue reading It’s NIHR Friday – Public involvement: did the research network move for you?
Blog: Why the NIHR Journals Library is important from a patient perspective
NIHR Journals Library Launch 20th June 2013 As promised here's my speaking notes from the launch of the NIHR Journals Library today. Good to see the Minister, Earl Howe, there (I tweeted his remarks earlier) plus the CMO, Professor Dame Sally Davies, Trish Edwards, Asst Editor from the BMJ etc., Public involvement in UK health research … Continue reading Blog: Why the NIHR Journals Library is important from a patient perspective
The ageing of consent in clinical research
'I would like to know what I want to know' - a participant-led approach to giving consent to taking part in clinical research
NIHR Friday: Lift-off for patient safety research in UK
This week saw the launch of the NIHR Greater Manchester Primary Care Patient Safety Translational Research Centre (NIHR GM PCPSTR for short!), a partnership between the University of Manchester and Salford Royal NHS Foundation Trust. NIHR is funding the Centre - believed to be the only one of its sort in the world - to a tune … Continue reading NIHR Friday: Lift-off for patient safety research in UK
Stadium Medicine
Just to prove that I do have a life outside public involvement in health research, did I mention that I recently went to see Depeche Mode at the O2? Great gig. Never seen them before. How our experience of live music has changed over the last twenty years? Once I could pretty much get a … Continue reading Stadium Medicine
NIHR Friday: CLAHRCs Selection Panel announced plus NIHR Journals Library opens
I was just going to tweet this but since it is in a downloadable pdf and not actually on the face of NIHR's website, I thought it would be helpful to post it - the membership of the Collaboration in Leadership for Applied Health Research and Care (CLAHRC) Selection Panel: Professor Huw Davies (Chair) Co-Head of … Continue reading NIHR Friday: CLAHRCs Selection Panel announced plus NIHR Journals Library opens
Blog: RCOG report highlights risk of ‘white coat fatigue?’
Yep, the (Royal College of Obstetricians and Gynaecologists (RCOG) had a very, very bad day at the office yesterday. More importantly, so did mothers-to-be. They deserved much better from the Royal College whose mission since 1947 has been to improve standards in their profession for the benefit of the public. I suspect many in the … Continue reading Blog: RCOG report highlights risk of ‘white coat fatigue?’
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